Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Waking Up With Dry, Sticky Lips


adambryant

Recommended Posts

adambryant Explorer

Again another post I just want to be clear on, I keep posting but just want confirmation!

Can waking up in the morning with like, sticky, chapped lips with a white coating be a symptom of celiac disease? Cheers


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



adambryant Explorer

Also can frequent urination and dehydration be symptoms?

shadowicewolf Proficient

Eh no, on the first i don't think so.

THe second sounds like a diabities symptom

adambryant Explorer

I've read that the problem with the lips could be due to nutrients deficiency? (Celiac as nutrients aren't being absorbed) and yeah thought it was, I think that they was just in my head when I thought it.

SMDBill Apprentice

Dehydration and frequent urination sounds like a caffeine issue if it's not something more serious. Before I gave up coffee and tea (that was all I drank daily for most of my life) I had both of those issues. I now drink one cup of coffee each morning and water, milk or OJ (mostly water) otherwise. I no longer urinate as often (probably about 3x longer between visits now) and I'm also not nearly as thirsty. Since caffeine dehydrates, it was obvious I was in a vicious circle of thirst/urination. It also kept me borderline dehydrated constantly and I had headaches every day. I no longer have those either :) Not sure if gluten-free or removing caffeine was the fix, but I'm thinking the caffeine was probably the biggest contributor since every drink I had all day was caffeinated.

If it's not caffeine I'd consider asking the GP. Some drinks can cause more frequent urges to urinate but if water is doing it, something may be amiss that needs medical attention.

adambryant Explorer

Thanks:) and they've died down a bit now, as I don't much caffinated drinks now, probably was the cause!

guest134 Apprentice

Get a humidifier in your room, winter nights leave me waking up with dry lips, lots of mucus to clear and some dry hands. None of those have to do with celiac (well the dry hands could be but not in my case).

As for the frequent urination I would be willing to bet anxiety is your trigger. You seem to be going through some issues lately and are anxious to get a diagnosis, perhaps that is causing your trips to the bathroom? When I am anxious I go to the washroom at least twice as much as I normally do.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



adambryant Explorer

Thanks for the feedback ill look into a humidifier!:) and yeah that could be the reason the anxiety, because my symptoms have decreased a little since a week gluten-free. I have had A LOT BETTER bowel movements now, regular.

guest134 Apprentice

Thanks for the feedback ill look into a humidifier! :) and yeah that could be the reason the anxiety, because my symptoms have decreased a little since a week gluten-free. I have had A LOT BETTER bowel movements now, regular.

What is your situation right now? Have you received a diagnosis or just trying it yourself? What are your symptoms?

adambryant Explorer

Trying it myself as my mum has it as of 9 years. My symptoms have been for about 9 months but seem to be improving. Constipation, lack of appetite, bloating after eating, rumbly tummy, bad flatuence.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,901
    • Most Online (within 30 mins)
      7,748

    tessycork47
    Newest Member
    tessycork47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.