Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weird Reaction At Biopsy Location


cindylou7

Recommended Posts

cindylou7 Apprentice

My biopsy was taken onTuesday from a site that did not have any active blisters (I don't typically get a "rash"). It was taken from a scarred area where I have recurrent blisters. The thing that is strange is that the itching at the site of biopsy and all around it has created an outbreak. The biopsied area is actually oozing like my DH blisters do and I have developed new blisters.

Anyone have a similar response to a biopsy or injury to the skin creating an outbreak?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

Yes, Cindy, this is rather common with dh. People report that if they get a cut or scrape or burn or any damage to the skin they often get a dh outbreak there. We don't know why & I have never seen it documented in any medical literature on dh but it's been reported enough on this site by enough dh'ers that we know it's true & quite apparently common.

I'm sorry this is happening to you.sad.gif But now, you have some active lesions for the new derm to biopsy. But then again --- you'll probably get an outbreak at the new biopsy site. Sigh.

cindylou7 Apprentice

Thanks again Squirming! I keep thinking maybe I'm wrong this isn't DH but something else entirely. And then, I post and realize all my symptoms still match. The skin is hot and red and itches like!&?@(! It seems simple and yet it is so complex!

You'd think that the skin sample would surely find antibodies but I know that the odds are not in my favor! Crazy!!!

pricklypear1971 Community Regular

In all fairness, there are a lot of chronic skin rashes that flare at an injury site.

And yes, DH is one of them.

Sorry you got a flare, that sucks. Hopefully something interesting comes out of the biopsy. Sometimes a finding of iga is a big help, even if it isn't in a DH pattern.

jlaw Apprentice

Yep, this is totally me too. I have 3 seperate biopsy sites in close proximity, and now they blend in nicely with my sturdier blisters! My theory is that as the blood supply is increased to facilitate the healing process, so therefore are the Iga deposits increased. (Although as pricklypear says, it could be a number of things.) Let us know how you go with the results...

squirmingitch Veteran

Yep, this is totally me too. I have 3 seperate biopsy sites in close proximity, and now they blend in nicely with my sturdier blisters! My theory is that as the blood supply is increased to facilitate the healing process, so therefore are the Iga deposits increased. (Although as pricklypear says, it could be a number of things.) Let us know how you go with the results...

That sounds like a pretty plausible theory.

  • 2 weeks later...
TexasLady54 Newbie

I just had my biopsy yesterday and I'm having quite the flare as well.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cindylou7 Apprentice

I just had my biopsy yesterday and I'm having quite the flare as well.

Sorry about that! It is aggravating, literally! Unfortunately, my result came back negative for DH but the biopsy was taken from a site on top of a recently active lesion. I hope your Doctor was knowledgable enough to take the biopsy from the right location.

I'm trying to decide if I want to continue to look for a positive diagnosis or just be happy with my self diagnosis. I know I feel better gluten-free so I will continue to follow the diet.

Good luck to you!

squirmingitch Veteran

Welcome to the forum TexasLady!

So sorry you're having to go through this flare. It sucks. Like Cindy says --- I hope your biopsy was done correctly. You were still eating gluten right?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,413
    • Most Online (within 30 mins)
      7,748

    duddridge
    Newest Member
    duddridge
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Studies have shown that individuals with canker sores tend to have lower levels of vitamin D in their blood compared to those without the condition. This suggests that vitamin D deficiency could be a risk factor for developing canker sores.  Vitamin D deficiency is very common in Celiac Disease.
    • Wheatwacked
      So Sunday night after writing that post about Losartan was causing weakness in my hips I decided to stop taking it, even if against medical advice.  When I was 12 years old I read a book called The First Hundred Years of Surgery.  It gave me insight to the politics, financials and egos of the world.  My take-away at the time was: one day I'm going to have to find my own cure. Sunday 6 am was 134/60 after Losartan dose Sat nignt. Monday 8 am BP was 118/56 no Losartan sunday night. Tuesday (today) 6 am BP was 126/64. Getting up from the floor is improved. Brain fog improved, vision less foggy, cold feet not as cold, and not feeling like I need to go back to sleep almost as soon as I wake up. Doctors are required to follow protocols, not listen to patients.  I say I hurt and they say "that's not common, the medicine protects you, is good for you, keep taking it"  Not unlike Celiac Disease.  You eat gluten, get sick and your blood and biopsy says you do not have Celiac Disease, you are not sick.  Keep eating wheat because it is good for you. Despite what the doctors say, it appears ACE inhibiters and ARB BP meds are NOT good for me.  One had me considering a walker would be good (it had me bent over).  Standing straight once I stopped.  One had me thinking a walker was in my future (lost quadracept stability in knees, Lisinoprol caused an inquinal hernia, something caused a blind spot in my right eye and cataracts in both.  Amlodipine dehydrated me so I could not wear contacts, Losartan I was thinking a walker or wheelchair is immenent, hips and lower back getter weaker.  My only vision issue at 70 was increasing nearsighted and farsighted; until we attempted to control my BP. I am not advocating ignoring medical advice, but sometimes I know what is better for me than what the protocols say.  After all, I live in this body.  Doctors only see me for 20 minutes every 3 months. My current list: Medications: Prednisolone 2.5 mg 6 am Clonidine 0.1 mg 6 am, 2pm, 10 pm Rosuvastatin 20 mg evening meal Glimiperide 2 mg morning meal, evening meal Nicotinic Acid (Niacin) 6 am, 2 pm, 10 pm Liquid Iodine 600 mcg once a day in a drink.   Vitamins:  Several times a week. B1 250 mg, B2 100 mg, B3 500 mg, B5 500 mg, B6 100 mg, B12 1 mg, DHEA 100 mg, vitamin D 250 mcg, vitamin C 500 mg, CoQ10 200 mg, Selenium 200 mcg Taurine 500 mg,
    • Stephanie Wakeman
      Wow, thank you for share Elisal!  We do need to stay focused on the fact we are so much healthier without wheat and gluten as hard as it is! I've learned to love rice and almond flour based sweets and enjoy the corn and plantain chips as my go to salty snacks! 
    • Pablohoyasaxa
      I feel your pain. Grain and gluten intolerant. Hang in there. This forum is very helpful
    • ElisaL
      IDK how common it is but it does happen. I'm celiac, allergic, and intolerant to the fiber in grains. (Fodmaps) So not only do I get sick from cross contamination, also gluten free wheat statch/fiber, and beauty products with wheat will get me. While I don't stop breathing the full body hives and short breath are not fun. Then once I make through that me and the bathroom become reacquaint. Sigh if I didn't feel so much better with the restrictions on my diet I'd feel sorry for myself. Least it makes for some good jokes about how the gremlin that lives in my gut really hates wheat. 
×
×
  • Create New...