Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am New To Pancratic Enzymes And Recently Started Rotational Diet?


1desperateladysaved

Recommended Posts

1desperateladysaved Proficient

I recently started rotational diet, pancreatic enzymes, and vitamin B 12. Sorry all of you scientific people to start 3 things at once, but that is where I am at.

1 My tummy is noisy, noisy, noisy.

2 I am experiencing some pain in the lower abdomen.

3 My pants are getting too short. Okay, what I think I mean is that I am losing tummy and must pull the pants farther up to compensate for it. I don't think I have lost weight. The inches are only down to my lowest normal level.

4. . I had been tending toward diarreah since going gluten free. I was really constipated a couple of days.

5. My head seems clear day after day, except when I had a very constipated day once. Then after I got cleaned out, I feel really good for a while.

6. Sometimes, I feel very unusally well, extremely well, is more like it. Don't get me giddy!

7. Sometimes I think I am surely dying.

8. I felt ticklish for the first time in years.

I have double checked all of the new supplements for gluten and they all check out. I am wondering if I am now feeling pain, because I am not so numb as I was. I have been surprized on the forum when people talked about a painful expereience. I bloated 9 inches overnight once, but felt no pain whatsoever. That is one of the reasons that I went 30 years undiagnosed. I couldn't feel what was happening to me.

Diana


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Various stages of inflammation can cause all of this.

The only thing I can suggest is don't change too much too quickly or you will never know which change is helping or conversely -- hurting.

Juliebove Rising Star

I don't know what pancreas thing you are on. I tried one called Pancreatin. Someone told me they thought I should try it and stupidly I did, even though I didn't think that I had pancreas symptoms. That stuff made me sooo sick to my stomach! After taking it for a week, I had to stop. Then my stomach got a lot better.

1desperateladysaved Proficient

I had a nutrient blood test and was found short of pancreatic enzymes, so that is why I decided to take them. I am almost certainly swollen, but have been arguing with my doctors about it. I say swollen, but they just say I am the shape I am! I didn't get a marker test for swelling. I keep wondering if I "should" look emaciated, but I am not. I haven't been absorbing well.

GottaSki Mentor

I have failed every blood test for inflammation my entire life - yet when I am in a state of healing I look 20 pounds lighter over night and my joint pain disappears - bloating returns and so does pain - i dont just mean abdominal bloat - i bloat everywhere yet docs always told me my weight is simply a matter of calories in - calories out. This is untrue in a body in constant AI crisis.

Supplements can be helpful, but too many can be harsh on an already inflammed digestive system.

Should add each of my four endos show severe inflammation - sed and crp do not show the entire picture of inflammation in your body.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,710
    • Most Online (within 30 mins)
      7,748

    GFGaucho
    Newest Member
    GFGaucho
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Just so you'll know, once you have been gluten-free for any length of time, it will invalidate testing for celiac disease.
    • QueenBorg
      Yes. I have not been tested for celiac. It took forever to get diagnosed with Fibromyalgia. lol. I have an appointment with my regular GP later this month and will convey my findings on improved symptoms and see what his thoughts are. Thank you. 
    • knitty kitty
      @Grahamsnaturalworld, It's never too late.   Have you been checked for Small Intestinal Bacterial Overgrowth?  SIBO can cause ongoing symptoms.  Mast Cell Activation Syndrome (MCAS) and Histamine Intolerance (HIT) can also be the cause of ongoing symptoms.  The AIP diet can help with these by starving out SIBO bacteria and calming the immune system. Do you include dairy in your diet?  Casein in dairy can cause an autoimmune response the same as to gluten.  Have you been checked for lactose intolerance?  Some people lose the ability to produce the enzyme, lactase, needed to digest lactose, the sugar in dairy because the villi where the lactase enzyme is made are damaged.  AIP diet excludes dairy. Do you include grains in your diet?  Gluten free alternative grains and ancient grains can be inflammatory and cause symptoms.  Some people with Celiac react to corn and oats.  The AIP diet excludes all grains.  Lectins in grains can be inflammatory and cause symptoms. Do you eat nightshades (tomatoes, potatoes, peppers, and eggplant).  This family of plants produce glycoalkaloids, chemicals that promote Leaky Gut Syndrome.  The AIP diet excludes nightshades.   Are you on any medications?  Some medications can cause gastrointestinal symptoms.  Do you take any supplements?  Some herbal teas and supplements can cause digestive symptoms.  Medications for diabetes, antidepressants, and other pharmaceuticals can cause digestive symptoms as side effects. Have you been checked for nutritional deficiencies?  Malabsorption of essential nutrients can occur with continued symptoms.  Deficiencies in Niacin, Thiamine, and other B vitamins can cause digestive symptoms.  Gastrointestinal Beriberi and Pellagra are often overlooked by doctors because they are not familiar with nutritional deficiency disease symptoms.  Nutritional deficiencies can worsen over time as stores inside the body are depleted.   Have your doctors checked for all these?   I had a horrible time getting my symptoms under control.  I had to answer all these questions myself.  Yes, it's frustrating and exasperating because doctors don't have to live with these symptoms everyday. Interesting reading: AGA Clinical Practice Update on Management of Refractory Celiac Disease: Expert Review https://pubmed.ncbi.nlm.nih.gov/36137844/
    • Grahamsnaturalworld
      Ok, thanks for the advice, the only advice I've had that's made sense after 21years since my slight symptoms all my life turned into nasty symptoms 21 yrs ago and around 50 gp's and specialists all chasing the symptoms and not looking for the cause, after 9 years of misery I discovered my symptoms matched celiac disease and a blood test proved anti bodies to gliadin but it was too late it has changed into r.c.d. thanks again.
    • trents
      Welcome to the forum, @QueenBorg! Just for the sake of clarification, your desire to avoid gluten is connected only with your dx of fibromyalgia and not celiac disease, correct?
×
×
  • Create New...