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Are These Active Lesions?

Cmlgl

By Cmlgl
in Dermatitis Herpetiformis

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Cmlgl Rookie
Cmlgl
Posted

So I am still trying to understand my skin before I go to the derm on the 16th. As I walk around itching I decide to actually look at what scratching. Are these considered active lesions? Also can a derm order a celiac blood panel?

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itchy Rookie
itchy
Posted

Yes, I would call them 'active' lesions. They are certainly 'active' as evidenced by the red inflammation. And lesion is a word with a broad definition that basically means diseased area or injury.

To me your lesions look like DH, and I would expect if they get worse or you scratch harder they will become 'excorciated' and become bleeding sores. In mine they 'stung' and hurt, rather than itched, although the distinction may be a fine one. I associate itching with the healing period in the process, stinging with getting worse.

I can't offer an opinion about the blood panel. None of the medical testing I had ever identified DH or coeliac disease and I am self diagnosed largely as a result of comparison photos, associated gastrointestinal symptoms, and the fact that strictly avoiding gluten 'cured' both aspects of the disease. Albeit slowly in the case of skin symptoms.

squirmingitch Veteran
squirmingitch
Posted

Yes, I too, would say those are active lesions. I think it depends on the individual derm as to whether they will order the blood panel or not. Any doctor with a medical degree can order the tests; the question is will the derm. May guess is the derm will say to go to your GP & ask the GP to order the tests. If the derm orders them then the results will be sent to the derm & the derm may not feel comfortable interpreting them. You could counter by saying you will take the results to your GP for interpretation. (Also post them here along with the reference ranges -- we have members who are very versed in interpreting them). Bottom line ---- it never hurts to ask --- all the derm can do is say no. But do you realize that those of us with dh test neg. on the blood panel more often than regular celiacs do? That's b/c it's in our more in our skin. This info. is in the "Interesting Reading on DH" thread.

BUT --- here is the current FULL blood panel for celiac. You can print it out & take it with you:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

The DGP test was added recently to the full panel.

Also can be termed this way:

Endomysial Antibody IgA

Tissue Transglutaminase IgA

GLIADIN IgG

GLIADIN IgA

Total Serum IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

If they order less than these tests then they have not done the full panel.

And I will remind you that a dx of dh IS a dx of celiac.

Cmlgl Rookie
Cmlgl
Posted
  • Author

Well I went ahead and made an apt for my GP. I'm gonna get the celiac panel, 100 food allergy panel, environmental allergy panel( which I know I have but I want to see my numbers)

Anything else I can request

cindylou7 Apprentice
cindylou7
Posted

They look like mine. I'm not a doctor and I haven't tested positive yet. But the blister in the top picture looks exactly like mine do. And if you're like me they crater after the blister pops and look like something on the surface of the moon. Good luck with the doctors!

squirmingitch Veteran
squirmingitch
Posted

Well I went ahead and made an apt for my GP. I'm gonna get the celiac panel, 100 food allergy panel, environmental allergy panel( which I know I have but I want to see my numbers)

Anything else I can request

Thyroid panel --- not just TSH, but free T3, free T4 --- the whole shebang. Vitamins & minerals. Especially B's, B-12, D & iron.

Jackson Newbie
Jackson
Posted

Also, on the thyroid, get a t3 re-uptake.

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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
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      Anti-endomysial Antibody (EMA) Testing

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