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So, if you know from experience that gluten causes you issues because when you eliminate it you definitely feel better, then in light of your negative biopsy results it looks like you have NCGS (Non Celiac Gluten Sensitivity). NCGS still calls for gluten free eating and some experts believe it can transition into celiac disease.

Well, the problem is we kind of did proceed with dietary changes. Until his ASK study test he was eating school lunch 3x a week (high on the gluten) plus occasionally a weekend treat with gluten. Since the test I went to packing his lunch and everything he eats at home is gluten-free due to his sister. I would say 1-2x a week for the last 3 weeks he had a decent serving of gluten like pizza or a cupcake at a party. Will that be enough for an accurate result? I assume a number 12x the limit isn't going to back to zero in 3 weeks of eating *mostly* gluten free. I am kicking myself now because I was so sure he'd be negative I didn't even make an effort to have him keep eating gluten after we drew his blood for the ASK study. Never thought we'd need a confirmation test.  And we probably won't even see the GI so we will have to make our own decision based on the results. The pediatric GI telehealth appointment was almost $500 for a 30 minute appointment and it's just out of our price range to do that again with another kid. 

Hi again! The biopsies from my endoscopy didn't show anything abnormal. The GI said I have EPI like I already said, acid reflux that I didn't know I have, and probably a gluten intolerance since it's showed up on allergy testing.

@Scott Adams has done an amazing job at explaining the situation.  Shop at Asda, Morrisons, Tesco's, Sainsbury's, Marks & Spencers and Waitrose which have great gluten free sections and you won't go hungry.  Even small Co-op corner shops tend to have a dedicated gluten free area.  I haven't had much luck with the German store, LIdl.  Can't speak for Aldi but I think they may have a gluten free section..  Food labelling has become very strict here so you should be able to shop anywhere and trust their labels - if the product comes from a shared line, it will say 'May contain traces of gluten'.  If that is the case, avoid those products.  I am not sure how long you are here for but if you are here for a while I second that you join Coeliac UK who produce an app which will help you navigate the supermarket. Personally, I would not eat pasta or pizza out., as in the words of a Food Inspector I know, there is just too much glutenous flour about in these places.   When you order anything, make a big deal about the fact that you are a coeliac.  My line is... "I'm very sorry to be a pain but please can you make sure to tell the chef that I am a coeliac and because I throw up very quickly after being served gluten by mistake!"   That tends to work get the message home!  I find as soon as they hear that they type/write coeliac/or allergy in very big letters on the chit for the kitchen! When the food comes out,  at the point of service, always double check what they are serving IS actually gluten free.  Twice I have narrowly avoided being glutened because my daughter or I double checked the bread was gluten free:  the poor, harried waiting staff had made a mistake and put the wrong bread on the plate. We don't seem to have the medication that you have for glutening episodes, as you do in the US, so if you can I'd bring some with you.    

I have cgf oat flour so I should buy potato or tapioca flour mixed together to make "flour" is there a recipe you use to stretch the for. Does it come out to 1:1 when replacing regular flour? Also xanthum gun is that good for you or is there a replacement? There a vegan gluten-free granola bar I purchase locally that I'm trying to replicate I think it's no bake but trying to see if I can copy it bc I can freeze it. Thanks