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Looking For Doctor In The South Bend, In Area


NonniJoJo

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NonniJoJo Newbie

Hi am new to this forum although I have been on the site for a couple of years.

I have had celiac disease for 2 and a half years. My PCP doesn't know much about this in fact if it was up to her I probably still wouldn't know. She just hasn't had the training. She is great with the regular stuff. I took my grandson to his doctor for my daughter who was teaching school. When I got there the doctor, Dr. Heckman-Davis from Lakeville, IN greeted me. I use to doctor with her before my insurance changed. Anyway she asked me how I was and I answered not so good. I told her what symptoms I was experiencing and she said it sounded like maybe a wheat allergy. Out of her head she gave me a test to give to my doctors.

But even her knowledge is limited on the subject. I would love to find a great doctor who knows a lot about celiac disease.

Thanks everyone.


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    • trents
      @N00dnutt, been there, done that! Cheers!
    • N00dnutt
      @trents You're right, thanks for pointing that out. On @somethinglikeolivia comment regarding potential ingesting or cross contamination; there is a product marketed in Australia as "GluteGuard" which is designed for just this scenario. It is not a defence for and is not recommended for use by full-blown celiac disease but, it helps those with GI. I'll be reading slower in future so I don't skim over the subject matter. Cheers.
    • N00dnutt
      @Knitty_Kitty Noted with appreciation.
    • trents
      @N00dnutt, as OP explained earlier, she had a gastroscopy done earlier while she had been eating plenty of gluten for months. It was negative despite strong positive antibody scores.
    • N00dnutt
      The best way to determine positively is to undergo a Gastroscope. Your Endocrinologist will assess the condition of your "Villi". These tenticles are what extract the nutrient from what we ingest. The Protein in Gluten is like acid to these tenticles.
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