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Alberta


troushka

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troushka Newbie

Hi there!

So, who out there is from my neck of the woods? I live in Alberta and both my son and i are celiac. I was diagnosed as an infant, but was told at age 11 that i had outgrown the disease!! I ate gluten for 20 years and was re-diagnosed at age 33. My son was disagnosed shortly after that, when he was 5. He is now 8.

We are gluten-free now, and doing very well! I also have a daughter, age 10, who has not been diagnosed with celiac, but i sometimes wonder... she seems to have alot of symptoms, and though they are very different from my son's symptoms, they are similar to what i had. She, understandably, is very reluctant to even go there!

Bye, Alberta!

Patricia


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SofiEmiMom Enthusiast

Hi Patricia. My husband and I are going to be vacationing in Banff this June. I was wondering if there are any restaurants that you know of that cater to Celiacs at all? Any info about restaurants in Calgary would be of interest as well since we will be flying in and out of Calgary. Thanks so much! :D

chantal Newbie

hi im from calgary, i would recomend mongolian grill-- :P

troushka Newbie

Hi SofiEmiMom,

There are lots of good restaurants to eat at here in Calgary. :P

At Tony Roma's, the sauces are gluten free, so you can order what you like of the ribs.

I do not know this first hand, but some of the moms in my Kids With Celiac Group shared that at Chianti's restaurant, you can order your pasta meal with gluten-free pasta! When you call to make a reservation, mention that you'll be ordering gluten-free, and they will have the pasta on hand. all of their sauces are gluten-free, including the white sauces. They also have an allergy binder. (I just phoned them and they confirmed all this info!)

you'll find them in the north: 300, 20 Crowfoot Cresent NW (547.5020)

you'll find them in the south: 444, 10816 Macleod Trail S (225.0010)

When my family and i eat out (my son and i both have celiac) we tend to eat at japanese, indian and vietnamese restaurants. these have many items that are gluten-free! here are a few suggestions:

downtown: glory of india: 515, 4th Ave SW (263.8804, i recommend a reservation and at lunch they have a great all-you-can-eat!)

vietnamese: my family and i love this one: oriental pheonix: 503, 4th Ave SW (262.3633) or 80, 104 58th Ave SE (253.8383)

i cant be much of a help for banff. i am certain, though, that they have many asian, indian and maybe even italian restaurants that may be celiac friendly. call the calgary chapter of the celiac association. they may be able to help and/or send a recent listing of celiac friendly calgary/banff restaurants! 237.0304

hope this helps, and have a great trip!

Patricia :lol:

  • 3 weeks later...
janet Newbie

Hi, I'm from Sherwood Park. It was great to hear that Chianti's does gluten-free as I've always avoided them for that reason. I find that Japanese sushi or maki is great if I avoid the soy sauce. I wish I could find a bottle small enough I could fill it with wheat free soy sauce and fit it in my purse. Wouldn't it be great if someone manufactured gluten free condiments in portable size containers?

Janet

tagger Rookie

Hi Troushka,

My story is somewhat like yours. I was a childhood Celiac and at that time it was assumed children "outgrew" it. Two summers ago I was extremely sick. They were testing for hepatitis, salmonella etc. The Celiac thing was such a non issue with me that I had never even mentioned it to my doctor. When they started talking about more colonoscopys etc I decided to do a little research on the web. Typed in "gastro" and eventually went to a celiac site. There were all my symptom all laid out. I went gluten free immediately and was recovered in only a couple of days. Both of my brothers were also celiacs. They refuse to admit it though. I worry especially about my eldest brother as he shows all the symptoms but won't face up to facts. (his wife loves baking and he loves her baking!) I actually think my Mom is also an undiagnosed celiac but she won't go there either. I really worry about my 8 year old. The only symptom I've noticed so far is that he frequently gets mouth sores. Hopefully he isn't celiac because he's an awfully picky eater and of course loves pizza, hamburgers etc. He's just starting to get a little brave and try some new foods. It would be a nightmare if he were celiac!

For some time now I've been making myself separate meals when cooking for the family (depending what I'm cooking, ie spaghetti). I've now decided that if I am doing the cooking I will cook gluten-free and they can eat it too. Tonight for example I'm making stew and will dredge the meat in gluten-free flour. In some cases though gluten-free can be a lot moe expensive and in that case I'll use my own gluten-free stuff.

It's hard enough to stay gluten-free and I can imagine that keeping you daughter gluten-free must be hard.

I'm in Ontario. We have 2 restaurants here that can provide gluten-free. Mexicali Rosa's is a sure thing because the owners wife is a celiac. There is also an Italian restaurant called Il Fornellos which I haven't tried yet. Worse than restaurants I find eating at friend's homes can be pretty scary. Though they are aware that I am celiac an some will serve accordingly they really don't know about hidden gluten and cross contamination. I often just take my own little something along as I hate making a big deal of it.

Take Care,

Tagger

  • 10 months later...
SherriRoy Newbie

I live in Edmonton. Unfortunately I haven't found many restaurants that actually have gluten free food other than a salad. I have been to Chianti's, and they do have a spegetti that is very nice, but when there is only litterally one thing to eat there next to a salad, it's still a little depressing.

I find that most restaurants here in Edmonton are very unreliable in regaurds to gluten free. They might know what wheat "allergy" is, but they have no idea abouti ngredients, or even the cross contamination factor. Most line cooks have not been trained with that sort of knowledge. I am a cook myself, and sometimes I wish I could just sit down with some cooks, and just give then some basic knowledge for the next time they meet someone with my problem.

I was diagnosed at 19, right before my 20th birthday. It has only been only just a year and a half to no avail in any gastro improvments. But I'm hopeful soon that the gluten free diet will soon start to help more than it is. I find that if I do have wheat I certainly know it...cause I am just that much more exponentially sicker...

When I cook, I love to cook gluten free as well, even to my family who is definitely attached to everything bread. Usually there isn't a big difference in texture and taste, so they don't seem to mind.

anyhow, if you are every in edmotnon area, I do know some great little lunch places..sushi joints, and some chineese restaurants that do have some great food.

Not a lot, but some good chicken fried rice.

Sherri


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  • 1 month later...
mopsie Newbie

Hi!, :)

I'm from the Peace River country. The only thing I've found gluten free is salad too. Not too appealing in winter <_< I've gotten into the habit of taking my lunch along where ever I go. It's hard to find gluten-free flours here, so I have a flour mill and do all my own gluten-free baking.

mopsie

  • 2 months later...
sciencegeek Newbie

Hi everyone,

I live in Edmonton, and have found numerous restaurants to eat gluten-free in. Here is a list of restaurants recognized by the Edmonton Celiac Chapter:

APPLEBEES, 13006 - 50 St., Edmonton.

CAF

KarenCM Rookie

Thanks so much for the list of Restaurants in Edmonton. I am going to Edmonton this month for the Celebrate Celiac conference I am so excited. I can't wait.

Karen

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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