Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weak Positive Ttg...


chickpea77

Recommended Posts

chickpea77 Rookie

tTG 25 HI (20 - 30 units: weak positive)

GLIADIN AS IgA: 4 (<20 negative)

GLIADIN AB IgG: 11 (<20 negative

I am aware that there are reasons other than Celiac Disease for a positive tTG, I guess I'm just wondering if anyone has a child that was conclusively diagnosed when the only positive in the blood work was a weak positive tTG?

Sorry about the boring thread..... stresses out mum here *blush*


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jamie1450 Apprentice

My 2 year old (1 1/2 at the time) had tTG level 5 and anything over 4 was positive. His doctor diagnosed him with Celiac after seeing his large amounts of weight gain & reaction to gluten since going on a gluten free diet.

mushroom Proficient

chickpea, is your doctor planning to do any follow-up on this result? Like at least run the EMA and DGP. Or do an endoscopy with biopsy? In my book, any weak positive should not be dismissed out of hand. Oh, and did he run a total serum IgA?

chickpea77 Rookie

yes, we've done repeat bloodwork, just waiting on the results (ttg iga, dgp iga and igg, ema, total iga). we are book in to see a pediatric gi for feb.19..... getting very nervous about receiving a negative biopsy result (that is if the gi even orders the scope).

i do have a question though, would the ttg iga be weak positive if he was iga deficient? and would his iga be 4? this is all so confusing.... the family dr seems to think it is celiac, even with the low results, since he lost 4 pounds in the two weeks we packed in as much gluten as possible... i feel like a crazy mother, obsessed over getting a definitive answer but knowing i probably won't :(

mushroom Proficient

If his IgA were low and the tTG were weak positive it would be amazing, but that is one reason why it is checked. The weight loss is a telltale of celiac. You are not crazy at all -- you are doing what is right for your son. :)

GottaSki Mentor

If his IgA were low and the tTG were weak positive it would be amazing, but that is one reason why it is checked. The weight loss is a telltale of celiac. You are not crazy at all -- you are doing what is right for your son. :)

Ditto.

Weak positive should not be dismissed. My entire family -- me, kids, grands all have weak positive or negative -- yet are clearly Celiac based on endos from me, daughter and grandson.

Symptoms plus weak positive is very telling.

Hang in there :)

chickpea77 Rookie

Thanks for your words of support.... did i mention that i love it here?!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.