Tay

Thank you for this post, and for the link to the article about gluten sensitivity as a neurological disease. After one year of my pestering him, my father was recently diagnosed with celiac disease. He is now in his 60s and was diagnosed with multiple sclerosis and type 1 diabetes in his 30s. I hope to convince him that despite his perceived lack of GI...

The normal range for B-12 is something like 300-800, however, my hematologist told me that she sees symptoms of B-12 deficiency when serum B-12 is in the 300s. I have peripheral neuropathy (tingling, surging, numbness) in my feet and legs. When I have had gluten, occasionally, my entire body will appear to surge with irritation, like each nerve is inflammed...

I am sorry to hear about your neurological problems, I know they are frustrating, and can be scarry. I am also interested in people's experience with neurological problems. I have zinging in my peripery (neruopathy) which seems to improve right after a dose of vitamin B12. I also think I have mild memory loss and confusion. Have you seen the recent study...

I have the same problem when glutened. I feel like there is a toxin in my body so that cytokines are produced and they are irritating so that I cannot relax. Lately, I have been getting up and drinking warm milk, eating a cookie and reading, then going back to sleep. This helps. Sorry and I too feel your pain! Taylor

I agree that this was a good piece! And I cried too. Thank goodness that people will get this message. I am excited to send it to my parents, who so far have been to stuborn to get tested. Taylor

I had a similar experience with the Outback near my house. I gave the waitress my gluten-free dining out card and ordered from the celiac menu and made sure to specify that my food be cooked and prepared in clean dishes, etc...I ordered a steak and potatoe with veg. When I got the dinner salad it had orange shredded cheese on it. I had been warned against...

Hi Alice: I am relatively new to the board, but I want to give you my perspective. I applaud you for self-educating and trying to find the truth about your continued GI problems. My recommendation is to try to seek a diagnosis using the medical system, if possible. This can be difficult, the average time to diagnosis is published as 11 years. However...

Since being diagnosed, I have become more sensitive to wine, especially white wine. This is sad as wine tasting is one of my favorite things to do. I can drink 2 glasses of red over the course of a night with dinner and usually have no problems. However, the other night I had a single glass of chardonay and had an elevated heart rate for the rest of the...

Hello: I live in Baltimore but my family has a smal house there. I go to Kennebunkport about 1x per month except in winter. It is great to get some restaurant recs. as I always want to eat out while there but have had some problems with reactions. - Thank you! The natural foods store in Kennebunk stocks some great gluten-free foods, inc. Kinnikinnick...

Can anyone recommend a B complex vitamin supplement that is gluten free? I have the intranasal vitamin B, but it will run out and I would like to take a supplement.

Hello Depression suffers: Yes, I have symptoms of depression that are very similar to those you all are describing. Before diagnosis I was anxious, slightly paranoid and neurotic about things like leaving the stove on or my cat getting out. I can best describe it as a lack of a feeling of well being. This was very new to me because I have always been...

I need to take calcium and iron supplements because I have osteopenia and low ferritin. I also take a multivitamin, in hopes of getting the other nutrients I need. However, I have recently read that supplements are a common source of hidden gluten and might be mislabeled. I got my supplements from whole foods and Wegmans, and the wegmans brand specifies...

Please send me the flour list. I tried my first cake last weekend and it was flat, no lift at all. Tasted yummy though!

I believe that peripheral neuropathy can also be caused by Vit. E deficiency.

Hello: I am new to this forum but am glad to hear a discussion about peripheral neuropathy. I had this, it was worst right about the time of diagnosis, and persisted for >6 months. My feet would pulse with electricity, almost like a buzzing sensation. Occasionally, I will get this in my face when extremely tired. Dr. Peter Green has a chapter on it...