This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Where can I buy gluten-free stuff?
Support this site by shopping at The Celiac.com Store.
You might be like me and need to get a vitamin and mineral panel blood test. And make sure it includes iron. We both might be deficient in certain vitamins/minerals. My medicals bills have been so high I've put it off and just started taking a multivitamin instead. But I'm not sure it has it in what I really might be deficient. So I'm going to spend more money and get a vitamin and mineral panel blood test.
Even at my age I have high metabolism. Gluten free meals only fill me up for 2-3 hours so I have a backpack with me everday and have gluten free snacks to hold me over. My weight went from 168 to 161 my first month gluten free. But it seems to have stabilized and might be going back up again a little. I'm in the start of my 3rd mo. being/trying to be gluten free. If I am hungry for too long I kinda get light headed and dizzy so I bring gluten-free snakes with me.
I drank a bottle of Ensure + my first month to help keep weight on but it didn't seems to agree with my stomach. It might of been my body trying to adjust to the new gluten free diet that caused that issue.
Thanks, cyclinglady. That's encouraging to know that people can have a relatively normal life with Crohn's. I have a co-worker whose in his 50s with Crohn's. I understand he's had it most of his life. Lots of surgeries, iron infusions and ongoing pain.
My GI appointment isn't for another three weeks. I had an abdominal CT scan 9 years ago for similar issues and it was clean. I'm fairly old for Crohn's --I'm in my mid 40s-- and understand that it mostly affects people in their teens and 20s. But, there are always those outliers.
Given that both my brother and his son have Celiac...I'm hoping(?) for the less destructive disease.
Sounds like gluten might have snuck back into your diet, either a condiment, spice, a contaminated pot, utensil, bowl, or cup. Is your whole house gluten-free? Are you still fixing gluten meals for the kids? Once you go completely gluten free after the first few months many become hyper sensitive to gluten, where as a tiny amount of CC throws it all off the cliff like all hell broke loose in your guts. Double check back over everything. Read the 101, clean out and double check everything, I found freezer paper/butcher paper to make a nice clean work area and clean up a breeze, foil line pans etc. Cheap starts with cookware are to use microwave cook ware from nordicware, crock pot liners, and disposable or new utensils/cookware.
Try keeping a food diary with a list of everything your eating, include every condiment/spice etc. Try to find a common denominator, Rotate your meals using different foods, cuisines, and source that are gluten-free. You might find some other foods that offend your gut, as many of us also find or develop other intolerance in the first few months.
Hi! I was officially diagnosed a couple of months ago now but I have been gluten free for about 4 months since my endoscopy. However, in the last month I have noticed some worrying post diagnosis and treatment symptoms. My appetite has shrunk enormously. I used to be able to eat bowls and bowls of food and still be hungry, I could consume food even when full and I was constantly snacking. I understand over eating is a big part of celiac disease before going on a gluten free diet but food is such a huge part of my lifestyle. This last month I feel as though I have lost myself a bit as huge parts of my character like my love for food, huge appetite and my non fussy nature have all been turned upside down. I could easily not eat any snacks in a day now and not have to have all my meals. I thought I might have lost weight so I weighed myself on the same scales I did a couple of months ago. I am a young tall girl and was 10 stone for the last year at least. In the last few weeks I have lost half a stone which is 7 pounds and am now 9.5 stone. This is not intentional and I did not aim or want this to happen so I am concerned about any continued lack of appetite and weight loss in relation to my health. Therefore, I am going to weigh myself each week and make sure I am eating all three meals. If it continues I'll visit the doctor. Also, I am noticing fatigue still which was a huge part of my pre diagnosis symptoms. I get to a certain point in the afternoon where I feel like I need to go home and rest because I can no longer continue. I have no stamina and it is restricting my freedom, which I feel has already been taken from me as a result of this diagnosis that came at a frustrating point in my life which was a huge nuisance. Finally, I am also finding it a bit of a struggle to get my head around the whole thing still and to understand what it means for me and my life. I am very worried and scared that it will impact me not just physically but mentally and socially and it scares me. I guess this was more me getting all this off my chest and into the open, if anyone has any advice or feedback I will be hugely grateful.
I've lost 3-4 pounds. It surprises me, as I would have expected to lose more, considering how limited my diet has been, how sick I was since early May, and now walking 35 to 45 min. after dinner. I think it's the increased gluten-free bread and shortbread cookies. I've eaten more of these as they settle my stomach and are safe when I'm not sure what else will work. I think I may also be having more sodium, so there may be a bit of water weight.
I am actually doing better. I've been on Famotidine 20 mg., 2x daily for about 9 days, and added Vit D a few days ago. I've been able to drop one of 4-5 stacked pillows at night, and will try dropping one more tonight. I am down to Tums (1500 mg.) around 3-4 a.m. for mild heartburn / upset stomach, and again when I get up. Not much else, maybe occasional simethicone.
i tried returning to a salad at dinner, just lettuce, tomato, and onions, but seemed to have more trouble overnight, so quit. I'm mostly eating an egg with toast, well cooked sweet potatoes/mixed veggies, tuna, some salmon, hamburger, chicken, Ian's fish sticks, bone broth, Schar's breadsticks and shortbread, some soy milk or macadamia milk, and the bakery gluten-free bread.