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@HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying...3 points
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Welcome to celiac.com, @jenniber! This disaccharide deficiency is a new one for me but after researching it, it is a thing. I am concerned that your GI doc skipped the normal protocol of first ordering blood tests for celiac disease and went straight to the scoping/biopsy. Since she, herself, initially believed you to have celiac disease and the...2 points
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Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)
knitty kitty and one other reacted to imdoodah331 for an article
I'll be adding my wheat based snack plates to the donation box.2 points -
Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)
knitty kitty and one other reacted to Flash1970 for an article
Great article. When I first saw these, I thought oh great another gluten product.2 points -
I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...2 points
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Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)
knitty kitty and one other reacted to DebJ14 for an article
And let's not forget that we have to beware of paper straws. Those strips of paper are often glued into straws with wheat paste. I ran into this on a cruise when they stopped using plastic straws. I was sick within 30 minutes of having a Mojito. The person taking care of my food allergies pulled a box from a bar and sure enough "Contains Wheat" was written...2 points -
Cross-Reactivity and Sequence Similarity Between Microbial Transglutaminase and Human Tissue Antigens
knitty kitty and one other reacted to Flash1970 for an article
Very interesting. If it proves to be accurate, could explain why people with celiac that follow gluten free diet still have symptoms.2 points -
Shingles - Could It Be Related to Gluten/ Celiac
knitty kitty and one other reacted to Russ H for a topic
I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles...2 points -
Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It
Scott Adams and one other reacted to Russ H for a topic
BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.2 points -
My only proof
knitty kitty and one other reacted to Mari for a topic
OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of...2 points -
Challenges eating gluten before biopsy
Scott Adams and one other reacted to Ginger38 for a topic
I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this. He couldn’t guarantee me a negative biopsy meant ...2 points -
Are Gluten-Free Processed Foods Making You Sick? (+Video)
LovintheGFlife and one other reacted to Scott Adams for an article
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Shingles - Could It Be Related to Gluten/ Celiac
knitty kitty and one other reacted to Flash1970 for a topic
Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain. That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral. It does lessen the symptoms. If it is in your eyes, see an ophthalmologist. They have...2 points -
Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It
Russ H and one other reacted to Scott Adams for a topic
In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin. In the early 1900s, refined white flour replaced whole grains, and people began...2 points -
Years ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came...2 points
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When I was diagnosed in 2016, I was told I had probably had it at least 30 years. I also have lactose intolerance and IBS, so I'm not certain which symptoms were which in the early stages. I have osteopenia because of it. I have issues with inflammation. I was only diagnosed with the IGA blood test. But there was such a marked difference when I went very...2 points
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Related issues
Scott Adams and one other reacted to Wheatwacked for a topic
Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped. It sounds more like you are suffering from malnutrition. Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here. Malnutrition...2 points -
Feel like I’m starting over
cristiana and one other reacted to Wheatwacked for a topic
Hello @Scatterbrain, Are you getting enough vitamins and minerals. Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D. By the way you should get your mom checked for celiac disease. You got it from your mom or dad. Some studies show that following a gluten-free diet can stabilize or improve symptoms...2 points -
jmartes, Thank you for sharing more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is...2 points
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Related issues
Scott Adams and one other reacted to Mari for a topic
Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...2 points -
Rectal pain
cristiana and one other reacted to Celiac and Salty for a topic
I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously...2 points -
It sounds like you have a very reasonable GI doctor, who diagnosed you based on family history and symptoms after eating gluten. I would consider you lucky! The other option would be to make yourself very sick by doing weeks of a gluten challenge prior to an endoscopy.2 points
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Celiac Disease and Skin Disorders: Exploring a Genetic Connection
Scott Adams reacted to Flash1970 for an article
This explains a lot. I had a severe leg injury when I was younger. I've had several surgeries. I was super careful, but always got cellulitis. Interesting article. Even when I was gluten free and had surgery, I still got cellulitis.1 point -
Stomach hurts with movement
Scott Adams reacted to DebJ14 for a topic
I am glad you are getting this checked out. Our son would get that kind of pain when he walked. He assumed it was gut. Boy, was he ever wrong. It was his heart. After a cath and triple bypass and a long recovery, he can walk 45 minutes on the treadmill with no pain.1 point -
What foods can trigger a response in people with gluten sensitivity?
Scott Adams reacted to trents for a topic
Welcome to the forum, @yellowstone! The most common ones seem to be dairy (casein), oats, eggs, soy and corn. "Formed" meat products (because of the "meat glue" used to hold their shape) is a problem for some. But it can be almost anything on an individual basis as your sensitivity to rice proves, since rice is uncommonly a "cross reactor" for celiacs. Some...1 point -
Supplements for those Diagnosed with Celiac Disease
Scott Adams reacted to knitty kitty for a topic
@Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...1 point -
Shingles - Could It Be Related to Gluten/ Celiac
Scott Adams reacted to Jmartes71 for a topic
Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing1 point -
Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn
Scott Adams reacted to chrisinpa for an article
It's like a double edged sword.......we do one thing to improve a problem and cause another problem. I'd like to think the ultimate cure might be something that would train or modify the body to prevent the damage that gluten causes.1 point -
Shingles - Could It Be Related to Gluten/ Celiac
Scott Adams reacted to Ginger38 for a topic
Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress ...1 point -
Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott. Have manufacturers ever said why that should be the case?1 point
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Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn
Scott Adams reacted to trents for an article
IMO, the information contained in this article is extremely important. Several medical science articles I have run across lately indicate that researchers are just beginning to uncover connections between gut health and diseases we would never have imagined as having a link. One example is Parkinson's. But this sentence caught my eye from this article...1 point -
Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn
Scott Adams reacted to Colorado Celiac for an article
I've been very concerned about this topic and work hard to add kefir and lots of whole grain and vegetable fibers to my diet. Proton pump inhibitors raised my fasting glucose. Everything affects everything. Thank you for the report.1 point -
Coeliac UK Research Conference 2025
Russ H reacted to Scott Adams for a topic
Thanks for sharing this!1 point -
Shingles - Could It Be Related to Gluten/ Celiac
Russ H reacted to Scott Adams for a topic
I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared....1 point -
Gluten free nuts
Scott Adams reacted to Aretaeus Cappadocia for a topic
I wanted to respond to your post as much for other people who read this later on (I'm not trying to contradict your experience or decisions) > Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs, are labeled "gluten free" in the Calif Costcos I've been in. If they are selling non-gluten-free in your store, I suggest talking to customer service to...1 point -
Basic metabolic panel results - more flags
knitty kitty reacted to Rejoicephd for a topic
Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources. I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.1 point -
My only proof
knitty kitty reacted to NanceK for a topic
Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get cal...1 point -
Fiber Supplement
knitty kitty reacted to Trish G for a topic
Wow, that's alot of info, Thanks!!!! I had my intake with Nutrionist where we went over basics and then will have follow up where we will talk about all the questions I've come up with (including the fiber question and so many more). I'll talk to her about the info you provided as well. Thanks again (newbie here 😀)1 point -
Gastrointestinal Beriberi
Scott Adams reacted to knitty kitty for a blog entry
Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal...1 point -
Top Brands of Gluten-Free Canned Chili
Scott Adams reacted to maryannlove for an article
Thank you Scott. Once again. Appreciate your knowledge and efficiency.1 point -
My only proof
Scott Adams reacted to NanceK for a topic
Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well. I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given...1 point -
Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)
Russ H reacted to Scott Adams for an article
Your story is a testament to the critical importance of an early and accurate diagnosis. It's tough to read about what you had to endure, including multiple surgeries and hospitalizations, all while the root cause—celiac disease—remained undetected for so long. Your experience highlights the consequences of medical ignorance surrounding this condition and...1 point -
Related issues
RMJ reacted to Scott Adams for a topic
I have to express some significant skepticism about the drclark cleansing programs you've mentioned. The claim that a specific, three-part parasite and organ cleanse is a universal solution for chronic health issues is a major red flag, as it oversimplifies the immense complexity of the human body and conditions like Celiac disease, which is an autoimmune...1 point -
Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)
Russ H reacted to Donna Moxley for an article
I was not a well child and on my own would stop eating certain foods when a stomachache occurred. As I got older, I began more and more anemic and ended up unable to hold food down at all. Once an endoscopy occurred, doctor said I had an obstruction in my stomach but nothing said about Celiac Disease. Dr. did stomach bypass surgery, removed a 1/3 of my...1 point -
Going for upper endoscopy today
Scott Adams reacted to Midwesteaglesfan for a topic
Back home after the scope. Dr said as soon as he got in there it was clear signs of celiacs. Must be a decent amount of damage. I don’t remember the post procedure conversation as the anesthesia was still wearing off but that’s what my wife says anyway. Still the biopsy results to come back but pretty definitive and now I get to learn to live gluten fre...1 point -
Guinness, can you drink it?
Scott Adams reacted to Russ H for a topic
There are several blogs where people test different beers using commercially available gluten testing kits. Guinness definitely tests positive for gluten. Something to be mindful of is that in some regions, foodstuffs containing less than 20 ppm gluten can be sold as 'gluten free'. However, due to the volume involved, a UK pint of beer at 19 ppm would contain...1 point -
Bee balm lipbalm not gluten free
Scott Adams reacted to marlene333 for a topic
To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.1 point -
I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.1 point
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still struggling with cravings
wellthatsfun reacted to Scott Adams for a topic
I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, ...1 point -
Which Turkey Brands are Gluten-Free?
Rejoicephd reacted to Scott Adams for an article
1 point
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By knitty kitty · Posted
@xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables. Not only are these high in fiber, they also are good sources of magnesium. Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation. Thiamine Vitamin B1 and magnesium work together. Thiamine in the form Benfotiamine has been shown to improve intestinal health. Thiamine and magnesium are important to gastrointestinal health and function. -
Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
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By knitty kitty · Posted
@EndlessSummer, You said you had an allergy to trees. People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits. Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease. Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet. Vitamin C and the eight B vitamins are needed to help the body clear histamine. Have you been checked for nutritional deficiencies? -
I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia. going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored?
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Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
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