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Welcome to celiac.com, @jenniber! This disaccharide deficiency is a new one for me but after researching it, it is a thing. I am concerned that your GI doc skipped the normal protocol of first ordering blood tests for celiac disease and went straight to the scoping/biopsy. Since she, herself, initially believed you to have celiac disease and the...2 points
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Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)
knitty kitty and one other reacted to imdoodah331 for an article
I'll be adding my wheat based snack plates to the donation box.2 points -
It sounds like you have a very reasonable GI doctor, who diagnosed you based on family history and symptoms after eating gluten. I would consider you lucky! The other option would be to make yourself very sick by doing weeks of a gluten challenge prior to an endoscopy.2 points
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Celiac Disease and Skin Disorders: Exploring a Genetic Connection
Oldturdle reacted to Scott Adams for an article
1 point -
Issues before diagnosis
knitty kitty reacted to sha1091a for a topic
I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia. going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 9...1 point -
Celiac Disease and Skin Disorders: Exploring a Genetic Connection
Scott Adams reacted to Flash1970 for an article
This explains a lot. I had a severe leg injury when I was younger. I've had several surgeries. I was super careful, but always got cellulitis. Interesting article. Even when I was gluten free and had surgery, I still got cellulitis.1 point -
Gut Healing After a Celiac Diagnosis: What Science Says About Recovery Time (+Video)
Scott Adams reacted to Flash1970 for an article
Good article. Everyone expects healing within a few weeks. I remember not feeling good until 4 months into the gluten free diet. In fact, the first month was horrible. I felt way worse. This is due to a large part of addiction to wheat. It feels like withdrawal symptoms. Your body wants the gluten no matter what. At 4 months, I remember waking up one...1 point -
Gut Healing After a Celiac Diagnosis: What Science Says About Recovery Time (+Video)
knitty kitty reacted to Scott Adams for an article
1 point -
Disaccharide deficient, confusing biopsy results, no blood test
jenniber reacted to Scott Adams for a topic
Let us know how things turn out--good luck!1 point -
Disaccharide deficient, confusing biopsy results, no blood test
Scott Adams reacted to jenniber for a topic
thank you Scott! This is very helpful. I have a message out to my doctor and i think this guide will help me interpret the results! its very thorough.1 point -
Disaccharide deficient, confusing biopsy results, no blood test
jenniber reacted to Scott Adams for a topic
I agree with @trents, and encourage you to follow up with your doctor about getting a celiac disease blood test done. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test...1 point -
Stomach hurts with movement
Scott Adams reacted to DebJ14 for a topic
I am glad you are getting this checked out. Our son would get that kind of pain when he walked. He assumed it was gut. Boy, was he ever wrong. It was his heart. After a cath and triple bypass and a long recovery, he can walk 45 minutes on the treadmill with no pain.1 point -
gluten-free Oatmeal
Scott Adams reacted to DebJ14 for a topic
I had the same problem with oats. I also cannot tolerate corn. I wasn't at my absolute best until I went grain free.1 point -
What foods can trigger a response in people with gluten sensitivity?
Scott Adams reacted to trents for a topic
Welcome to the forum, @yellowstone! The most common ones seem to be dairy (casein), oats, eggs, soy and corn. "Formed" meat products (because of the "meat glue" used to hold their shape) is a problem for some. But it can be almost anything on an individual basis as your sensitivity to rice proves, since rice is uncommonly a "cross reactor" for celiacs. Some...1 point -
Shingles - Could It Be Related to Gluten/ Celiac
knitty kitty reacted to Jmartes71 for a topic
Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.1 point -
Shingles - Could It Be Related to Gluten/ Celiac
Jmartes71 reacted to knitty kitty for a topic
Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/1 point -
Shingles - Could It Be Related to Gluten/ Celiac
knitty kitty reacted to Flash1970 for a topic
Thank you for the links to the articles. Interesting reading. I'll be telling my brother in law because he has a lot of pain1 point -
Shingles - Could It Be Related to Gluten/ Celiac
Jmartes71 reacted to knitty kitty for a topic
Hi, @Ginger38, I've had shingles in the past. I understand how miserable you're feeling. Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten. The virus lives dormant in the nerves on the left side of my face. It causes...1 point -
I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...1 point
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And let's not forget that we have to beware of paper straws. Those strips of paper are often glued into straws with wheat paste. I ran into this on a cruise when they stopped using plastic straws. I was sick within 30 minutes of having a Mojito. The person taking care of my food allergies pulled a box from a bar and sure enough "Contains Wheat" was written...1 point
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Stomach hurts with movement
knitty kitty reacted to cristiana for a topic
Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area. I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who had real pain when she turned her torso in a certain...1 point
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By knitty kitty · Posted
@xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables. Not only are these high in fiber, they also are good sources of magnesium. Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation. Thiamine Vitamin B1 and magnesium work together. Thiamine in the form Benfotiamine has been shown to improve intestinal health. Thiamine and magnesium are important to gastrointestinal health and function. -
Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
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By knitty kitty · Posted
@EndlessSummer, You said you had an allergy to trees. People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits. Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease. Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet. Vitamin C and the eight B vitamins are needed to help the body clear histamine. Have you been checked for nutritional deficiencies? -
I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia. going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored?
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Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
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