Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Finished The Endoscopy, What A Breeze!

guest134

Recommended Posts

guest134 Apprentice
guest134
Posted

Wow, I cant believe I was freaking out about it, I couldn't even remember half of it, way too easy.

As for the results he said my intestines looked perfectly healthy, no visual signs of inflammation or ulcers or any of that sort. He took 5 biopsies and I will get the results in 3-4 weeks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VeggieGal Contributor
VeggieGal
Posted

Hi toworryornottoworry, really glad your experience wasnt unpleasant and thats brill theres no obvious signs of any damage :-) .

I must say I'm dreading mine on the 3rd January. Take it you had sedation? When will you get results? At least you can now chill and enjoy the holidays :)

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Good when it is done, isn't it :)

Let us know how it goes. Are you gluten-free now?

guest134 Apprentice
guest134
Posted
  • Author

Yeah I had sedation, I can't for the life of me remember much after that second needle. The biopsy results come back in 3-4 weeks. Seriously, don't worry about the endoscopy I couldn't believe how easy it was, I slightly remember them taking it out and I said "That's it?". All I had was IV sedation and some sort of throat spray.

I am not gluten free, I don't have symptoms so I don't intend really on doing so unless the biopsy comes back positive. I will consider a trial regardless in the New Year but for now I just want to relax for the holidays and not think of all this.

VeggieGal Contributor
VeggieGal
Posted

Ahh thats brilliant news :) . What brought you here then if you have no symptoms?...well fingers crossed for a good result.

I had an endoscopy about 2 yrs ago but I was never given an option of sedation..I just had this banana tasting throat numbing spray..they then got this pipe about half way down and I started gagging so they stopped the procedure.

Just hope they nearly knock me out this time ..but must admit I am abit of a wimp!

Happy Holidays :)

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

nottoworry for now then :) have a great holiday.

(VeggieGal, you should be able to choose throat spray or sedation (UK). The gagging with throat spray is normal and they should be able to talk you through. Maybe phone in advance and check the proceedure where you are. Going for the knock out should be fine, just take someone with you after as you can be a bit spacey :) )

VeggieGal Contributor
VeggieGal
Posted

Thanks CMW....hope I'm very spacey!! I'll give em a call...be better than me worrying all Christmas.

Happy hols :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


guest134 Apprentice
guest134
Posted
  • Author

I would say shop around for a gastro then, I forced my regular doctor to let me choose mine after reading reviews. This guy was very well versed on Celiac, if I have it I know he would find it.

What brought me in was a very slow recovery from Salmonella this summer, although I am better now it took quite a while. I demanded to be tested for Celiac and my TTG came back 16 (neg under 10). Now the thing is that infections can raise these numbers but I figured I should be extra safe and make sure this is the case, hence the biopsy.

I have to admit I would be decently upset to hear I have Celiac, simply because eating gluten doesn't bother me. If I was getting sick like most Celiac's then I would have no problem starting the diet, but it is difficult to do it as an asymptomatic Celiac. Would have no choice though as I don't feel like taking the chance on other A.I's or associated gastric cancers.

VeggieGal Contributor
VeggieGal
Posted

I would say shop around for a gastro then, I forced my regular doctor to let me choose mine after reading reviews. This guy was very well versed on Celiac, if I have it I know he would find it.

What brought me in was a very slow recovery from Salmonella this summer, although I am better now it took quite a while. I demanded to be tested for Celiac and my TTG came back 16 (neg under 10). Now the thing is that infections can raise these numbers but I figured I should be extra safe and make sure this is the case, hence the biopsy.

I have to admit I would be decently upset to hear I have Celiac, simply because eating gluten doesn't bother me. If I was getting sick like most Celiac's then I would have no problem starting the diet, but it is difficult to do it as an asymptomatic Celiac. Would have no choice though as I don't feel like taking the chance on other A.I's or associated gastric cancers.

Don't think we really get the chance in the UK to shop around but I may be wrong.

I never really had any major stomach problems until I went off gluten for 4 weeks then when I went back onto eating it... booom did I notice it!! (reason I had endoscopy 2 yrs ago was due to acid reflux/bloating which at the time I thought was caused by fatty foods ie cream cakes!) My issues this time were mainly achey arms, headaches, brainfog, rash, mouth ulcers and extreme tiredness but I never knew what celiac was and just thought it was how my body normally should be.

Well good luck with results :)

guest134 Apprentice
guest134
Posted
  • Author

Wow, just realized I misheard the biopsies taken. The G.I took 15 not 5, just noticed that on my follow up sheet. That is very comforting, I feel like if I have Celiac he will definitely find it, thank God I have such a determined G.I. He was very knowledgeable on Celiac and the implications of ignoring asymptomatic disease, was kind of morbid though. Went on a long rant about how asymptomatic's think they can eat it once in a while and he had a patient that after decades of cheating got an incurable form of Celiac related gastric cancer.

Does anyone else notice that the specialists are always the most morbid and matter of fact? I would assume being the top G.I in my city that this guy is diagnosing at least one death sentence a week, I suppose that would make anyone extremely depressing and morbid after all those years.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,162
    • Most Online (within 30 mins)
      7,748
    Jean Kemling
    Newest Member
    Jean Kemling
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...