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Latest Celiac Disease News & Research:
Everything posted by Kyalesyin
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ARCHIVED Do You Ever Start To Think...
Kyalesyin replied to Natlay's topic in Coping with Celiac Disease
For us it was only grudgingly admitted that there might be the 'outside chance' of a food intolerance after everything else had been ruled out, and by everything, I mean everything. Liver, thyroid, diabetes, hormones, anaemia, the works. She had a totally unecessary laparoscopy because it was more likely, in the eyes of the doctor, that the pain, bloating... -
ARCHIVED Do You Ever Start To Think...
Kyalesyin replied to Natlay's topic in Coping with Celiac Disease
I hear you with the 'once they have a label' thing, although in our case it was 'fussy young woman'. They took one look my wife's symptoms and knew somehow that it was 'all down to the hormones' and told us just to stop worrying. -
ARCHIVED Unexpected Positive Effects Of New gluten-free Eating Habits?
Kyalesyin replied to munchkinette's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The biggest change I've noticed in my partner is a sudden ability to cope a lot better. Little issues are no longer seeming like the end of the world, and her mood swings have calmed down a lot. We still have bad days where the world really really will end if a deadline isn't met or a lot hairbrush isn't found, but overall moods and such have been a lot... -
ARCHIVED Crippling Exhaustion/oversleeping
Kyalesyin replied to Kyalesyin's topic in Related Issues & Disorders
One of the local heath food shops makes a St. Johns Wort tea which has come highly recomended by the guy who runs the shop across the road. His wife gets SAD quite badly, and apparently she swears by it. The Euphytose sounds very similar to a tea my mother used to brew. I may ask her it its the same thing, and if it is get her to send some down to me... -
ARCHIVED Do You Ever Start To Think...
Kyalesyin replied to Natlay's topic in Coping with Celiac Disease
When my partner first started suffering we got told that it was just an anxiety disorder and painful periods and she should shut up and 'just ignore it'. Its probably worse for younger people, because the doctors treat us like kids and act like we can't possibly know whats going on in our own bodies. We just got told we were overreacting and they refused... -
ARCHIVED Crippling Exhaustion/oversleeping
Kyalesyin replied to Kyalesyin's topic in Related Issues & Disorders
Trust me bub, you're making sense. She had depression a lot during her teens, although that was mostly situational and mostly picked up when we moved. I did figure there would be some depression involved when she was diagnosed. Kinda feel like a bad partenr for admitting that fact that I go to peices when she's depressed. Caffeine isn't an issue... -
ARCHIVED Crippling Exhaustion/oversleeping
Kyalesyin replied to Kyalesyin's topic in Related Issues & Disorders
Went the route of thyroid/diabetes/liver malfunction first, and they all gave her a clean bill of health. Current thinking is that she's still in a recovery phase, as its gradually getting better. Had dairy intolerance tested, and that came back ok, so far. -
Any Plymothians out there? We've only recently moved to Plymouth and its damn lonely this far south.
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As far as snacks are convcerned, my wife has found that ricecakes and crispbreads with jam or cheese make for quite good snacks, and work quite well for breakfast too. If not, make up some mashed potato, mix into it any kind of spice mix you like [discovery foods do a fantastic cajun spice mix thats gluten free!], mash in some grated cheese and put it...
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ARCHIVED Fatigue, Nausea, Stomach Pain Related Issues?
Kyalesyin replied to vwincuw's topic in Parents, Friends and Loved Ones of Celiacs
Those were my wife's symptoms EXACTLY, although she also got the shakes so bad she couldn't drink a glass of water. We cut out wheat/gluten and they vanished. She had two peices of toast yesterday morning, and all those symptoms were back by yesterday evening. Midday today and they're receeding, mostly. Mayhap it just depends on the severity of the... -
ARCHIVED Diagnosis Trouble In The Uk
Kyalesyin replied to Kyalesyin's topic in Introduce Yourself / Share Stuff
Wow... I think I'm in love. Her birthday is in October... I may well have to take her to Paris. That is fantastic. Thank you so much. -
ARCHIVED What Are The Chances Of Our Kids Being Celiac?
Kyalesyin replied to Kyalesyin's topic in Parents, Friends and Loved Ones of Celiacs
Aye, I know that, and I'm not sure why she's suddenly dead set against it. If it was me, I'd be ok with it, but its her body. Being diagnosed with celiac in the first place was just about her worst-case scenario when we were crossing off the list of 'could be's when were were working out what was wrong. She can't imagine not being miserable at the moment... -
Proof the UK system sucks. Wheat/gluten has made my partner feel awful for ages. We went backwards and forwards to several doctors, and got all sorts of misdiagnosis- IBS, stress, anxiety, all the above. In the end, we paid out to get a private test done, which finally diagnosed her intolerances. Despite this, the doctors are STILL refusing to even...
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My wife is in university and takes lunch in. Usually its something like tuna and rice mixed up with spicy mayonase, but thats quickly getting dull. Has anyone got any cheap ideas as to what else she can take in? Preferably something quick to make up in the morning/evening before.
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ARCHIVED Kids Used To Be Told They Grew Out Of It - This Is Why...
Kyalesyin replied to Nantzie's topic in Parents, Friends and Loved Ones of Celiacs
Wow... this explains why my partner was ok up until a little while ago. She was a sickly child, but was fine apart from bad skin in her teens, and then went suddenly downhil just after she turned 19. Very interesting. Thanks for posting this! -
ARCHIVED What Are The Chances Of Our Kids Being Celiac?
Kyalesyin posted a topic in Parents, Friends and Loved Ones of Celiacs
My wife and I want to have children, sometime in the near future. Probably within the next 4/5 yeas. We're both female, but the plans were that she was going to carry them because I'm by all counts infertile thanks to some internal damage. The fact is, we're now neither of us sure that its a good idea, since I've heard in quite a few places it can be genetic... -
By the look of things, most of you here are insomniacs! My wife has the opposite problem. She doesn't do anything but sleep some days. I mean, literally, she sleeps through thunderstorms, the smoke alarm going off, our neighbours cats breeding... Especially before she was diagnosed, she'd have four of five days at a time where we just couldn't wake...
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ARCHIVED Isolation-first Timer Here
Kyalesyin replied to lovetolaugh's topic in Parents, Friends and Loved Ones of Celiacs
My wife is looking like she's headed the exact same way. We only found out six weeks ago- two weeks after our wedding, that she's Celiac. She's pretty damn devastated since we're both pizza fiends, and getting her to accept that this is a lifelong thing is hard. Patience is all you can really offer, and sometimes you gotta be cruel to be kind. As people... -
ARCHIVED Starting School
Kyalesyin replied to Sweetfudge's topic in Introduce Yourself / Share Stuff
If I were you, I'd take your own meals in. Its doesn't take much to boil up some rice the night before. My wife is in university, and she found that nobody actually knew what was in half the food on offer at the student eateries, and nobody could give her a positive yes/no. I'll no doubt have the same problem with seafood and caffeine when I go back to... -
So, heres how this works. I used to drink coffee like it was going out of fashion. Literally, buckets of the stuff while I was in my early/mid teens. I was a dancer, and sometimes it was the only way I could hold down the diets and the long days and stay awake. Four years on, the smell of the stuff makes me throw up and if I drink I have to lie down in...
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ARCHIVED Spouse Of Celiac
Kyalesyin replied to swittenauer's topic in Parents, Friends and Loved Ones of Celiacs
I've been married for 8 weeks... we found out six weeks ago that my wife is gluten intolerant. She'd been sufferng the shakes/crippling tiredness/skin rashes etc for a few years now, and she was pretty devastated to find out what she's got. She's only 20, and feels a little that 'life is over now' because of the sudden lack of choices. We used to live on...