Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Atypical Symptoms (?), 1 Monthly Attack


pylorus

Recommended Posts

pylorus Newbie

I was Dxed with hypothyroidism in 2008 and lost my once fabulous memory as of late '07 (26 at the time). Since then, I'd always assumed my memory was related to my thyroid, questioned doctors about supplemental T3, had neuropsych testing only this past spring which I'm pretty sure confirmed that I had definite short term memory losses (it was certainly obvious to me), and a clean MRI. Hashimotos encephalopthy was being considered, but never pursued (no other neuro symptoms).

I've had a good gut all my life.

I had a severe gut pain attack in October 2011 that I chalked up to food poisoning. Throwing up, diarrhea.

I had another attack January 2012, another in March, May, June, July (the latter two were a month and a day apart). In June, I had gone to another endocrinologist for a second opinion about the memory thing - He recommended being tested for CELIAC'S, sleep apnea, B12 (its always been fine), maybe some other basics. He suggested celiacs without even hearing about my gut.

I also had a terrible rash on my foot which no salve could cure.

After the July attack, I knew it couldnt possibly be constant food poisoning and went to my GP who suggested trying the gluten-free diet. My antibody tests and others were negative including abdominal ultrasound.

I did the diet July 19-Aug 10 and avoided my august attack. My foot rash pretty much disappeared, so I had to cancel my august dermatology appt.

Started back on gluten. Got the attack again mid-september (1 month and a week after re-starting gluten). The pain was so bad, I called the gastro doctor's office in tears, begging for an earlier appointment. The pain is so nauseating I'll make myself throw up because the constriction offers some relief. I'm on the toilet every 10-15 minutes. Episodes usually last a whole day 7am-5pm, but I have had some shorter.. 7am-2pm. I re-started gluten-free after september. Early october, I had a club sandwich and had a much more minor attack on Oct 16th - which I truly wanted to believe was food poisoning because I had eaten 1.5 week old cheesecake (gluten-free, no less - ha!) - the pain was "different", I was able to sit comfortably for a few minutes, I also didnt have the mental and systemic fatigue that I usually do, and it lasted only a few hours.

My theory is that possibly I have the ill-understood "gluten intolerance", where it builds up to unacceptable levels throughout the month until it reaches threshold and explodes.

IS THIS PLAUSIBLE? ANY OTHER THEORIES?

I see the gastro on Dec 10 and have been gobbling gluten since end of November in preparation.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,532
    • Most Online (within 30 mins)
      7,748

    jimploszay
    Newest Member
    jimploszay
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
    • Jmartes71
      Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing 
    • cristiana
      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.