Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed 14 Year Old

momofbll

Recommended Posts

momofbll Newbie
momofbll
Posted

My 14 year old daughter was diagnosed three weeks ago. I am so overwhelmed. I am having a difficult time just knowing where to start. any and all advice is welcome, from cooking, to shopping, to making relatives understand. My daughter is pretty receptive to the changing diet, but people make me feel like I should have all the information right now. :( Please help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Just learn as you go. That's the only way to do it. It is good to make sure your daughter is learning with you. I was on my own with figuring it all out at 17 and then my Mother and Brother were diagnosed. He is a little bit younger than me and takes no part in learning what he can and can't have. If it doesn't say gluten he will eat it and he usually doens't care if he gets sick. Go to your local health food store and look around. Ask the people who work there where their gluten-free products are what they know about them. I did well sticking with a basic diet- fruit, vegetables, and meat (which I don't eat anymore) until I got the hang of everything else. This is a new life for her and the diet is meant to be forever. She and you will make mistakes and it is okay. Just take it all one meal at a time.

Jnkmnky Collaborator
Jnkmnky
Posted

Open Original Shared Link

Here's a link to lots of ideas

Kingschild Newbie
Kingschild
Posted

Girl, I am right there with you. My 11 year old daughter just started her gluten-free lifestyle after her positive biopsy last week.

She does well at home but has eaten stuff with gluten the past 2 days at school. *sigh*

At home, I cleaned out a cabinet and drawer for her. Then I went to several stores and bought about $200.00 worth of safe food.

I talked to the school nurse and Christian's teacher about Celic. And the school nurse said that I could put frozen dessert type food in the school's freezer for when there's a birthday party or whatever. I'm putting Snickers Ice Cream bars - which I still can't believe are gluten-free. :)

Christian also has permission to go straight to the bathroom if she starts having diarrhea cramps. She doesn't even have to ask permission.

I've talked to everyone in the house about bread crumbs. Even after someone makes a sandwich and cleans it up I still go behind them and make sure it's all gone.

I also talked to the familly about the jelly. No more double dipping with the spoon or knife after it's touched the bread. I have a seperate peanut butter for Christian, and will get get her her own margarine, jelly and other foods that could be cross contaminated.

I bought the different flours so I can start trying out recipes. And I bought 3 cookbooks and 2 books on Celiac. I want to learn as much as possible like you. But, finding the time to read is very challenging for me. *rolleyes*

I live across the street from our school so I told Christian to call me if she's wanting ot eat something unsafe or if she's mad that she can't pizza or whatever. Then I said I'll talk to her and bring her something safe if she needs me to. You may live to far away to do that. I'm also a stay at home Mom, so it makes it easier.

Oh, I have seperate cheeseballs for her too. I didn't want her digging in the same bag as her brothers.

I have a gumball machine at my house and I filled it up with Skittles the other day. I also bought her some Tootsie Rolls from Sam's Club - the big ones. Now I just have to find some safe candy corn. LOL Buying her some "junk" food seemed to really help her attitude.

I'll see if I can remember anything else and post later today.

Hang in there...we'll get the hang of this eventually.

(((hugs)))

Mysti

Jnkmnky Collaborator
Jnkmnky
Posted

Open Original Shared Link

Open Original Shared Link

Kinnikinnick breads, bagels, donuts, pizza crusts are great. Worth buying. Shipping is a mere $10 on orders up to $200. I buy $200 worth of food and store stuff in a freezer in my garage. It's worth it and I'm a frugal person so I'd tell you if it wasn't worth it.

Chebe is pricey as far as shipping is concerned. Kinda turns my stomach to hit the order button. But it's worth it due to the versatility Chebe offers. You can roll chebe around a hot dog and make corn dogs, you can roll Chebe flat and fill with any number of diced foods for "Hot Pockets" just like you'd find in the store. You can toss pepperoni, chicken, ham, cheese, pesto, garlic salt, olive oil, mozzerella, Taco sauce, colby jack cheese, green peppers, onions, ANYTHING into Chebe, roll it into sticks, bake, serve with a side of spaghetti sauce, bbq sauce, sour cream, ANYTHING and have a fun meal. Also makes great buttered buns for stews and soups.

We prefer the garlic onion chebe to the red origional bag. I always add extra garlic salt and oil.

Merika Contributor
Merika
Posted

There is a book you can get from amazon, and maybe even this website, called Personal Stories on....Celiac. It 's short (3-5 page) stories from different folks on their experience being diagnosed. There is a whole chapter from teenagers in it. You will find it an interesting read yourself, I'd bet - my dh said it was very helpful in giving him a clear picture of the health and psyche's of folks diagnosed celiac.

It also may help you as the mom to read the chapter on teenagers, as they seemed to have the hardest time adapting to the diet.

Best wishes,

Merika

mom of a celiac Newbie
mom of a celiac
Posted
There is a book you can get from amazon, and maybe even this website, called Personal Stories on....Celiac. It 's short (3-5 page) stories from different folks on their experience being diagnosed. There is a whole chapter from teenagers in it. You will find it an interesting read yourself, I'd bet - my dh said it was very helpful in giving him a clear picture of the health and psyche's of folks diagnosed celiac.

It also may help you as the mom to read the chapter on teenagers, as they seemed to have the hardest time adapting to the diet.

Best wishes,

Merika

<{POST_SNAPBACK}>

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ryebaby0 Enthusiast
ryebaby0
Posted

It's really hard to get the hang of this at first! Hang in there! You might want to limit the amount of information you try to read at first -- there's just sooo much. Try reading some of the "what do you eat for lunch" threads to get some good ideas, but don't over read!

Make up two or three "menus" i.e. meals that are gluten-free. It will give you something to rely on while you learn. Remember that simple is best -- chicken, veggies and Ore Ida plain crinkle fries makes a great supper. Baked potatos for lunch, Oscar Meyer hot dogs, fruit, Yoplait yogurt..... RealFoods corn thins (we get ours at a health food store) are kinda like really thin popcorn cakes, and we use those as "bread" for pb/j to take to school.

At first, I would not buy more than 1 of any one kind of gluten-free food. It's kind of expensive, and your daughter is going to develop a taste for certain things, especially breads. We eat EnerG Tapioca bread, which many celiacs don't like but hey -- we do! My point being that you have to allow a lot of experimentation and waste before things settle. It can be fun if you treat it like an adventure. Check out www.missrobens.com for gluten-free foods.

My son made a list of all his favorite foods, and one by one we found a gluten-free version, a substitute, or a mainstream "safe" product.

I would recommend Roben Ryberg's Gluten Free Kitchen cookbook, or the Incredible Edible Gluten Free Kids cookbooks. The Gluten Free Gourmet books by Bette Hagman are always mentioned but I find they are full of weird ingredients or difficult directions. I just want to make lunch! :)

We have a three-ring binder with printouts of the major gluten-free food lists, med lists, and other products in the kitchen. I don't try to remember on my own. The Gluten Intolerance Group (GIG-- search for them on the web) makes a little plastic card (sized like a VISA) with the common good/bad ingredients. I bought several, use them when I'm shopping. If I'm not sure about a product, I bring it home and put it on the "not sure" shelf until we have time to check it out.

Welcome to better health, and a brighter future. Don't be surprised, though, if you and your daughter spend some time grieving for the "good ol' days" of delivered pizza and unkempt kitchens :) That's normal too. Let us know how it's going.....

Joanna

nelsonmyers Newbie
nelsonmyers
Posted
My 14 year old daughter was diagnosed three weeks ago. I am so overwhelmed. I am having a difficult time just knowing where to start. any and all advice is welcome, from cooking, to shopping, to making relatives understand. My daughter is pretty receptive to the changing diet, but people make me feel like I should have all the information right now. :(  Please help.

<{POST_SNAPBACK}>

Hi

We are new to this whole diet too, as our daughter who is 4 is now on a glutten free diet. Trader Joes - a health food store is wonderful with sooo many glutten free products and lists of what is acceptable. I don't know if there is one in your area, but they are wonderful.

Erica

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.