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Discussing Your Gluten Specific Symptoms

ChristianGrey

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ChristianGrey Rookie
ChristianGrey
Posted

Hello ladies and gents. Pleased to meet you all; this is exclusively my first post. You all seem to be quite knowledgable in this forum. May I summon your expertise? What were your symptoms; at the onset of your suspected gluten allergy? How long has it been since your diagnosis; and are you still having said symptoms?

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eatmeat4good Enthusiast
eatmeat4good
Posted

7 years with "fibromyalgia" severe and profound muscle weakness, migraines, weight gain, sores on arms and face that would burn and weep and oooze at night. Itced like crazy resulting in excoriations. Diarrhea, nausea, depression, anxiety. Well, found this site and got better by going gluten free immediately 2 years ago. Welcome! Good luck to you. You will get a wide variety of responses to this question as there are over 300 symptoms of celiac. Hey Doc! I don't have fibromyalgia or neurotic excoriation after all. I have Celiac disease. Doc says...yeah, I bet you do.... This after 7 years and 25 Dr.'s.

2 years gluten free and I don't have anything wrong with me except some residual flashbacks and PTSD from no Dr. listening to me all those years. But otherwise...healthy and happy. Muscles work and no headaches or rashes.

1desperateladysaved Proficient
1desperateladysaved
Posted

Five years ago I was really rough.

High blood pressure

Blood pressure would plummet when I stood up.

Irritable and hopeless.

Weight 30 lbs of water.

Extreme constant fatigue/mind fogginess

Mysterious bloating.

Unexplained swelling, I was told was my imagination.

Shortness of breath.

Numbness.

rashes

Periods very heavy.

I could fall asleep between words on a spelling test.

I began a supplement program with help from a chiro. I improved my blood pressure, weight, and fatigue. I was much better and out of major threat. Still I had mysterious problems which would crop up.

Six months back with the help of my chiropractor, I decided to try gluten free. I did a classical gluten free diet for two months. After that I have been doing grain free. My mind has cleared and I have not been suffering from fatigue. I am starting to see how my symptoms are caused by gluten contact.

I did a genetic test and found I had 2 alleles for gluten intolerance and 2 for Celiac. Now, I am trying to get further testing for allergies and nutrient absorption.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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