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Marlene

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Everything posted by Marlene

  1. Marlene
    I have been on the gluten free diet since July 1, 2006 and casein free since September of 2006. My blood tests came back negative for Celiac and I never had the biopsy. I was diagnosed through Enterolab. While I did improve somewhat after cutting out gluten and dairy, I am not better. I did the whole scrutinize every label, make sure everything is gluten...
  2. Marlene
    So I posted my results on a Hemochromatosis forum and basically said "It's been nice knowing you, I don't have this, all the best" and today I got a response from a lady in Australia. Apparently over there my results would be considered towards the high end of normal and could be indicative of Hemochromatosis. Not only that, she told me that even if your...
  3. Marlene
    Nora, Sorry I don't know the answer to your question but there is lots of info on the internet that might be helpful. Hey all, I just got the results back from my doctor's office and apparently I do not have hemochromatosis. I feel like crying and am trying to hold myself together because I am at work. I just want to know what is wrong with me...
  4. Marlene
    Hi Loraleena, The tests required for this are serum iron, ferritin, and transferrin saturation. The last one is especially important. You can have normal ferritin or iron levels but your saturation level can be elevated. Or you can have low ferritin levels and still have iron overload. There is also genetic testing available but some doctors don't...
  5. Marlene
    Apparently you can be aneamic (sp?) and still have hemochromatosis. It's not necessarily the amount of iron you currently have in your blood but how much iron does your body store? There is an iron panel test consisting of 3 different components which needs to be done. My GP only asked for a regular serum iron test which according to her came back "normal...
  6. Marlene
    This especially applies to non-celiac gluten intolerance but I think it would be helpful for everyone to know. I am gluten/casein intolerant but not celiac. One of the many doctors I have seen over the last few years told me that either people are gluten intolerant because of Celiac or else there is another underlying cause. So I kept searching for...
  7. Marlene
    There is a very interesting article on www.CBC.ca under the Health section regarding Autism and the gluten free/ dairy free diet. It's so encouraging to see how scientists/ health communities are finally understanding and researching the connection between diet and health problems. My Mother went on a special diet years ago because of breast cancer and...
  8. Marlene
    Just wanted to add my 2 cents to this discussion. I have a bottle of L-Glutamine at home which indicates on the label that you should not take it if you have hepatic encephalopathy which is a liver condition. Since some of us have liver dysfunction of one sort or another, I would advise that anyone who wants to take a supplement should ask their health...
  9. Marlene
    Thanks for the replies. If anyone else has any experience with this, I would love to hear about it. I am starting to think that a dysfunctional liver might be why I have not healed as much as I'd like to on the Gluten-free Casein-free diet and why I continue to react to so many different things -- including smells. Ravenwoodglass, I am very sorry to...
  10. Marlene
    Hey, Does anyone know about liver dysfunction and how it can cause intolerances, sensitivies etc? Or does gluten intolerance cause liver dysfunction? Anyone have any experience or done any research in this area? Thanks, Marlene
  11. Marlene
    Thanks for the help guys!! Marlene
  12. Marlene
    I posted yesterday under other intolerances etc. My post was regarding liver dysfunction and multiple intolerances. I can't find the post anywhere. Can someone let me know where it's been moved to and or it wasn't posted for some reason -- computers can do weird things and maybe it's floating around in cyber space somewhere. Thanks!! Marlene
  13. Marlene
    I have been doing a lot of research into dysfunctional liver and have found out some rather interesting information. Personally, I wonder if this explains why some people take longer to heal on the gluten free diet and why some people never really seem to heal completely. Dysfunctional liver can cause a number of symptoms including: gall bladder disease...
  14. Marlene
    OK, now I feel like a real dummy. Not only did my last post end with "rolleyes" or something like but I checked a few posts down and found the information that I was looking for. Hee hee. So feel free to ignore last post. Thanks! Marlene
  15. Marlene
    I just read another post on this forum which mentions Joan's gluten free Greatbakes bagels. I tried to find something on the web but I can't. Is there a website to order Joan's products from? Are they available in Canada? I used to have these great whole wheat bagels for lunch almost every day before I went gluten free and I still miss them. Finding...
  16. Marlene
    Have you looked into liver dysfunction? Try googling it. Apparently if your liver is not functioning properly, you will have problems absorbing vitamins and nutrients - especially the fat soluble ones. Lots of people with gluten intolerance have dysfunctional livers. Unfortunately, routine liver tests won't always show that there is a problem. Hope...
  17. Marlene
    Just wanted to share with you my experiences regarding Homeopathy. I went gluten/casein free last July 1 after testing positive for gluten/casein sensitivities with Enterolab. I had also had blood tests done for Celiac before I went gluten free and they came back negative. My gene testing did not show any genes for Celiac so that makes me non-Celiac gluten...
  18. Marlene
    Oh, I can soooo relate to all of this. I got major diarrhea once at a special dinner from my husband's work, plus once I didn't make it to a bathroom after eating out for our anniversary and ever since then, I get this anxious feeling about eating in restaurants. Now that I am gluten/casein free, we never eat in restaurants. If anything, we'll pick up...
  19. Marlene
    Hey, I have been gluten/casein free for 9 1/2 months. While I have seen major improvement in some areas, I continue to struggle with upper abdominal issues. I get this upper abdominal pain sometimes accompanied by nausea. The pain can last anywhere from a few hours to a few days or even a week. Spicy foods, acidic foods, caffeine, chocolate, and stress...
  20. Marlene
    I don't know about you, but I find this diet can be so isolating. The girls from my office just went out for lunch and did not even bother to ask me if I wanted to go -- I probably wouldn't have been able to anyways since I think they are going for pizza. I just find that at social functions (which always seem to revolve around food) I end up having to...
  21. Marlene
    Yes, there are other causes of leaky gut. This is why I am wondering which comes first. If something else causes the leaky gut which in turn causes food intolerances (gluten, casein specifically), does this mean that once the gut heals the individual can start eating those foods again? I guess unless you know for sure that it wasn't gluten causing the...
  22. Marlene
    I have been doing quite a bit of research on Leaky gut syndrome. One question I have not found an answer to yet is this -- Does leaky gut cause intolerances due to food etc passing through the intestinal wall or do intolerances cause the gut to become leaky through inflammation? I guess this question would apply more to those of us who are non-celiac...
  23. Marlene
    First I just want to say that you must be one of the nicest friends anyone could have!! That is so sweet that you are trying to help your friend. I know how devastated I felt when I found out I could no longer have gluten and totally understand what your friend is going through. And then about a month later, I found out I can't have dairy either. I used...
  24. Marlene
    Hi there, I just read your post and wanted to encourage you. I went gluten free July 1 and casein free in September. After 6 days I stopped having diarrhea after almost every meal the way it had been since the spring. However, I would still get bouts of D. It has been a roller coaster. I have good weeks, bad weeks, but not terrible weeks like I...
  25. Marlene
    Hi Curt, I know everyone is different but it helps to hear other people's experiences. I started the gluten free diet on July 1st and limited my dairy. After about 6 days, the diahrrea stopped. Then about a week later, I would have another bout of D. I went crazy, trying to figure out what I had eaten that could cause this. In September I went completely...
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