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Where Can I Find A Doctor To Test Me For Celiac?


egarcia5

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egarcia5 Newbie

I have been seeing a gi doctor for 12 yrs for esophageal strictures, severe acid reflux, abdominal pain and bloating. I have has 11 dilitations of the esophogus done and as far as i know never been tested for celiac. Been taking nexium for 12 years but still have severe bouts of acid reflux. Over past few years i have developed othere severe symptoms which has resulted in me becoming disabled. No doctor seems to know what is going on with me so they ate of course blaming stress and anxiety. Symptoms : severe balance problems, difficulty walking at times, slowed mental status at times, difficulty talking at times, numbness and tingling in hands face legs feet throat, severe headaches, muscle spasms, stomache pains, bloating, loose stools, nausea, thyroid issues, hypoglycemia, sleepy after meals but awake in middle of night, difficulty swallowing, swelling in my throat. The list goes on but those are some of my most severe i believe. I have asked for a test from gi doc He says no just try gluten free diet for 16 days. I am gluten free for 41 days and have felt an improvement in some symptoms. My mother in law thinks it may be gluten ataxia. Hollistic dc thinks its gluten as well. Can anyone direct me in the right direction?


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kareng Grand Master

GI docs and "regular " docs can order the Celiac blood tests. Even OB/GYns can order it if you have one. However, for the blood test or endoscopy ( GI doc only) you need to be eating gluten.

cahill Collaborator

As kareng said any doc can order a celiac panel . The problem is finding a doc that knows what a celiac panel is :rolleyes:( my granddaughters doc had to go look it up and still was not sure so my daughter called me from his office to ask me what it was .) , what test to run and then what to do with the results once they have them..

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    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
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