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Casein Withdrawal - When Will It Be Over?!

CR5442

By CR5442
in Coping with Celiac Disease

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CR5442 Contributor
CR5442
Posted

Hi all. I recently had a positive IgG test for Casein so am taking this out of my diet - which would make sense as over the last year I had added it back in after coming off gluten and amongst other things I've had weight gain (crazy!), water retention, hot sweats, itching, wind, constipation etc. Now I'm off it the wind, sweating and constipation are resolving pretty quickly but I am itching like mad particularly in the afternoons after a busy day. I've tried liver herbs to help with the detox but they aren't doing much. Also I wondered if anyone knew when the water would start to come off. I have bad swelling in my lower legs by the end of the day and have also been treated for adrenal fatigue (I suppose from having eaten something for some time that my body didn't like). Any tips and stories would be greatly welcome. I know not directly about gluten but I know a lot of you will also have this issue with milk/casein because of the celiac. Thanks!

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cavernio Enthusiast
cavernio
Posted

My casein symptoms involve a dry mouth and possibly a low grade fever, or maybe decrease in body temperature. I've only gained weight since being gluten and casein free, despite already being obese. I've never suffered from gluten withdrawal or dairy withdrawal that other people talk about.

I have never heard of IgG tests for anything beyond gluten. Who did this test and why is it positive to casein and not, for instance, gluten? For instance, when I asked my GI about whether I could get tested to see if I had an issue with dairy beyond lactose (like casein or whey), he said it wasn't really done and that my IgA (yeah, I know that's not IgG) was most very, very likely elevated due to gluten. With a confirmation biopsy, there's no question that I'm a celiac.

CR5442 Contributor
CR5442
Posted
  • Author

Hey Cavernio. thanks for your reply. things are already starting to get better. I'm loosing that feeling like I have water oozing from every pore and the water weight is starting to come off too. Tummy still a bit dodgy though and ear still ringing but I suppose it's going to take a while to get everything back to balance. The gluten didn't show on my IgG because I stopped eating it over a year and a half ago - so it wouldn't show up because all the IgG storms with the markers for gluten will have gone away. Eggs and soya didn't show for the same reason - I stopped eating them about 4 months ago. But my acupuncturist can feel in my pulse that they and the gluten are bad for me. Perhaps in a year or two she won't feel that reaction anymore because I had zero of any of them in my system. I think the moral of the story for me is - eat clean, eat healthy and don't ever have any proteins that remotely look or behave like gluten... eggs, casein, soy are all very similar. Makes eating out a challenge! I'm always opting for steak and plain boiled potatoes and peas! Thank goodness for olive oil and balsamic!

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