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Showing content with the highest reputation since 01/25/2026 in all areas
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Awaiting dermatitis herpetiformis confirmation following biopsy
knitty kitty and one other reacted to suek54 for a topic
Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later. The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied...2 points -
Doctors and Celiac.com
Jmartes71 and one other reacted to Theresa2407 for a topic
Our support groups in Iowa have tried for years to educate doctors and resource sites like this one. We have held yearly conferences with continued education classes. We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott. In those many years we may have had 2 doctors attend. We sent them information, with no response. I talked to...2 points -
Celiac.com 01/19/2026 - This six-month study explored whether removing gluten from the diet could influence disease progression, inflammation, and body composition in women living with relapsing-remitting multiple sclerosis. Multiple sclerosis...1 point -
Doctors and Celiac.com
Scott Adams reacted to Jmartes71 for a topic
I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets...1 point -
Doctors and Celiac.com
Scott Adams reacted to Theresa2407 for a topic
I see it everyday on my feeds. They go out and buy gluten-free processed products and wonder why they can't heal their guts. I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field. Some days I would just like to scream. So much better when we had support groups and being able to teach...1 point -
I feel the same way. Looks like the research is being done in Switzerland. Thank you Scott for keeping us updated on the research!1 point
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Gluten Free Coffee
Scott Adams reacted to Peace lily for a topic
Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.1 point -
I am going to see my Disease Doctor in a couple of months and he will explain to me why they told me not to eat red meat. I wish he could have just told me over the phone.1 point
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need help understanding testing result for Naked Nutrition Creatine please
Scott Adams reacted to TheDHhurts for a topic
I wrote them back seeking clarification on their testing. The response was that they test to ensure the product is 5 ppm or under. So far no trouble with the product but I hate to see these companies drop the outside certification.1 point -
Gluten Free Coffee
Scott Adams reacted to Peace lily for a topic
Well this is what happen to me . I was still having a little problem with constapation and stomach problems and I’m the only one in the kitchen . I started looking into coffees and it seem like the flavors were the ones to avoid I use k pods.well that wasn’t it I just used breakest blend . Then I found out it was the caramel syrup I was using in my ...1 point -
Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out
Scott Adams reacted to Peace lily for an article
Well here’s the thing even small amounts affect people and unfortunately I’m one of those. Cross contamination is a big factor. You really don’t think of it.Im just grateful that there is more and more foods available for cealiac. And I thank all of us that have this forum to get on the right track it’s overwhelming . peace lily🤷🏼♀️1 point -
Medications
Scott Adams reacted to Jmartes71 for a topic
Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.1 point -
Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out
Scott Adams reacted to trents for an article
@Brenda Sanchez, you must have a true allergy to wheat or some other ingredient that was in that pizza since a celiac gluten reaction isn't the same as anaphylaxis.1 point -
I tried gluten-free take and bake pizza. Went straight into anaphalaxis!! I'm not trying to bash any restaurants but 16 year old kids don't really care ( I'm sure the gluten-free crust was rolled on the same stainless steel table as the regular crust was rolled on) I believe Cross contamination almost killed me that day!! Is it just me but it feels like...1 point
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Increased intraepithelial lymphocytes after 10 yrs gluten-free
knitty kitty reacted to cristiana for a topic
Watch this space! 😊1 point -
Symptoms
Barbra S reacted to Scott Adams for a topic
Living with celiac disease can be especially hard when you’re in a smaller town and don’t have many people around who truly understand it, so you’re definitely not alone in feeling this way. Ongoing fatigue, joint pain, and headaches are unfortunately common in people with celiac disease, even years after diagnosis, and they aren’t always caused by gluten ...1 point -
Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)
Oldturdle reacted to Scott Adams for an article
Celiac.com 01/13/2026 - Gluten-free labeling has long been a cornerstone of safety for people with celiac disease, non-celiac gluten sensitivity, and wheat allergies. But an equally important—yet less understood—system exists alongside it:...1 point -
Have Tru Joy Sweets Choco Chews been discontinued??
Scott Adams reacted to Wheatwacked for a topic
M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values. Both are made with sugar, not high fructose corn syrup. I use them as a gluten free substitute...0 points
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So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
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I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
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By xxnonamexx · Posted
Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank -
I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful thanks
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