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Showing content with the highest reputation since 07/24/2025 in all areas
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Personally, I would get a new GP. Advice to continue eating gluten, even after a Celiac disgnosis, is ridiculous. Clearly the GP knows nothing about the disease. That advice could be dangerous to your health. I too found out by accident. I was searching for help with ulnar neuropathy. The first doctor took xrays of my elbow and hand. Surprise, surprise...3 points
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New Blood-based T Cell Celiac Disease Diagnostic Test Eliminates Prolonged Gluten Challenge (+Video)
Zuma888 and one other reacted to Scott Adams for an article
Celiac.com 07/21/2025 - For many people living with celiac disease or gluten sensitivity, getting an accurate diagnosis can be an uphill battle. The traditional process often involves returning to a gluten-filled diet for several weeks...2 points -
The Impact of Anxiety and Depression on Celiac Disease Management
knitty kitty and one other reacted to KennaH for an article
Interesting article. I am diagnosed celiac with anxiety and migraines. Also diagnosed with IBS-mixed prior to celiac confirmation. Moderate to severe villi blunting. I have no problem with gluten-free diet but FODMAP is overwhelming. Only self research, especially on this site, has helped more than any gastroenterologist. I believe I do report severe symptoms...2 points -
This is truly a breakthrough in the diagnostic realm! Hopefully, this technology will become widely available sooner than later and save a lot of people a lot of misery in the process of trying to get a diagnosis.2 points
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Lymphocytic Colitis with Celiac
knitty kitty and one other reacted to Oldturdle for a topic
Thanks, Knitty Kitty! You seem so knowledgeable. I have followed your other posts. Actually, I have been supplementing with all of the B complex vitamins, as well as other recommended vitamins and minerals for over 50 years. My urine is bright yellow after dosing, so I am pretty sure that I am absorbing enough of these supplements to be therapeutic. ...2 points -
Should not be a problem except for the most sensitive celiacs. The amount of gluten that would get in the air from cooking alone has got to be miniscule. I would be more concerned about cross contamination happening in other ways in a living environment where others are preparing and consuming gluten-containing foods. Thinks like shared cooking surfaces and...2 points
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This Roller Coaster Ride Needs to Stop
Beverage and one other reacted to knitty kitty for a topic
@Ginger38, I've been there with horrible symptoms and diarrhea accidents and diabetes and the insulin conundrum! My doctors were just as frustrating! I had nutritional deficiencies. I know your doctors refuse to test for this. So did mine, saying "I can't make money prescribing vitamins." Some members say a naturopathic doctor is more open...2 points -
This Roller Coaster Ride Needs to Stop
Beverage and one other reacted to Scott Adams for a topic
Given your severe symptoms it sounds like you would be much better off going 100% gluten-free!2 points -
Positive TTG antibody and negative EMA antibody
Zuma888 reacted to knitty kitty for a topic
Welcome to the forum, @Wamedh Taj-Aldeen, How is the patient's thyroid? You could check for thiamine deficiency which can cause the thyroid to either become hyper or hypo. TTg IgA can be high in both hyperthyroidism and hypothyroidism. tTg IgA can also be high if patient is taking medications to stimulate the thyroid as in hypothyroidism...1 point -
Struggling to get into a good pattern
Zuma888 reacted to Rejoicephd for a topic
Hi everyone! I was diagnosed with celiac a year ago (they confirmed it on endoscopy following a positive TTG antibody and positive genetic test). I thought the gluten free diet thing wasn’t going to be that hard of an adjustment, but man was I wrong. I’m a year in and still having issues in terms of accidentally glutening myself and getting super sick (I’...1 point -
Celiac Disease Triggers Cognitive Deficit and White Matter Changes in the Brain (+Video)
knitty kitty reacted to Scott Adams for an article
Celiac.com 07/23/2025 - Celiac disease is well-known for its impact on the digestive system, but many patients report symptoms that go beyond the gut—such as brain fog, anxiety, and memory problems. Researchers have long debated whether t...1 point -
almost a year in recovery - so many questions about to give up
Zuma888 reacted to knitty kitty for a topic
Welcome to the forum, @kopiq, Have you been checked for nutritional deficiencies? Nutritional deficiencies may account for many of your symptoms. Celiac damages the intestines which lowers our ability to absorb essential vitamins and minerals. Have you been referred to a dietician to discuss a nutritionally dense gluten free diet? You are eating...1 point -
Struggling to get into a good pattern
Zuma888 reacted to Rejoicephd for a topic
Thank you very much @trents! This is super helpful. The only time I wasn’t sick after my diagnosis was when I was ordering and eating certified gluten-free meals from a company. I did that for a few months right after being diagnosed and then I started to try to figure it out how to cool and eat gluten-free meals myself. I think I’m probably getting low lev...1 point -
Celiac Disease Triggers Cognitive Deficit and White Matter Changes in the Brain (+Video)
Scott Adams reacted to CBird for an article
My sister has celiacs, I have gluten sensitivity along with my daughter. I suffered from depression, anxiety, and panic attacks until 62 years old. All that stopped when I went gluten free. Yes I know how much gluten can affect gut health and in turn brain health and I don't have celiac.1 point -
Newly Diagnosed
Zuma888 reacted to knitty kitty for a topic
@DebJ14, Yes, Celiac Disease causes malabsorption of all the essential vitamins and minerals, not just thiamine. All the B vitamins work together and many minerals are needed as well. If one is missing, the rest can't work well without it. Thiamine is used at the beginning of the energy production cycle and interacts with each of the other B...1 point -
Celiac Disease Triggers Cognitive Deficit and White Matter Changes in the Brain (+Video)
Scott Adams reacted to Purpletie3 for an article
I told my Doctors this years ago and they sent me for a sleep study and hormone tests. Even a mild cross contamination had me in a brain fog, losing my place in a conversation, inability to concentrate- at all, even messed with my walking and sometimes my eye sight and even speech. Definitely a dull version of myself. I was 30 years mis-diagnosed so there...1 point -
Newly Diagnosed
Scott Adams reacted to DebJ14 for a topic
I was tested for nutrient deficiencies and Thiamine was not my problem. The doctor uses the Spectracell Test for Micronutrient Deficiencies. I was deficient in Carnitine, Magnesium, multiple antioxidants, D, Selenium, B12, B6 and a long list, just not Thiamine.1 point -
Umm...meh. Under the "Tips for a Safe...", #6 should be #1. If a cruiseline bombs out on the research, 2-6 become irrelevant. That notwithstanding, how is Princess any different from any other cruise line if you have to follow stated tips 1-5 if they manage to pass #6? You'd do the same everywhere else. I should say, I would. For the ...1 point
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Yes, but knowing you have "a gluten problem" does not distinguish between gluten sensitivity and celiac disease, an important distinction when it comes to long range health implications and how strict you need to be in avoiding gluten. And in reality, many people find they cannot stick to the gluten free diet until they have a formal diagnosis. Without that...1 point
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I did not need a test to tell me that I have a gluten problem; once I stopped eating gluten and all my medical problems went away, that was enough for me. It is great that they developed this test since doctors would not take your words for it, and I was afraid of doing a gluten challenge test since the desire to commit suicide was one of my symptoms.1 point
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Kan-101
Scott Adams reacted to Fabrizio for a topic
Thanks for your article.1 point -
Newly Diagnosed
Scott Adams reacted to trents for a topic
Scott Adams makes an excellent point about the possible pending scope with biopsy being the reason you were advised to keep eating gluten, @NCalvo822! You might want to get some clarification about that. What you don't want to happen is to go gluten free and then have to go back on gluten at some point in order to produce valid scoping/biopsy results.1 point -
Finding gluten free ingredients
Scott Adams reacted to DebJ14 for a topic
I did well on gluten-free, but continued to have issues a year down the road. Testing for food allergies and sensitivities revealed severe IgE allergies to yeast and dairy as well as food sensitivities to 23 other foods. I got better after taking out those foods, but it was not until the doctor recommended I go completely grain free did all my issues resolve...1 point -
symptoms.
knitty kitty reacted to Russ H for a topic
Although sensitivity to gluten varies between individuals, multiple research studies suggest that consuming up to 10 mg of gluten a day is safe for most people with coeliac disease. Wheat flour contains approximately 10% gluten by weight, so this is equivalent to 100 mg of flour, or a piece of wheat bread the size of a small pea. There is a case report of...1 point -
Newly Diagnosed
Beverage reacted to knitty kitty for a topic
Hello, @NCalvo822, Blood tests for Celiac Disease test for antibodies our bodies make in response to gluten exposure. These Tg IgA 2 antibodies mistakenly attack our own bodies, causing problems in organs and tissues other than just the digestive tract. Joints can ache, thyroid problems or the pancreas can develop. Ataxia is just one of over two hundred...1 point -
Be sure to find a doctor who can treat you. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues...1 point
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Still unsure.....
badastronaut reacted to knitty kitty for a topic
Thiamine interacts with all the other B vitamins. Thiamine and B 6 make a very important enzyme together. With more thiamine and other vitamins available from the supplements your body is absorbing the ones you need more of. The body can control which vitamins to absorb or not. You're absorbing more and it's being transported through the blood. ...1 point -
Newly Diagnosed
Scott Adams reacted to trents for a topic
Welcome to the forum, @NCalvo822! Ditto to what Scott said. But let me ask you, what method or methods did your physician use to diagnose you as having celiac disease? Normally, it is a two step process. The first step involves a blood test that looks for certain antibodies produced by celiac disease. The second step involves an upper GI scoping and biopsy...1 point -
A Population-Wide Screening Study Finds Novel Genetic Variants in Celiac Disease
Scott Adams reacted to pweidema for an article
awesome! Thanks Scott.1 point -
Hurrah!! Maybe goldfish will be next!! 🐡🐡🐡1 point
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Blistex Medicated Lip Balm and Other Gluten-Free Brands
Scott Adams reacted to Emily P. for an article
As of July 2025, Blistex 5 Star Protection is no longer gluten free. The last ingredient listed is WHEAT!!! This is yhe ingredientlist on Blistex' website for 5 Star Protection: "Inactive Ingredients: bis-diglyceryl polyacyladipate-2, bis-stearyl dimethicone, butyloctyl salicylate, C12-15 alkyl benzoate, calendula officinalis extract, caprylic/capric triglyceride...1 point -
Im not being heard by my previous doctor I had for 25 years. I switched in May of this year.I was half told of my celiac disease in 1994 and to stay away from wheat and Ill be just fine.Im not.Was on tramadel from I think 2006 til 2023.In 2007 still gluten-free had blood test and showed other food allergies. I have been avoiding and reading labels so I don...1 point
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Frustrated
Beverage reacted to knitty kitty for a topic
I followed the Autoimmune Protocol Diet to get my symptoms calmed down and my nutrients up. I know what a struggle it is. You're why I'm here. Smoothing out some rough parts of your journey makes my journey worthwhile. Here's the tests you can get for Celiac antibodies...1 point -
I have posted a lot on here and find that the support , advice and information here is much more helpful than anything else.. ever. I am really tired of the back and forth advice in the medical community and I am beyond frustrated and over all of it currently. I will try to keep this as brief as possible. I have positive TTG IGA antibodies - and I have...1 point
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This Roller Coaster Ride Needs to Stop
Beverage reacted to knitty kitty for a topic
@Ginger38, I'm with you! I could not take Metformin. I got so sick, constant diarrhea, abdominal cramps, extreme highs and lows, no energy, weight loss, muscle wasting. Just horrible. Metformin is known to block thiamine absorption. Talk to your doctor about thiamine deficiency. It's called Gastrointestinal Beriberi. My doctor didn...1 point -
This Roller Coaster Ride Needs to Stop
Scott Adams reacted to Ginger38 for a topic
Thank you ! Good to know I am not alone. I am currently on metformin and rybelsus for my diabetes. The last week or so my sugar has been so uncontrolled, more so than before. I am very frustrated and discouraged by all this. I have had days of 317 to a low of 64. I feel terrible. I am getting back on the gluten free wagon, just taking some time, and not seeing...1 point -
Willem-Karel Dicke: Pioneer in Gluten-free Diet in the Treatment of Celiac Disease
Zuma888 reacted to Jefferson Adams for an article
Celiac.com 05/15/2010 - Willem-Karel Dicke was born in 1905, in Dordrecht, Holland, and died Utrecht in 1962. Dicke was a Dutch pediatrician, the first clinician to develop the gluten-free diet, and to prove that certain types of flour...1 point -
Celiac.com 07/17/2025 - People living with autoimmune conditions often face higher risks for developing other autoimmune diseases. One such concern is type 1 diabetes, a serious and lifelong condition where the immune system destroys insulin...1 point -
Lymphocytic Colitis with Celiac
ShellsKeathley reacted to Katerific for a topic
I was diagnosed with microscopic colitis and celiac a couple of years ago. The GI doctor prescribed a course of budesonide, which moderately helped until I tapered off. After a lot of ups and downs over the course of 2 years, I am finally in microscopic colitis remission. Since I am also diabetic, I was started on metformin and Jardiance. Metformin...1 point -
@Scott Adams Xiromed is one of the generic manufacturers of Progesterone pills.1 point
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Confused About Results
Ginger38 reacted to knitty kitty for a topic
@Ginger38, Diabetes and Celiac often go hand in hand. Having more than one autoimmune disease is common with Celiac. I'd err on the side of caution and go gluten free. I did not want to go on insulin, either. I got my diabetes under control by following the low histamine version of the Autoimmune Protocol Diet (Dr. Sarah Ballantyne). My diet...1 point -
Thank you for your kind words and encouragement. This has been the most difficult and confusing journey to date for me, and it has been going on since 2015/2016. The last dietitian I met with works with a lot of celiac patients, so I was excited, but she just thought I should be able to eat gluten free (whatever that may be) stay in a carb count and my diabetes...1 point
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This Roller Coaster Ride Needs to Stop
Zuma888 reacted to Scott Adams for a topic
Your frustration and exhaustion are completely valid, and many in the celiac and gluten-sensitive community can relate to the overwhelming confusion you're experiencing. You’re being pulled in different directions by medical advice that seems contradictory, and it’s heartbreaking that your efforts to feel better are met with so many setbacks. Positive TTG...1 point -
New to gluten free living, in5ro and small question
knitty kitty reacted to trents for a topic
First, welcome to the forum, @boy-wonder! Second, a little clarification in terminology is in order. Granted, inconsistency is rampant when it comes to the terminology associated with gluten disorders, but it has more or less become settled in this fashion: "Gluten intolerance" is a general term that car refer to either celiac disease or NCGS (Non Celiac...1 point -
Is it common to develop a wheat allergy in addition to Celiac Disease?
knitty kitty reacted to Pablohoyasaxa for a topic
Your post is excellent. Thank you!! I have been trying to keep my diet "truly gluten free," but as you know, it's a sneaky allergy, especially if you have a heightened sensitivity. So ironically, and sadly, no medical person told me to stay away from "gluten free oats.". To my own fault, my lack of awareness led to years of eating massive bowls of gluten...1 point -
Inflammation and Menier’s disease link?
knitty kitty reacted to MagsM for a topic
Hi Leenora, thanks so much for sharing your journey. Yes, I am based in Ireland and I think the primary care docs should know better here. Like yourself my IGA was undetectable. I do not have any major GI symptoms as a result my doc would only order total IGA as the next step and not IGG - so frustrating. I am ready to start a gluten free diet which will...1 point -
Celiac Disease Treatment and Continuing Symptoms
Zuma888 reacted to Mary Anderies for an article
Celiac.com 04/07/2021 - It is not uncommon for people with celiac disease to have ongoing digestive symptoms and other systemic problems, even on a gluten free diet. Even though celiac disease is becoming better understood each year, much...1 point -
What's the Autoimmune Protocol Diet and Can it Help Celiacs?
knitty kitty reacted to Scott Adams for an article
Celiac.com 08/26/2021 - We get a lot of questions about what types of foods, products, and brands are gluten-free. We also get a lot of questions about diet, not just the gluten-free diet. One questions we've seen a lot recently is about...1 point -
Migraine Headaches in Women and Celiac Disease
Zuma888 reacted to Jennifer Arrington for an article
Celiac.com 01/11/2010 - When I first went on a gluten free diet, my migraines disappeared completely.Forfive wonderful years, I only felt the twinges of a migraine (or maybejust a blessedly “normal” headache) during those few times whe...1 point
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I also had high eosinophils which I’ve never had before either - could that be due to gluten consumption?
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By knitty kitty · Posted
You're welcome! Be sure the patient eats at least ten grams of gluten per day for a minimum of two weeks prior to repeating antibody testing. Some people unconsciously reduce the amount of gluten in their diet because the feel unwell. Three grams of gluten per day is sufficient to produce symptoms. Only at ten grams or more is the immune system provoked to raise the antibody production high enough so that the antibodies leave the digestive tract and enter the blood stream where they can be measured. Read the comments below the article... -
By Wamedh Taj-Aldeen · Posted
Thanks for your response and thoughts. Total IgA is normal. HLA DQ2/DQ8 came as heterozygous and the interpretation of the lab that the risk of coeliac disease is mild to moderate. Thyroid function test is normal. I agree that the best way is to repeat tTG antibodies in 6 months time as the result was not massively high. -
By knitty kitty · Posted
Welcome to the forum, @Wamedh Taj-Aldeen, How is the patient's thyroid? You could check for thiamine deficiency which can cause the thyroid to either become hyper or hypo. TTg IgA can be high in both hyperthyroidism and hypothyroidism. tTg IgA can also be high if patient is taking medications to stimulate the thyroid as in hypothyroidism. Thanks for visiting! Keep us posted! -
By knitty kitty · Posted
Welcome to the forum, @Rejoicephd, I found the Autoimmune Protocol diet (Dr. Sarah Ballantyne) extremely helpful in getting my health back. The AIP diet is very strict, removing any possibly irritating foods and allowing time for the digestive tract to heal, then other foods are added back in with less risk of reaction. Keep us posted on your progress!
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