Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Support Group In Southern Nh/boston Area?

NHyogagirl

Recommended Posts

NHyogagirl Rookie
NHyogagirl
Posted

Hello all,

I've been a member now for 8 months, joined when my daughter had 14" of intestine removed for a bowel obstuction on New Year's Eve. Now she can't eat a trace of gluten. She never really was supposed to eat it, by process of elimination diet, but as a pre-teen, she cheated. I've gone 100% gluten-free also sine 1/1/12 and feel much better than I did, more energy, lost 7 lbs, eat more healthy and organic foods, etc.

Anyway, I won't ramble any longer...I wanted to start a support group in Southern NH and wondering if anyone else is interested? I'm also going to start a consulting nutrition business for people that are gluten-free and newly diagnosed or don't know how to eat or cook properly. I have my degrees in Business and a BS in Natural Health.

Any thoughts or suggestions would be appreciated!

Best,

Trish

  • 2 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mamacita Sasso Rookie
Mamacita Sasso
Posted

Hi Trish,

I've been gluten free for 5 years. That would be great if you wanted to start a new support group for Southern NH. Where do you live? I am in Manchester. There are so many places to eat gluten free in this area so that's not a problem, but I would love to share stories with other people who eat this way. It's amazing to go to the grocery stores and even the cashiers are familiar with why you are buying gluten free items.

Let me know if you do decide to go forward with the support group idea.

Bev

NHyogagirl Rookie
NHyogagirl
Posted
  • Author

Hi Bev,

I found another gentlemen that does support groups and am trying to set up a support meeting with him & others. If you can e-mail me your contact info that would be helpful.

Thanks,

Trish

peacefuleating@yahoo.com

  • 5 years later...
John B. Newbie
John B.
Posted

hello I am newly diagnosed with celiac and is looking for a support group to learn more about it. On what I can eat and not eat. recipes and stuff

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748
    PatBurnham
    Newest Member
    PatBurnham
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.