Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This What Getting "glutened" Feels Like?


amahones

Recommended Posts

amahones Rookie

I have only stopped consuming gluten a little over a month ago. Is it too soon to tell when you've accidentally consumed gluten?

I have been very diligent about my own foods, medications, beauty products, etc.

I do eat generic rice chex - and I've read that some people have problems with Rice Chex in general. This weekend, I bought the real Rice Chex because it was on sale. Immediately after eating it, I was sick: cramping, stomach issues, but also I felt almost drugged, like I couldn't keep my eyes open. I also had a return of some symptoms that had improved: I had a restless sleep, I woke up itching off and on all night (eczema), I had vivid dreams... and when I woke up, I just felt very foggy.

I also had this experience after eating out. It was at Red Robin who told me they had a dedicated fryer for their french fries, and that burgers were prepared in a separate area than buns, etc. All I ate was a burger with pepper jack cheese, no bun ... and french fries. I barely made it home before I was sick (GI again), and had the same symptoms as mentioned before.

I've had other stomach-aches since going gluten-free, but nothing with all these other symptoms. Is there anything else that could cause those weird symptoms?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Generally speaking, you shouldn't eat processed foods for another few months if you have just started.

I, personally, would not eat genaric chex, as they are probably not made in a dedicated factory like Chex is (which could be the issue here, delayed reaction).

Seems to me either you are A. still getting gluten in somewhere (such as a CC'd toaster) or B. you have yet to fully heal.

amahones Rookie

Generally speaking, you shouldn't eat processed foods for another few months if you have just started.

I, personally, would not eat genaric chex, as they are probably not made in a dedicated factory like Chex is (which could be the issue here, delayed reaction).

Seems to me either you are A. still getting gluten in somewhere (such as a CC'd toaster) or B. you have yet to fully heal.

I do tend to avoid processed foods in general, even before going gluten free.. Rice chex (generic or brand) have been the one exception. I'll cut them out for now, and I'm going to avoid restaurants completely for a while. I don't even use a toaster! (But I do use the same pots that regular pasta has been boiled in. I'm not sure if that could be an issue if the pots go in the dishwasher first?)

shadowicewolf Proficient

What about the strainer? Did you get a new one? GLuten likes to hide in them whether or not its been cleaned.

amahones Rookie

What about the strainer? Did you get a new one? GLuten likes to hide in them whether or not its been cleaned.

I don't actually use the strainer either. For example - my boyfriend will cook pasta in a pot. It will then go into a dishwasher and then I'll use it to make my own chili or something. It's not one of those non-stick pots either, that gets scratched easily. It's stainless steel. I haven't been using any of the ones that scratch because I'm nervous about CC.

shadowicewolf Proficient

I don't actually use the strainer either. For example - my boyfriend will cook pasta in a pot. It will then go into a dishwasher and then I'll use it to make my own chili or something. It's not one of those non-stick pots either, that gets scratched easily. It's stainless steel. I haven't been using any of the ones that scratch because I'm nervous about CC.

what about utincles? Are they wooden, stainless steel, plastic, etc?

amahones Rookie

what about utincles? Are they wooden, stainless steel, plastic, etc?

Hmm...mostly plastic, except for silverware.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

I wouldn't use a pot, or anything that had cooked gluten, without first scouring it with SoftScrub or baking soda. Plates and stuff are probably fine, but cooked on gluten...not so much.

Also, when was the last time the dishwasher was cleaned? There could be all kinds of nasties in the filter.

Plastic is easily scratched - I'd avoid it.

Cutting board?

amahones Rookie

I wouldn't use a pot, or anything that had cooked gluten, without first scouring it with SoftScrub or baking soda. Plates and stuff are probably fine, but cooked on gluten...not so much.

Also, when was the last time the dishwasher was cleaned? There could be all kinds of nasties in the filter.

Plastic is easily scratched - I'd avoid it.

Cutting board?

I'll avoid plastic from now on. We do have a cutting board but I don't use it anymore (and to be honest, I don't think anything except vegetables were ever cut on there). I doubt the dishwasher has ever been cleaned :(

Jestgar Rising Star

I doubt the dishwasher has ever been cleaned :(

Awesome! A fun weekend project for the two of you! :P:D

shadowicewolf Proficient

You guys are scaring me rofl. I'm currently in one of my university's apartments, so do i have to clean the dishwasher too?

I never did with the one in my gluten filled home, but i think the bleach we used to put in it killed it maybe. I didn't get sick with it either O.O

Adalaide Mentor

I haven't used the dishwasher in quite some time. I noticed that my CC pretty much stopped at the same time I stopped using the dishwasher and started also using entirely my own dishes. I can't say for sure which the issue was. Recently the dishwasher broke and my MIL asked if I'd use it if she bought a new one. She pretty much was at the point of begging and pleading with me to use it. (She rather thinks of herself as little miss Martha Stewart and at the time I was sick as a dog and hadn't touched my dishes in like 4 days.) Finally I had to say in no uncertain terms that until I am in my own house and have a dishwasher that I can be in charge of on my own to keep gluten free I won't go near one. I don't trust the things. All those rubber gaskets and such. And have you ever looked in the bottom of one? It's nasty. Nope, won't go near them.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.