Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Under The Age Of 25?


inducedjoy

Recommended Posts

inducedjoy Newbie

Hi all!

I've noticed that most people on this forum are well over the 25 age mark, but I'm curious to see if there are any younger people on the forum. I'm only 19, and although I find the advice and friendliness of all users to be extremely helpful and welcoming, I would like to talk to someone my own age who is going through this. Someone who knows what it's like to miss school because of celiac issues, or who understand how hard it is to explain your special diet to a potential boyfriend or new friends who weren't there during your diagnosis. Perhaps someone who hasn't dealt with being gluten free for 20+ years or who doesn't have a houseful of kids to feed, because I just can't relate to scenarios like that.

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



luvrdeo Apprentice

I'm a few years past 25 (not quite 30 lol), but can 100% relate to what you're going through! I've gone mis-diagnosed since high school, where I repeatedly got sent home for "anxiety attacks" which I now suspect were the beginning stages of celiac. I just got diagnosed 2 months ago, and on Monday got dairy, grains, and corn taken away on top of the gluten. There is nothing easy about this! Luckily for me, one of my best friends is also celiac, so I've had someone who's brain I could pick. The rest of the time, I try to relate on here...and like you, sometimes certain scenarios just don't fit my life at all!

shadowicewolf Proficient

I'm 22 if that helps any.

But, yep, it stinks when doctors and who have you don't listen to ya.

lisasanner22 Newbie

Age 17. ive been gluten-free for 5 years and i know what you mean by missing school and trying to tell your boyfriend or anyone for that matter that you cant eat this or that.. it really gets annoying after a while. you want people to understand but they dont.. i figured the best thing is to explain it like an allergy. and to be honest i told my boyfriend before i even started to date him that i was gluten free and he asked about it and it was hard to explain it to him because its like how do you explain so much to them in so little time. like to start with and that was hard, but i was glad i told him first that way i new later on that hes not leaving me for someone else because of celiac. and with missing school it happens at first and there is nothing you can do because you feel like crap or your throughing up or something. but the longer your on the gluten-free diet you realize that you dont really get sick anymore. in the past 3 and 1/2 to 4 years i havnt missed a day of school and thats because i totally live a gluten free diet and once my body got adjusted and is getting the nutrients now. my body is "back to normal" yes there will be changes but its life. and i hope this helped. but going to pray the best for you, if thats okay. i know that has helped me with so much!! Lisa <3

Hi all!

I've noticed that most people on this forum are well over the 25 age mark, but I'm curious to see if there are any younger people on the forum. I'm only 19, and although I find the advice and friendliness of all users to be extremely helpful and welcoming, I would like to talk to someone my own age who is going through this. Someone who knows what it's like to miss school because of celiac issues, or who understand how hard it is to explain your special diet to a potential boyfriend or new friends who weren't there during your diagnosis. Perhaps someone who hasn't dealt with being gluten free for 20+ years or who doesn't have a houseful of kids to feed, because I just can't relate to scenarios like that.

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

hottati Newbie

Hey!

I am also 19 and have never met anyone else with Celiac. I have only been diagnosed for about a year and a half now and it is definitely a challenge when trying to go out to eat with friends (or like you said explaining to potential boyfriends). It would definitely be nice to have someone who understands to talk to.

inducedjoy Newbie

If anyone wants to talk, my email is aviola93@gmail.com. Shoot me a message and maybe we can chat on fb!

  • 2 weeks later...
hagermeister11 Newbie

Newly diagnosed here. 21 years old. After years of all kinds of issues, I finally went in for testing last week. I really didn't know what I would be getting myself into with changing my diet so drastically, but honestly, it isn't as bad as I figured it would be. I understand I'm still rather fresh on the change, but I do feel a bit better already. I'm sleeping better, I have more energy, no more headaches, and my outlook on life is back to where it used to be. I'm excited to keep up the changes and see how much better I feel after a few months.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AshBil Rookie

Hey there! I'm 20 and was just diagnosed two weeks ago exactly. It only took over 3 months for them to figure out why I was constantly nauseous and bloated. That nausea will be the death of me. It still likes to pop up on me and destroy my whole night even when I'm eating something I know is positively gluten free. But, I've only been gluten free for two weeks so I gotta give it some time. I was lucky enough to already be with my boyfriend for four months when this all started. He went with me to every appointment and every trip to the ER thinking I had appendicits or a heart attack (started having terrible chest pains with a racing heart, tingling and numbness in my right hand and foot and vomiting). So I didn't have to explain much to him since he was always there. And now we're at 8 months together and he helps me look at labels and do research. He's the greatest. I had an edoscopy and blood tests done all in September. Blood tests were actully normal except for one that he said wasn't always accurate but the biopsy from the endoscopy showed signs of it plus I have the gene for it too. So I'm still in my beginning stages here but I'm hopeful that I'll feel better soon because I'm not feeling much different with the constant nausea. It's be great to talk to someone my age with this considering the only person I know who does have it is my mom's best friend since elementary school!

  • 1 year later...
Hobbes Rookie

Hi all!

I've noticed that most people on this forum are well over the 25 age mark, but I'm curious to see if there are any younger people on the forum. I'm only 19, and although I find the advice and friendliness of all users to be extremely helpful and welcoming, I would like to talk to someone my own age who is going through this. Someone who knows what it's like to miss school because of celiac issues, or who understand how hard it is to explain your special diet to a potential boyfriend or new friends who weren't there during your diagnosis. Perhaps someone who hasn't dealt with being gluten free for 20+ years or who doesn't have a houseful of kids to feed, because I just can't relate to scenarios like that.

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

 

I can definitely relate to how you feel. I've never met anyone my own age (or any age!) who has celiac. I'm pretty fortunate though because my girlfriend is very understanding, and won't even touch anything with gluten. I'm 20 btw, working as an intern at 2 different places this summer and it's been quite the challenge so far.  

  • 11 months later...
pghkid33 Rookie

Hi all!

I've noticed that most people on this forum are well over the 25 age mark, but I'm curious to see if there are any younger people on the forum. I'm only 19, and although I find the advice and friendliness of all users to be extremely helpful and welcoming, I would like to talk to someone my own age who is going through this. Someone who knows what it's like to miss school because of celiac issues, or who understand how hard it is to explain your special diet to a potential boyfriend or new friends who weren't there during your diagnosis. Perhaps someone who hasn't dealt with being gluten free for 20+ years or who doesn't have a houseful of kids to feed, because I just can't relate to scenarios like that.

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

Not sure if you'll read this, but I'm 23 and I'm kind of in the same boat. I have a few friends that have Celiac, but they're not super close to me (both in terms of friendship and proximity) so we don't really talk to much. I'd love to have someone else to talk to, other than damn doctors or nutritionists haha. I know what it's like to miss school, or work, or social gatherings (it sucks). I'm on here a good bit, feel free to shoot me a msg

  • 3 weeks later...
MissMusician Newbie

Hey InducedJoy!

I completely understand what you're going through. 20yo F and my two celiac family members are the only celiacs I know in real life (but one family member lives an hour away and the other doesn't get symptoms so she doesn't take it seriously, while I am super sensitive). It's been almost a year since my celiac diagnosis and I've been gluten free/dairy free ever since, but still getting sick. Missing class because of symptoms is such a pain, not to mention having to miss social events too. Don't even get me started on dating! If you need someone to talk to, feel free to message me! Good luck with everything!  :)

  • 5 months later...
MissL101 Newbie

Hey! I'm Lisa Marie and I'm about to turn 22.

I'm still in the pre-stages of being actually diagnosed but since I went gluten free I'm feeling better. This stinks since now I have to be conscious about the places my friends want to go. Plus side: Gluten free cookies from publix = the bomb.com

  • 10 months later...
katesyl Apprentice
On October 10, 2012 at 11:14 AM, inducedjoy said:

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

I am twenty-five now. I was diagnosed at age twenty-two. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,553
    • Most Online (within 30 mins)
      7,748

    Jennifer CCC
    Newest Member
    Jennifer CCC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.