Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cold Sores?


bossley

Recommended Posts

bossley Contributor

Does DH look like cold sores on your fingers? I get them a lot


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

I don't have DH, but from what I uderstand it can look different for different people. Does it itch intensely? Also, DH is symetrical. In other words, you will get it in the same place on both sides of your body.

I have palmoplantar putular psoriasis. It looks a lot like whitehead pimples and I only get it on my hands and feet. It doesn't itch very much but it hurts, just like a whitehead pimple would when you put any pressure on it. Also, when it starts to heal it cracks and peels and that's pretty painful too.

If you didn't have it before you went gluten-free and it is just showing up now it probably isn't either. gluten-free cleared my psoriasis up after a while. DH though, if that's what it is, takes a long time to heal and anything with iodine usually makes it worse, even if you don't ingest gluten.

I think there is a thread here somewhere in which members have posted pictures of their DH. Check that out and compare yours to the pictures. In the meantime I will try to find a picture of PPP and post it here so you can see what that looks like.

bartfull Rising Star

OK, here is what my hands and feet USED TO look like. It sure made life miserable. As bad as it was, going gluten-free (and corn-free, soy-free, nightshade-free and salicylate light) made it go away. And now that my gut has heeled I have been able to get corn starch and nightshades back. With a little time I'm hoping to get more of them back.

Open Original Shared Link

bossley Contributor

I don't have DH, but from what I uderstand it can look different for different people. Does it itch intensely? Also, DH is symetrical. In other words, you will get it in the same place on both sides of your body.

I have palmoplantar putular psoriasis. It looks a lot like whitehead pimples and I only get it on my hands and feet. It doesn't itch very much but it hurts, just like a whitehead pimple would when you put any pressure on it. Also, when it starts to heal it cracks and peels and that's pretty painful too.

If you didn't have it before you went gluten-free and it is just showing up now it probably isn't either. gluten-free cleared my psoriasis up after a while. DH though, if that's what it is, takes a long time to heal and anything with iodine usually makes it worse, even if you don't ingest gluten.

I think there is a thread here somewhere in which members have posted pictures of their DH. Check that out and compare yours to the pictures. In the meantime I will try to find a picture of PPP and post it here so you can see what that looks like.

I was wondering because I got it a lot before gluten free and I could not figure out what it was from. One of the first pictures , on her hand, looks just like it. That would be very interesting if that was what it was. No matter what I did to it would'nt stop it. I even tried to scratch it off. ( That hurt.) It still continued on it's course. I got a lot of cold sores when I was young, And in the last eight years they started again, so I just assumed they were cold sores. Starts out itching, and then blisters under the skin, then clusters of blisters,usually on my fingers. Stays pretty long before it leaves.
bossley Contributor

OK, here is what my hands and feet USED TO look like. It sure made life miserable. As bad as it was, going gluten-free (and corn-free, soy-free, nightshade-free and salicylate light) made it go away. And now that my gut has heeled I have been able to get corn starch and nightshades back. With a little time I'm hoping to get more of them back.

Open Original Shared Link

WOW !! That must have been pain full. The stuff on my hand is only a finger or two. Keep going and be well.

bartfull Rising Star

If you had it before going gluten-free then it might well be psoriasis. OR DH. It will take a while to get rid of it, but I'm sure that if you are scrupulous with your diet you will see results. I hate to even bring this up, but you may have trouble with corn or salicylates like I did. I used to go on a psoriasis forum and when I mentioned gluten-free, they (some of them) scoffed. Some of them said they tried gluten-free and although it seemed to help at first, it came back. I believe that is because they too developed intolerances to other things.

What happened with me is my body was so messed up from about twelve years of untreated celiac that my immune system was mistaking EVERYTHING for gluten. I was down to eleven foods I could safely eat. Everything else flared my psoriasis and gave me insomnia (among other things). It wasn't easy. I kept getting "corned" because corn is in everything - even plastic water bottles.

But eventually I had enough time to heal and when I did, my psoraisis stopped flaring and my gut healed enough to where I can now tolerate corn starch and potatoes again.

If your spots don't start healing pretty soon, you can always PM me and I can help you learn to avoid corn. Another thing you might try to find out if salicylates bother you is asperin. That's how I discovered that I had a problem with sals. I took asperin for a couple of days for an unrelated problem and my psoriasis flared like wildfire. I knew I hadn't been glutened or corned, then one of the helpful folks here told me about salicylate sensitivity. Turns out I have it.

Here's hoping you don't have to go through all of that though. I hope your spots clear up just by ditching the gluten and you are on your way to good health. :)

bossley Contributor

If you had it before going gluten-free then it might well be psoriasis. OR DH. It will take a while to get rid of it, but I'm sure that if you are scrupulous with your diet you will see results. I hate to even bring this up, but you may have trouble with corn or salicylates like I did. I used to go on a psoriasis forum and when I mentioned gluten-free, they (some of them) scoffed. Some of them said they tried gluten-free and although it seemed to help at first, it came back. I believe that is because they too developed intolerances to other things.

What happened with me is my body was so messed up from about twelve years of untreated celiac that my immune system was mistaking EVERYTHING for gluten. I was down to eleven foods I could safely eat. Everything else flared my psoriasis and gave me insomnia (among other things). It wasn't easy. I kept getting "corned" because corn is in everything - even plastic water bottles.

But eventually I had enough time to heal and when I did, my psoraisis stopped flaring and my gut healed enough to where I can now tolerate corn starch and potatoes again.

If your spots don't start healing pretty soon, you can always PM me and I can help you learn to avoid corn. Another thing you might try to find out if salicylates bother you is asperin. That's how I discovered that I had a problem with sals. I took asperin for a couple of days for an unrelated problem and my psoriasis flared like wildfire. I knew I hadn't been glutened or corned, then one of the helpful folks here told me about salicylate sensitivity. Turns out I have it.

Here's hoping you don't have to go through all of that though. I hope your spots clear up just by ditching the gluten and you are on your way to good health. :)

I'm doing your whole food diet and I see some improvement, but I keep messing up. I know right away when I blow it because my face swells and my nose closes. I put butter on something yesterday thinking ( whole ). Two hours later I could not breath. Forgot about milk. I'll keep picking away.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,926
    • Most Online (within 30 mins)
      7,748

    Meg Slack
    Newest Member
    Meg Slack
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      TTG would refer to a blood antibody test. Not valid if you are already eating gluten free or mostly so. DQH would refer to a genetic test to see if you possess either or both of the two genes that have been connected most strongly to developing active celiac disease. The genetic test is more of a rule out measure than a diagnostic test as about 40% of the general population have one or both of those genes but only about 1% of the general population develops active celiac disease. If you don't have the genes but gluten causes you issues then the conclusion is NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. So, the genetic testing helps with a differential diagnosis. I don't know about the 2P. 2 Pairs of genes?
    • Scott Adams
      Tell him to get me a case...just kidding! I wonder why they are not labelled gluten-free here in the USA? They don't have gluten ingredients.
    • Pamela Kay
      Glad this helped. There are lots of alternative breads out there, so someone has likely made some sort of paleo bread with no grain. And if you bake, experiment with some of the alternative flours to see what you can come up with. If you commit to the gluten-free diet 100%, you may want to do a bit of research on some of the tricker aspects of getting gluten out of your diet, such as cross contamination in the home kitchen (pots and pans, cutting boards, toaster, airborne flour). Don't feel you have to do everything at once, or let this overwhelm you. I've always said that going gluten free is a process, not a moment. The reason I mention this is that, if you think you are gluten-free, but still having symptoms, you may realize that even minute amounts of gluten cause a reaction for a while. Let me know if you have any questions.  Pam
    • Scott Adams
      The doctor was correct--if you are gluten-free the blood panel for celiac disease will not work, you would need to go on gluten challenge in order to be tested. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      It could, but it could also mean that gluten still not being fully eliminated. It's important to get a celiac disease blood panel to help figure this out. For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions that can cause damaged villi:    
×
×
  • Create New...