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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Kyalesyin
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ARCHIVED Oh My An International Floor!
Kyalesyin replied to Tash-n-tail's topic in Introduce Yourself / Share Stuff
Uhhh..... w00t, I'm a minority? -
ARCHIVED Mood Swings?
Kyalesyin replied to madlinmom's topic in Parents, Friends and Loved Ones of Celiacs
My wife gets killer mood swings. They're even worse when the hormones are out to play too and she gets glutened by chocolate. Gets me tempted to borrow a riot shield. It does get better though. They only last a day or so. -
ARCHIVED Oh My An International Floor!
Kyalesyin replied to Tash-n-tail's topic in Introduce Yourself / Share Stuff
Something of a shortage of UKers on here. -
ARCHIVED New Study On Rice And Arsenic Poisoning
Kyalesyin replied to splitinheadache's topic in Coping with Celiac Disease
Seems these days you can't eat ANYTHING. Head, this is my desk. Desk, meet my head. I think you'll get along. *WHACK* -
ARCHIVED Do You Always Have The Same Symptoms When Glutened?
Kyalesyin replied to angel42's topic in Coping with Celiac Disease
My wife finds that it seems to vary depending on ammount. The sleepwalking toast got her a lot worse than the time I got crumbs in the butter. Brainfog and skin breakouts are her two though, no matter what else she gets, she gets those. -
All this just makes me glad to live in the UK. We're both students living on literally pennies, so I have no idea how we'd have funded the appendectomy I had last week. Sadly though, when its not an emergency [and sometimes, even when it is,] you get what you pay for. Everything is underfunded, so the service really is second hand and second best. I got...
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ARCHIVED Gluten Free Meals On Airplanes
Kyalesyin replied to Shelbythecat's topic in Coping with Celiac Disease
We flew with British Air two weeks ago, and the gluten free meal was listed on their website, after we booked. We just had to book, and then go back into our account and take care of the specifics. The meals were great though. -
ARCHIVED Do Other People's Comments Bother You?
Kyalesyin replied to NWLAX36Mom's topic in Coping with Celiac Disease
We've had some really dumb comments, the winner so far coming from my grandmother. The conversation went something like this: Me: Stef's got a gluten intolerance, so we can't have anything with wheat in it Grandma: I wouldn't worry about that dear. You can kill gluten by cooking it well. Me: ???? No, you really can't. She can't even have a tiny bit... -
All this just makes me glad that my wife was diagnosed in her 20's. I haven't told her about all of the risks yet, I don't want her to worry, but its definitley giving me good reasons to read the labels carefully.
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ARCHIVED Extreme Fatigue After Ingesting Gluten?
Kyalesyin replied to bigapplekathleen's topic in Coping with Celiac Disease
Charcoal huh? I'll see if I can get hold of some of that, my wife my find it useful. The tiredness hits her about 12 hours post-glutening. I've known her to sleep 16-18 hours before non stop and just keep going. Extreme fatigue is definitley a good description. -
ARCHIVED Gluten In Smarties/who Woulda Thought?
Kyalesyin replied to dally099's topic in Coping with Celiac Disease
I wish we'd known about the smarties thing sooner- we fell foul of that one while we were on holiday in Toronto. -
ARCHIVED New Here...hair Loss And Gluten Intolerant
Kyalesyin replied to smiley1nyc's topic in Coping with Celiac Disease
My wife's hair pretty much stopped growning and was falling out in places. Eight months on its now longer and thicker than mine, which is saying something... Take your vitamins, because a lack of vitamins can slow up hair growth and make it a poorer quality. -
ARCHIVED Touching Wheat Products?
Kyalesyin replied to isiskingdom's topic in Coping with Celiac Disease
My wife gets a bit of a rash if she handles flour, but regular bread isn't such a problem as long as she washes her hands. I think its a matter of how much you react. -
ARCHIVED 10 Things I Hate About Celiac
Kyalesyin replied to Mtndog's topic in Coping with Celiac Disease
And so many times, the answer here seems to be 'work'... -
ARCHIVED Attention Fellow Book Lovers
Kyalesyin replied to missy'smom's topic in Introduce Yourself / Share Stuff
I've enjoyed Jim Butcher's 'The Dresden Files' series lately. Not only keeps me guessing, but is one of those that can make me laugh publicly. I nearly fell off my seat in the subway right in the middle of Fool Moon. I'd really, really recomend them. -
ARCHIVED Employee Recognition/appreciation Day
Kyalesyin replied to StrongerToday's topic in Introduce Yourself / Share Stuff
Something they did while I was a mechanic worked quite well- We each got a pin badge made for us that said 'I am good at...' and then listed our specialist area, underneath the company logo and our name [they had trouble fitting my name on, but hey!]. I was only the apprentice, but apparently I was better at testing brake lines than I thought! Pin badges... -
ARCHIVED 10 Things I Hate About Celiac
Kyalesyin replied to Mtndog's topic in Coping with Celiac Disease
Sounds like my wife's doctors. She was a university student when she first got diagnosed, and you know what he asked, as soon as she sat down? He was literally a case of "What have you taken, how much have you had to drink and who have you slept with?" You'd think the wedding ring, the doting partner, and the 'sXe for life' shirt would have been at least... -
ARCHIVED 100% For Non-violent Reactors?
Kyalesyin replied to wusidi's topic in Coping with Celiac Disease
They are pretty good. I shipped a boxload of our UK version to a friend of mine when she got diagnosed with lukemia. Most of the other stuff we ate, like the peanut butter cups, we checked the label, but we have smarties here all the time... Thats gonna be the biggest thing if/when we emigrate. Re-checking stuff we take for granted here. -
ARCHIVED 100% For Non-violent Reactors?
Kyalesyin replied to wusidi's topic in Coping with Celiac Disease
Aye- chocolate with a sugar shell. We just grabbed them at a subway station because we were hungry... Luckily, the fever only lasted an hour. I was kicking myself. -
Nope, at least, I hope not. Its not quite the diabetic smell. At least, she smells nothing like my sisters and my grandparents did. They always smelled much sweeter. My chemistry proffessor suggested that its the smell of her stomach lining breaking down from the gluten damage, which is a chilling thought... But we had all the diabetes tests while they...
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We've actually held off having children a few years, because I know she'd feel guilty if our kids came out celiac. We did discuss having them selected, so that we can make sure the gene doesn't get passed on, but they'd be coming into a gluten-free house anyway... As it is, we're now tempted, rather than having our own kids, to adopt celiac kids, since...
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ARCHIVED 100% For Non-violent Reactors?
Kyalesyin replied to wusidi's topic in Coping with Celiac Disease
We were in canada at the time. The packet very clearly listed 'wheat flour' on the ingreedients. I was dumb enough not to look until after she'd had one. Minor fever, and I'm in more trouble with myself than I am with her, but its still a scary thing. -
ARCHIVED 10 Things I Hate About Celiac
Kyalesyin replied to Mtndog's topic in Coping with Celiac Disease
Hmmm.... we buy supermarket own-branded stuff. I'm hoping thats ok. It says 'pure from concentrate', so I'm hoping that means 'nothing but apples' or something similar, since all it ever lists on the box is apple juice and sometimes a stabilising agent, which my chemistry proffessor assured me was harmless. -
My wife glutened herself a few weeks back, and about two days after she did it, she developed the most foul case of halitosis. I mean, to the stage of me having to lie with my back to her [we normally sleep holding hands.] Trying to describe the smell is hard. Part dead roadkill, part super dark chocolate, part really bitter keytones. Kind of stale alcohol...
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Cross contamination is an issue. a beadcrumb was enough to do my wife in, and her boss has a habit of leaving cake crumbs all over her computer desk which have gltuened her in the past. The crumbs could well do it. I'm afraid I don't know about the soy, since I drink goats milk and take the pain!