Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tongue


bossley

Recommended Posts

bossley Contributor

Has anybody had a problem with your tongue feeling burnt? Just another little blessing that happens to me once in a while. It's not coated and it looks fine. I don't eat gluten,dairy,soy, I eat whole. I just started Bentaine HCL with Pepsin, and Mastic gum. Sometimes it feels sore.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kwylee Apprentice

OK, at the risk of sounding nuts, I'll share the following:

I've had that, and the burned tongue feeling eventually turned into a bout of CONSTANT dry mouth feeling that drove me crazy and lasted for months. Everyone kept just insisting it must be Sjogrens but tests were negative and I didn't have any other symptoms. It's under control now and only flares up occasionally but I've definitely seen the correlation between the mouth/tongue discomfort and my stomach, specifically low stomach acid. In fact, sometimes I wonder if that's what's behind the mysterious "syndrome" of Sjogrens, which my doctor says they call anything they just don't understand and therefore can't "cure". I searched for months, and in the end I tried a natural tonic I read about on the internet and within a day or so the symptoms were 95% gone and my "off" stomach issue was totally resolved. I still do it these days but just a few times a week. I'm like you, no gluten/dairy/soy and only whole foods. This tonic fills that bill:

2 TBSP Natural Apple Cider Vinegar (with the mother - like Braggs)

1/4 tsp Baking Soda

8 oz water

raw honey to taste (optional - the ACV/BS combo is actually a bit sweet on it's own - you don't need much honey, if any)

Back then, I would drink this just before eating breakfast, lunch and dinner. I think the tonic is more to help the body achieve a healthy pH. These days I've substituted seltzer for my water in the drink and it's like enjoying a softdrink (without all the known carcinogens of canned fizzy drinks). Worth a try!

shadowicewolf Proficient

Back when my GERD was out of control, oh yes. I just lived with it :/

bossley Contributor

OK, at the risk of sounding nuts, I'll share the following:

I've had that, and the burned tongue feeling eventually turned into a bout of CONSTANT dry mouth feeling that drove me crazy and lasted for months. Everyone kept just insisting it must be Sjogrens but tests were negative and I didn't have any other symptoms. It's under control now and only flares up occasionally but I've definitely seen the correlation between the mouth/tongue discomfort and my stomach, specifically low stomach acid. In fact, sometimes I wonder if that's what's behind the mysterious "syndrome" of Sjogrens, which my doctor says they call anything they just don't understand and therefore can't "cure". I searched for months, and in the end I tried a natural tonic I read about on the internet and within a day or so the symptoms were 95% gone and my "off" stomach issue was totally resolved. I still do it these days but just a few times a week. I'm like you, no gluten/dairy/soy and only whole foods. This tonic fills that bill:

2 TBSP Natural Apple Cider Vinegar (with the mother - like Braggs)

1/4 tsp Baking Soda

8 oz water

raw honey to taste (optional - the ACV/BS combo is actually a bit sweet on it's own - you don't need much honey, if any)

Back then, I would drink this just before eating breakfast, lunch and dinner. I think the tonic is more to help the body achieve a healthy pH. These days I've substituted seltzer for my water in the drink and it's like enjoying a softdrink (without all the known carcinogens of canned fizzy drinks). Worth a try!

I'll try anything once. Did you take the HCL also?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,862
    • Most Online (within 30 mins)
      7,748

    ZoesDad
    Newest Member
    ZoesDad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.