Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Alberta


troushka

Recommended Posts

troushka Newbie

Hi there!

So, who out there is from my neck of the woods? I live in Alberta and both my son and i are celiac. I was diagnosed as an infant, but was told at age 11 that i had outgrown the disease!! I ate gluten for 20 years and was re-diagnosed at age 33. My son was disagnosed shortly after that, when he was 5. He is now 8.

We are gluten-free now, and doing very well! I also have a daughter, age 10, who has not been diagnosed with celiac, but i sometimes wonder... she seems to have alot of symptoms, and though they are very different from my son's symptoms, they are similar to what i had. She, understandably, is very reluctant to even go there!

Bye, Alberta!

Patricia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SofiEmiMom Enthusiast

Hi Patricia. My husband and I are going to be vacationing in Banff this June. I was wondering if there are any restaurants that you know of that cater to Celiacs at all? Any info about restaurants in Calgary would be of interest as well since we will be flying in and out of Calgary. Thanks so much! :D

chantal Newbie

hi im from calgary, i would recomend mongolian grill-- :P

troushka Newbie

Hi SofiEmiMom,

There are lots of good restaurants to eat at here in Calgary. :P

At Tony Roma's, the sauces are gluten free, so you can order what you like of the ribs.

I do not know this first hand, but some of the moms in my Kids With Celiac Group shared that at Chianti's restaurant, you can order your pasta meal with gluten-free pasta! When you call to make a reservation, mention that you'll be ordering gluten-free, and they will have the pasta on hand. all of their sauces are gluten-free, including the white sauces. They also have an allergy binder. (I just phoned them and they confirmed all this info!)

you'll find them in the north: 300, 20 Crowfoot Cresent NW (547.5020)

you'll find them in the south: 444, 10816 Macleod Trail S (225.0010)

When my family and i eat out (my son and i both have celiac) we tend to eat at japanese, indian and vietnamese restaurants. these have many items that are gluten-free! here are a few suggestions:

downtown: glory of india: 515, 4th Ave SW (263.8804, i recommend a reservation and at lunch they have a great all-you-can-eat!)

vietnamese: my family and i love this one: oriental pheonix: 503, 4th Ave SW (262.3633) or 80, 104 58th Ave SE (253.8383)

i cant be much of a help for banff. i am certain, though, that they have many asian, indian and maybe even italian restaurants that may be celiac friendly. call the calgary chapter of the celiac association. they may be able to help and/or send a recent listing of celiac friendly calgary/banff restaurants! 237.0304

hope this helps, and have a great trip!

Patricia :lol:

  • 3 weeks later...
janet Newbie

Hi, I'm from Sherwood Park. It was great to hear that Chianti's does gluten-free as I've always avoided them for that reason. I find that Japanese sushi or maki is great if I avoid the soy sauce. I wish I could find a bottle small enough I could fill it with wheat free soy sauce and fit it in my purse. Wouldn't it be great if someone manufactured gluten free condiments in portable size containers?

Janet

tagger Rookie

Hi Troushka,

My story is somewhat like yours. I was a childhood Celiac and at that time it was assumed children "outgrew" it. Two summers ago I was extremely sick. They were testing for hepatitis, salmonella etc. The Celiac thing was such a non issue with me that I had never even mentioned it to my doctor. When they started talking about more colonoscopys etc I decided to do a little research on the web. Typed in "gastro" and eventually went to a celiac site. There were all my symptom all laid out. I went gluten free immediately and was recovered in only a couple of days. Both of my brothers were also celiacs. They refuse to admit it though. I worry especially about my eldest brother as he shows all the symptoms but won't face up to facts. (his wife loves baking and he loves her baking!) I actually think my Mom is also an undiagnosed celiac but she won't go there either. I really worry about my 8 year old. The only symptom I've noticed so far is that he frequently gets mouth sores. Hopefully he isn't celiac because he's an awfully picky eater and of course loves pizza, hamburgers etc. He's just starting to get a little brave and try some new foods. It would be a nightmare if he were celiac!

For some time now I've been making myself separate meals when cooking for the family (depending what I'm cooking, ie spaghetti). I've now decided that if I am doing the cooking I will cook gluten-free and they can eat it too. Tonight for example I'm making stew and will dredge the meat in gluten-free flour. In some cases though gluten-free can be a lot moe expensive and in that case I'll use my own gluten-free stuff.

It's hard enough to stay gluten-free and I can imagine that keeping you daughter gluten-free must be hard.

I'm in Ontario. We have 2 restaurants here that can provide gluten-free. Mexicali Rosa's is a sure thing because the owners wife is a celiac. There is also an Italian restaurant called Il Fornellos which I haven't tried yet. Worse than restaurants I find eating at friend's homes can be pretty scary. Though they are aware that I am celiac an some will serve accordingly they really don't know about hidden gluten and cross contamination. I often just take my own little something along as I hate making a big deal of it.

Take Care,

Tagger

  • 10 months later...
SherriRoy Newbie

I live in Edmonton. Unfortunately I haven't found many restaurants that actually have gluten free food other than a salad. I have been to Chianti's, and they do have a spegetti that is very nice, but when there is only litterally one thing to eat there next to a salad, it's still a little depressing.

I find that most restaurants here in Edmonton are very unreliable in regaurds to gluten free. They might know what wheat "allergy" is, but they have no idea abouti ngredients, or even the cross contamination factor. Most line cooks have not been trained with that sort of knowledge. I am a cook myself, and sometimes I wish I could just sit down with some cooks, and just give then some basic knowledge for the next time they meet someone with my problem.

I was diagnosed at 19, right before my 20th birthday. It has only been only just a year and a half to no avail in any gastro improvments. But I'm hopeful soon that the gluten free diet will soon start to help more than it is. I find that if I do have wheat I certainly know it...cause I am just that much more exponentially sicker...

When I cook, I love to cook gluten free as well, even to my family who is definitely attached to everything bread. Usually there isn't a big difference in texture and taste, so they don't seem to mind.

anyhow, if you are every in edmotnon area, I do know some great little lunch places..sushi joints, and some chineese restaurants that do have some great food.

Not a lot, but some good chicken fried rice.

Sherri


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
mopsie Newbie

Hi!, :)

I'm from the Peace River country. The only thing I've found gluten free is salad too. Not too appealing in winter <_< I've gotten into the habit of taking my lunch along where ever I go. It's hard to find gluten-free flours here, so I have a flour mill and do all my own gluten-free baking.

mopsie

  • 2 months later...
sciencegeek Newbie

Hi everyone,

I live in Edmonton, and have found numerous restaurants to eat gluten-free in. Here is a list of restaurants recognized by the Edmonton Celiac Chapter:

APPLEBEES, 13006 - 50 St., Edmonton.

CAF

KarenCM Rookie

Thanks so much for the list of Restaurants in Edmonton. I am going to Edmonton this month for the Celebrate Celiac conference I am so excited. I can't wait.

Karen

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Concerning GP advice

    2. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      327

      Terrible Neurological Symptoms

    3. - cristiana replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Concerning GP advice

    4. - EssexMum posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Concerning GP advice

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,637
    • Most Online (within 30 mins)
      7,748

    CIARAN CONROY
    Newest Member
    CIARAN CONROY
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
    • Scott Adams
      Here are some articles on cross-reactivity and celiac disease:      
    • knitty kitty
      @HectorConvector, Here are some articles about "dry Beriberi" and neuropathy.  I hope you've been able to acquire thiamine hydrochloride or Benfotiamine.  I'm concerned.   Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke's Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pubmed.ncbi.nlm.nih.gov/30862772/ Dry Beriberi Manifesting as Acute Inflammatory Demyelinating Polyneuropathy in a Patient With Decompensated Alcohol-Induced Cirrhosis https://pmc.ncbi.nlm.nih.gov/articles/PMC7707918/ A Rare Case of Thiamine Deficiency Leading to Dry Beriberi, Peripheral Neuropathy, and Torsades De Pointes https://pmc.ncbi.nlm.nih.gov/articles/PMC10723625/
    • cristiana
      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
    • EssexMum
      Hi, I am after some advice re my step daughter and her Coeliac Disease. She is 9 years old and had a very limited diet before being diagnosed (very fussy and very lenient parents), since being diagnosed it has become hard to find places out that will cater for her, but we manage.  History: She had been having severe tummy pains on and off every few months so had a bunch of tests and eventually was diagnosed with celiac disease a number of months ago. We was told that she is at a very high level and should avoid gluten for the rest of her lift, we was told that the gluten she has been eating has damaged the 'fingers' inside her and they will not replenish. We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesnt react to the gluten straight away, it will be a build up and then the pains start. We was advised that by her not reacting straight away, it did not mean it wasnt harming her inside. We was given literature about buying a separate toaster and cutting board etc to avoid cross contamination and have been checking all food labels etc.  Problem: the issue is the novelty seems to have worn off with her Mum and we are now posed with a situation. They are going on holiday to Disneyland Paris for 3 nights and she phoned the hotel who said they cannot cater for gluten free. She phoned the GP and had a conversation and then told my partner that the GP had said it was fine for her to have gluten for the 3-4 days. He questioned it and she said no its fine, she hasnt had it for months so a few days wont hurt and she exposed to it anyway without knowing so it will be fine and shes not ruining her holiday etc.   My partner could see from the online notes that his ex wife had told the doctor that the child does not follow a strict gluten-free diet anyway - not true. At least not with us! My partner requested a call with the same doctor who told him that it is the mums discretion and that the child should be monitored for reactions - he explained that the issue is she doesnt react straight away. The GP said no its all mums discretion and she knows best. We are going to try to speak to the consultant at the hospital, but I just wanted to gauge some thoughts. It just seems bizarre to me that we can go from being told to avoid gluten for the rest of her life and how harmful it is to her body, to now it being ok for her to have it for a few days. Thanks in advance  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.