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Celiac Disease: An elusive diagnosis - Grand Forks Herald


Scott Adams

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Grand Forks Herald

Celiac disease is on the rise, according to Dr. Alberto Rubio-Tapia, assistant professor of medicine at the Mayo Clinic in Rochester, Minn., who has been involved in studies on the disease. “Unfortunately, most people with celiac disease remain ...

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"In the past, celiac disease may have been misdiagnosed as irritable bowel syndrome, or anxiety and depression."

This is partially true. In the past, but yeah, most doctors are still living in the past. It took a great deal of insistence to force my docs to test me and they found nothing. However since going gluten free, my symptoms have improved. That is, until I developed debilitating vertigo. I am guessing this is due to the fact that I no longer need the high dosages of thyroid meds and that I'm actually hyperthyroid now because of my diet restrictions. We will see as time goes on.

Another think that caught me as kind of funny is that they said that this way of eating is more expensive. Well, yes and no. I'm certainly spending more money on flour, bread, and pasta. But I'm NOT spending nearly the same amounts of money on otc medications for ailments that continued to pop up when I was eating gluten. And I've learned to adapt the things I eat so that I don't need the special flours, breads, and what-not. AND since I'm eating fresher foods that are not prepackaged, I'm eating healthier too. A savvy person with celiacs or gluten intolerance can save money by purchasing better foods while they are on sale, and simply consuming less of the pricey substitutes. Skip the sandwich. Instead, have a salad with some chicken and maybe a few Marys gone crackers. Have a steak and potato while your collegues are stuffing their faces with glutenous appetizers. Bake a small gluten free cake and carry it with you to the next birthday party. after caking your own plate, offer to share - let the guests taste your yummy cake - they are very good!

Instead of teaching people to be wary of the diagnosis, more articles should be written about the aloofness of the disease. It is hard to catch, even in someone with true celiacs, false negatives can and are being diagnosed. And the diagnosis does NOTHING. It cannot allow for special meds, offer new methods of treatment, or help patients understand the condition more thoroughly. Whether diagnosed or not, if you have a gluten intolerance, your health is truly in your hands.

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    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
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