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Anorexia Nervosa Induced Gluten Intollerance.


Alie J

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Alie J Newbie

Hi all, hope you can help me with this.

I'm a 30 year old male and had suffered anorexia for a year. At the worst point of my illness my BMI was 16.5 and energy intake around 750kCals per day (estimated by a nutritionist) for a duration of around six weeks.

Fortunately, thanks to the support and love from my parents, I've been in recovery and being putting on at least couple of pounds as week. The trouble I now have is I can't eat much in one go and certain foods, especially wheat, cause horrible bloating and sickness which has nearly triggered a relapse.

I've never had any food intolerances before, could it be that lack of food has damaged the part of my stomach responsible for digesting wheat?

I know that my gut fauna could've been depleted so I've being eating blue cheese (will also give pro-biotic yoghurt a go) and my stomach mussels have wasted away so any foods hard to digest will cause problems.

Does any one know if this will get better as my body recovers?

I'm worried the nerves could've been damaged which could be permanent.

My current diet consists of five bowls of porridge a day with whole milk and fortified with minerals, vitamins and protein powder (1000Kcals a day), plus another at least another 2000KCals (I try not to count, this is estimated form my rate of weight gain) in snacks (mostly fruit nuts and sweets) with the odd small meal.


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GottaSki Mentor

Your body has been under stress for a long while. Stress can trigger Celiac Disease. It can't hurt to have doctors order a full celiac blood panel.

How horrible if you were to sabotage regaining your health by eating foods that are not right for your body.

It looks like you are eating a large amount of dairy - cheeses, milk, protein powder - perhaps you are intolerant of dairy?

Digestive enzymes taken before each meal may help with your taxed digestive system.

Can you make soups/pureed foods - carrot/ginger soup always feels good to me. Chicken broth with vegies is soothing as well.

I definitely think it would be good to look into food intolerance and rule out celiac sooner rather than harm your healing body any further.

Good Luck to you :)

kareng Grand Master

I'm agreeing with Ski Lisa. I also think that is not a very balanced diet. 5 bowls of porridge is a bit excessive. Change out 4 of them for real food. Does your ED doc know you are eating this way? It may be making you gain weight but it is still an unbalanced way to eat.

Alie J Newbie

I'm certain I have no problem with dairy because I don't get bloated at all until I eat wheat, although some fruit also causes problems if I eat too much of it: figs, seedy berries and apple in particular but even small amounts of wheat seem to cause problems. If I just eat my porridge, cheese, chicken, nuts, potatoes etc. all day I never seem to have any problems.

I completely agree with you, I don't have a very balanced diet at the moment but it's only temporary and the porridge is fortified with my RDA of all essential vitamins/minerals and contains 69g of protein, 55.8g of it being from milk which has a good biological availability.

Unfortunately I'm mostly doing this on my own - the NHS aren't any good these days. I do have at least one real meal a day but it can't be very big because my stomach can't stand it. Today I had a small amount of cottage pie for lunch and will have a sausage and jacket potato for dinner.

I'm contemplating seeing a nutritionist on a private basis. I want to quit the porridge (making it is a pain) but don't want to try to change my weird eating habits too quickly or without guidance from a professional, as it could trigger a relapse. So far it seems to be working, my health has improved a lot: I'm no longer anaemic, constipated or have bad joints and I have loads more energy.

I agree, a food intolerance test is a good idea and I'll go private if needs be.

Maybe I'm hoping for too much too soon - it's only 3 weeks into my recovery.

Alie J Newbie

Ah bugger, my mum made me some jam tarts with soy/cornflour pastry; I ate one for breakfast and became bloated.

I agree that pur

  • 2 weeks later...
JNBunnie1 Community Regular

Alie, what exactly is this porridge made of?

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
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      Thank you this really helped. 
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    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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