Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Go To A Specialist : Pediatric Gi


LenoreR

Recommended Posts

LenoreR Newbie

If in doubt, GO TO THE GI ANYWAY. Don't waste time reading so much you may be obsessing, and thinking what if... I write to be of help. Everyone really does just have to listen to their instincts.

My daughter was messing herself only number two's since potty training, she was still at 4.5 years old. Was going up to 6 times a day always soft. Pediatrician said it was constipations diagnosed form X ray and was on stool softner for like 6 months before I finally referred her myself. Wasted a lot of time, but had the underlying feeling it wasn't right. I was investigating celiac because my mother in law has lupus, and major gastrointestinal problems. After obsessing, referred my daughter myself (AGAINST PEDIATRICIAN).

All blood tests did not point to gluten/celiac yet, hopefully not. Had barium enema, normal, was not constipated, had upper and lower, (endoscopy and colonoscopy) Diagnosed with gastritis and duodenitis (but was already on soy milk for years) HAD LACTOSE AND SUCROSE INTOLERANCE. NO SUGAR, NO MILK. Doctors said even if endoscopy and blood test don't find celiac disease you cannot really rule it out. She is not on gluten free diet because I trust my doctors and will wait. So you just have to be on alert, some children are diagnosed at a later age, 8, or so or more. They won't She feels better now, still complaining of belly hurting so far and fussy at times, but I am content we found some relief, and am on alert to see if any more symptoms come up related to gluten or pains that could b e ulcers from wheat breads I do give. IF YOU HAVE doubts about a child of yours, try to find a good GI specialist. They will find out what is wrong.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Aprilelayne Newbie

I'm dealing with trying to find answers for my 18month old currently, so your post got my attention.

Did I read correctly, that after testing scope is when you found the lactose and sucrose intolerance? or was she diagnosed based on the testing results?

Curious how the initial thoughts and dx were constipation, with multiple movements and soft daily?

nora-n Rookie

the symptoms of severe constipation are diarrhea

it runs past the blockage

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

    2. - Scott Adams replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

    3. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      3

      Stomach burning and neuropathy

    4. - Scott Adams replied to Me,Sue's topic in Related Issues & Disorders
      2

      Nausea

    5. - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,851
    • Most Online (within 30 mins)
      7,748

    Samanthmay
    Newest Member
    Samanthmay
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Francis M
      Absolutely my point with Kerrigan, the owner. She stood to secure many years of faithful patronage by simply inviting us in for a pastry or lunch. Or by simply producing another $50 e-card based on trust. We would have been highly satisfied. We are limited to a few restaurants in the area, and that would have been one. It was very disappointing, esp to my wife, to realize we can't patronize the place anymore.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.