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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gluten Free For Over 3 Months, Feeling Great!

3 posts in this topic

Hi everyone! Been away from this board for awhile. I retired and this summer has been busy with famliy, reunions, birthdays, barbecues, and our county fair with the granddaughter showing her horse! (blue ribbons!!!)

I'm happy to report that after being gluten free for over 3 months, I am feeling great! I have gained a few pounds I didn't need, by discovering I can eat ice cream and chocolate! Oh well, I hope to take it off again! :rolleyes:

You all said it would get easier to do this diet, and I want to say how right you were! I was so angry, at first, that I would never have another pizza, cheeseburger, Krispy Kreme, or birthday cake ever again. But, I got over that! Amazingly to me, I now don't miss those things! The diet just becomes a part of your life! Thank you to all who helped me get going on the right track!

I do have a question. Does anyone know if I get cross contamination, will the villi not heal, or not as fast? I seem not to be bothered by small amounts of contamination. I'm not too careful about this, when eating out. I don't eat anything, that I know of, with gluten in it. But, I don't have any symptoms, now that I've cut the obvious out. Once in awhile, I still get a sore on my elbow, like the ones I feel were DH, that I had for awhile last winter. I'm not sick ever, though, thankfully! But, I'm hoping I will still heal, with these possible contaminations, even if a bit more slowly. I don't go for another Upper GI until Feb. or after.

I have also since been diagnosed with Osteoporsis. Darn, I think I'm too young for this!!! And I itched severely when trying to take the med for it. So, I'm hoping that as the villi heal, I will be able to absorb all that calcium I'm taking! I have taken it for years, but not absorbing it, obviously. I did learn one thing frpm the Dietician, was to take my vitamins throughout the day, so as to help with absorption.

Thanks again everyone, for the great advice and support! :)


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Yes cross contamination is a HUGE issue, you will not heal because you are still getting sources of gluten. You think having osteoperosis at your age is young, I have it and I am 14 and was diagnosed at the age 0f 12.


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Contamination sensitivity as far as symptoms goes, varies from one Celiac to the next. I know of no comprehensive studies to indicate the effects of villi when consuming small amounts of gluten.

The general consensus seems to be that other than microscopic amounts, even a little gluten is harmful to the villi. Even though you do not get any symptoms, it is probably in your own long term best interests to be as careful and diligent as you can.


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    • Yes you are correct. Interestingly my genes in the US are thought to be more associated with RA. Which is something they thought I had prediagnosis. In the Middle and far East they are more likely to be associated with celiac and they are rare genes in Caucasians which I am according to my parents known heritage. I always caution folks not to take the gene tests as absolute proof they can't have celiac because I had one child who had positive blood and biopsy, did well on the diet, then got genes tested in young adulthood and was told they could never be celiac. Of course that resulted in her abandoning the diet. I worry but hope someday doctors will realise we still have a lot to learn about the genetics of this disease. PS While I still have some deformity in my hands my joint pain resolved after a few months on the diet.
    • It seems like you really need a concrete or near concrete answer so I would say maybe you ought to get the gene testing. Then you can decide on the gluten challenge.   Thanks! I am convinced our dogs are there waiting for us. Meanwhile they are playing, running, laughing, barking & chasing. I have another favorite quote dealing with dogs: "If a dog will not come to you after having looked you in the face, you should go home & examine your conscience."  ~~~ Woodrow Wilson ~~~
    • I can't help thinking that all of this would be so much easier if the doctor I went to 10 years ago would have done testing for celiac, rather than tell me I probably should avoid gluten. He was looking to sell allergy shots and hormone treatment, he had nothing to gain from me being diagnosed celiac. I've been messing around ever since, sort-of-most-of the time being gluten free but never being strict about it. I really feel like three months of eating gluten would do my body a lot of permanent damage. I've got elevated liver enzymes for the third time since 2008 and no cause can be found which might be good, I guess. I wonder if it would be reasonable to do the HLA testing first, to decide if I really need to do the gluten challenge. If the biopsy is negative, that is. Squirmingitch, love your tag line about dogs in heaven. We lost the best dog ever last December. I sure hope all my dogs are there waiting for me!
    • Most (90%-95%) patients with celiac disease have 1 or 2 copies of HLA-DQ2 haplotype (see below), while the remainder have HLA-DQ8 haplotype. Rare exceptions to these associations have been occasionally seen. In 1 study of celiac disease, only 0.7% of patients with celiac disease lacked the HLA alleles mentioned above. Results are reported as permissive, nonpermissive, or equivocal gene pairs. From: http://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/88906  
    • This is not quite as cut & dried as it sounds. Although rare, there are diagnosed celiacs who do not have either of those genes. Ravenwoodglass, who posted above, is one of those people. I think she has double DQ9 genes? Am I right Raven?  My point is, that getting the gene testing is not an absolute determination either way.
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