Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3 Year Old Boy With Severe Constipation - Should He Be Back On Diet?


qldmom

Recommended Posts

qldmom Newbie

I have had my 3 (almost 4) year old son on a gluten free diet since he was 2 1/2 because of some behavioural issues that seemed to occur when he was on gluten. I am celiac and have quite a family history of it. However, because he's getting closer to school age I decided to have his blood work done to see if the diet is actually a necessity. I took him off of the diet for just short of a month before having the tests done. The results came back negative (IgA <5 U/ml; IgG <5 U/ml; IgA <4 U/ml) and the genetic testing came back with mixed results. The strange part is that since being back on gluten he has been extremely constipated. I had to give him medication all last week for the constipation and it has been causing him a great deal of pain, especially recently.

My question: is it more likely that the constipation is just from having something new introduced to his diet and his body is getting adjusted or is it an actual sensitivity to the gluten? At this point he has been back on gluten for 2 months and the constipation (although the worst now) started about a week after going back on everything. His behaviour hasn't changed a great deal, but in the past year he has been exhibiting some signs of ADHD or possibly ASD. I am going to have his iron levels (Iron 16 umol/L ; Ferritin 16 ug/L) looked at more closely as well as that was part of my diagnosis (iron deficiency anemia). I'm just trying to piece everything together and get a sense that diet is affecting him, but I don't want to unnecessarily put him on it if his results are showing negative.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

Many young children with celiac appear to have a problem with constipation. My nephew, who my mother and I (both celiacs) believe has celiac, complains of constipation and tummy aches constantly. His parents don't want to bother having him tested because they like the lifestyle they have, and they know firsthand how difficult it can be to keep a child on a gluten-free diet, especially since he has a younger sister. In your case, II would definitely monitor this situation and perhaps conclude after a while that gluten does not agree with him.

tarnalberry Community Regular

Did you also take him off and then reintroduce dairy? Because dairy is a common cause of constipation.

qldmom Newbie

Did you also take him off and then reintroduce dairy? Because dairy is a common cause of constipation.

Thank you for your response! I have never taken him off of dairy, but have just been doing more research that made me wonder whether that is something to try as well.

I guess the main impetus behind everything for my husband and I (aside from the new constipation problems) is his behaviour. He was in preschool/daycare for a brief period of time before I pulled him out because his teachers were concerned about his behaviour, noting what they believed to be prominent signs of autism. It actually came as a shock to us because he's always been a very bright boy, but social as well (in daycare he was completely withdrawn). We have since had him seen by different specialists and everyone has a different theory about what is driving his behaviour (adhd, asd, sensory motor issues). The problem is that it has always felt like everyone is giving a piece of the picture but he doesn't fit completely into any of the categories (as of yet - he's only 3). In addition, his behaviour fluctuates. He used to be a very focused little boy who picked up and learned things at a really rapid pace, and while he still picks up information quickly, that focus is rarely there anymore. He'll go through periods of difficult sleep (moves around a lot, wakes up a lot) which then makes him really restless and overtired during the day (he never allows himself to nap). I just find it weird that his behaviour is not consistent which is making me question diet so much. Along with the constipation at the moment he has also started sucking his hand and sometimes his shirt collar. There are just so many strange things going on...

I'm also curious about whether iron would help as he is very pale and can be so unfocused. I was anaemic for many years and never realised until I was an adult and my behaviour wasn't too dissimilar to his when I was young.

Sorry for going on about it...I'm just finding it all so puzzling at the moment (or maybe it is just the age?).

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748

    Estee
    Newest Member
    Estee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...