Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac With Additional Food Allergies


Iris court

Recommended Posts

Iris court Newbie

Diagionsed with celiac 7 months ago and just learned that I am also fructose, lactose intolerant. I was recently told I was also allergic to corn, soy, peanuts, shrimp and scallops with blood test results by a celiac GI doctor in NY.

Any advice on how to approach / manage these restrictions.

I am feeing better now that my diet is even more restricted.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Iris court Newbie

I've been looking for information on multiple food allergies but find it very difficult to locate. Also looking for a brand of multi vitamins that would be soy, corn, gluten, lactose and fructose free. My search today was unsuccessful at a local health food store Mrs.Greens.

rosetapper23 Explorer

The Paleo/Primal diet is naturally restrictive of all of those foods (except maybe shrimp and scallops), so you might scout around for a book on Paleo/Primal recipes. An excellent book about this diet is "Primal Body/Primal Mind" by Nora Gedgaudas; however, there is also a website that is quite helpful with regard to recipes: www.marksdailyapple.com You can download the recipes, as well as the actual recipe books, for free--if you want hard copies, you have to pay for them.

amahones Rookie

Diagionsed with celiac 7 months ago and just learned that I am also fructose, lactose intolerant. I was recently told I was also allergic to corn, soy, peanuts, shrimp and scallops with blood test results by a celiac GI doctor in NY.

Any advice on how to approach / manage these restrictions.

I am feeing better now that my diet is even more restricted.

I really sympathize with you. I also have multiple food allergies (but have had them almost my entire life): shellfish, peanuts, most tree nuts and sesame. If you have a true allergy to those foods, it's super important that you avoid them as each time you consume them, your allergic reaction could get progressively worse and could ultimately result in anaphylaxis.

I don't have a lot of advice as your allergies are more varied than mine but I hope you find some relief. Have you met with a dietitian or nutritionist to help come up with a plan of what to eat?

Iris court Newbie

Thank you for the boost of support, I thought gluten free was hard, corn on top of it is not for the faint at heart. I've eliminated as much as possible, carry around my list of ingredients to avoid and try to cook very simply. Yes, will see my nutritionist in the next week or so as we'll as an allergist.

Haven't spoken to very many other people that are dealing with food allergies like these. Reading entries on this site made me realize that I'm not suffering alone. That others have managed to bring themselves back from the edge of the cliff to not only survive but to thrive:D

GFinDC Veteran

Hi,

Vitamin Shoppe brand or Solgar vitamins may work for you. Not sure about the corn though so be sure to ask them. Allergies are caused by proteins, so starches may be ok. Many times vitamins are held together by starches and corn is often used.

Your allergies should be retested after 6 months or so of gluten-free eating. Sometimes people's allergic reactions taper off when they go gluten-free. I used to have pretty bad hayfever but it is gone now.

Iris court Newbie

My children ask if it will always be like this and I often reply that maybe the fructose and lactose intolerance will let up .

Searching everyday for Rx items without corn Mvits too but no luck yet, will keep trying:D

Lots of brands and info to sift through ...thanks for the note:)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi Iris,

There were some threads about bone broth soup a while back on the forum. It is supposed to be very good for minerals. Might be worth trying. Vitamins you can eat! Meats are a pretty good source of nutrition too.

It may take some time for your reactions to settle down. Mine tapered off slowly over a year or so. I used to buy anti-histamines once a week, but don't need them now. You can always tell the kids "it'll be over when it's over" in a low deep voice. That should satisfy them! :)

Iris court Newbie

Thank you.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,801
    • Most Online (within 30 mins)
      7,748

    johnyrad23
    Newest Member
    johnyrad23
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Izelle! Normally, the diagnosis of celiac disease involves two stages.  The first stage involves a simple blood test that looks for antibodies that are pretty specific to celiac disease. Celiac disease is an autoimmune disorder that attacks the lining of the small bowel which produces antibodies that can be detected in the blood with tests specifically designed for this purpose. There are a number of these tests that can be run. Some are more specific for celiac disease and thus more reliable than others. The two most common antibody tests ordered by physicians when diagnosing celiac disease are the "total IGA" and the "tTG-IGA" test. At least these two should always be ordered. Here is a an article outlining the subject matter of celiac antibody tests:  If the tTG-IGA levels are 10x normal then it is becoming common practice in some countries to grant a celiac diagnosis on the bloodwork alone. The second stage involves an endoscopy with biopsy of the small bowel lining to look for the damage to the small bowel lining typically caused by celiac disease's inflammatory process over time. This is usually done in response to one or more positives from the blood antibody testing and constitutes confirmation of the antibody testing to eliminate the possibility of false positives. 
    • Izelle
      Hi there, Please can you tell me exactly how this disease is diagnosed? I am also from South Africa Regards Izelle
    • Waterdance
      Thank you for saying that. That doctor diagnosed me with IBS with no follow-up so the relationship is already concluded. If I pursue diagnosis further I'll request someone else. 
    • Rejoicephd
      Hey everyone. Thanks again for your suggestions. I wanted to give an update and ask for some follow-up suggestions from you all.  So I did go through all of my food items and stopped eating things that were “gluten free” and switched over to the “certified gluten free” ones (the ones with the g symbol). I also stayed away from restaurants except once and there I ordered something raw vegan and gluten free hoping for the best. I also stayed away from oats and soy and dairy. I've also been increasing my vitamin B complex. I've been doing this for about 12 days and while I know that's not that long, I'm still getting sick. Sometimes having diarrhea. Sometimes getting headaches and having necklaces. Sometimes waking up feeling horrible brain fog. I did go to my GI doc and they did a blood test and found my TtG-IgA was in the negative range (and a lower number than I'd had before). I also had normal levels of CRP. My stool showed no elevation of calprotectin and no pathogens. My GI doc said the symptoms could be related to a gluten exposure or to IBS. I'm keeping a food diary to see if I can narrow down whats going on. I know I have good days and bad days and Im trying to isolate what makes a good day versus a bad day. Generally so far it looks like if it eat something super cautious like raw vegetables that I chopped myself into a salad and almonds, im fine but if I eat something more complex including, say, chicken and rice (even if packaged and certified gluten free or made by me with gluten free ingredients), it may not go so well. I may end up with either a headache, neck tension, brain fog, and/or diarrhea that day or the morning after. Any other thoughts or suggestions? I am planning to start tracking my foods again but I wanted to do it in more detail this time (maybe down to the ingredient level) so are there any common ingredients that celiacs have issues with that you all know of that I should track? I've got dairy, oats, soy, eggs, corn, peas, lentils on my “watch list”. Other things I should add? I'm hoping if I track for another two weeks I can maybe pin down some sensitivities. Appreciate the help and tips. Thank you so much!!
    • trents
      "My GI doctor ruled out gluten celiac entirely because I didn't have skin rash." Are you serious? The overwhelming majority of people with confirmed celiac disease do not have the rash. It's called dermatitis herpetiformis. It is found in only about 10-15% of those with celiac disease: https://www.celiac.ca/gluten-related-disorders/dermatitis-herpetiformis/ If your GI doc is operating on that piece of misinformation, I would start looking for a new GI doc because I wouldn't trust him/her in general. 
×
×
  • Create New...