Kate333
-
Posts
262 -
Joined
-
Last visited
-
Days Won
3
Kate333's Achievements
-
Scott Adams reacted to a post in a topic:
Health Anxiety
-
I can SO relate! Diagnosed with celiac disease in late 2019. Went on strict gluten-free diet. Finally got my blood tests to normal range. But with all that has happened in the world (Covid fears) and my life (job loss and inability to find any work since 2022, dwindling life savings while I search), my physical and mental health has also been badly affected...
-
Beverage reacted to a post in a topic:
Do I Have Celiac And Best Test
-
Dtoc reacted to a post in a topic:
Pain - referred gastric or something else?
-
Can stress make celiac symptoms worse?
Kate333 replied to grossi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi grossi. Your comment about feeling better during summer vacation and low stress is very revealing. Fatigue and brain fog are among the many classic physical symptoms of chronic stress and depression (celiac disease issues aside). Chronic sleep problems and poor diet also affect the body and brain functions, so you might want to assess whether... -
GodsGal reacted to a post in a topic:
proud of my healing
-
cnazrael89 reacted to a post in a topic:
proud of my healing
-
proud of my healing
Kate333 replied to MADMOM's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Congrats, Madmom!! You are right to be proud of yourself!! Adopting and maintaining a strict gluten-free diet (including avoiding the risk of cross-contamination) is one of the biggest challenges you will likely encounter in life, esp. in a culture which promotes almost 100% packaged, processed, unhealthy food. BTW, I also had TTG antibody levels... -
Hi Tyler. Severe chronic depression/anxiety alone--aside from the issues of celiac disease, gluten sensitivity and/or vitamin deficiency--can cause the physical symptoms you described. And from your comments about the many recent losses in your life, plus the stress of the ongoing pandemic, it's no wonder you and your body are feeling so crummy! It...
-
Scott Adams reacted to a post in a topic:
Airbourne Gluten
-
Honestly, when I go grocery shopping, I am far more worried about inhaling airborne Covid (or cold or flu) particles/droplets than airborne G residue or particles. That said, I do tend to avoid packaged bread aisles, mostly because I SOOOO MISS the smell--and taste--of pumpernickel and cinnamon raisin bread and seeing those items (all while knowing I can...
-
Oldturdle reacted to a post in a topic:
How often do you test antibiodies?
-
yuluyouyue reacted to a post in a topic:
How often do you test antibiodies?
-
How often do you test antibiodies?
Kate333 replied to yuluyouyue's topic in Coping with Celiac Disease
I was diagnosed in late 2019. At the time my first TTG/IgA test, the number was 224 (at its highest). After 2 years on STRICT gluten-free diet, the numbers finally reached normal range in May 2022 (13). The last TTG reading was even lower normal (around 3), so I am celebrating, and hoping the TTG stays normal as I continue to maintain a STRICT gluten-free... -
Confused and a little scared...
Kate333 replied to lrmilas's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Get the labs (TTG/IgA) and endoscopy your GI recommends. That is the only way to confirm for sure whether (or not) you have celiac disease and your symptoms are due to ongoing G exposure for the last 2 years. I would start with that before speculating or considering other causes for your symptoms. And I would not worry about the result BEFORE you get... -
Scott Adams reacted to a post in a topic:
mental health
-
Do I Have Celiac And Best Test
Kate333 replied to WhatsTheDealiac's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
They ONLY way to get a definitive celiac disease diagnosis is via TTG/IgA blood test and endoscopy. Otherwise, you are just asking non-medical laypeople to speculate. I wouldn't rely on that if I were you. -
Adhdgi, I hope it helps to realize you are not alone in your suffering. So many others have struggled with lifelong or more recent depression and/or anxiety, sometimes related to celiac disease, often not. And those issues have understandably been magnified by this awful pandemic. If you do have a celiac disease diagnosis, ask your GP or GI doc to...
-
Utterly confused
Kate333 replied to Luls's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Cristiana, Aside from G exposure/celiac disease, what other medical conditions can affect and/or result in positive TTG blood test results? Just wondering. -
I recommend trying acupuncture. I had really terrible "tennis elbow" tendonitis several years ago. Tried PT, braces, ice, meds, steroid shots. Nothing really worked. After all that failed, ortho was really gung-ho about surgery. Elbow is such a complex joint I wanted to at least try AC before I let him cut me up. Although I was squeamish about needles...
-
Yes...you need to keep eating G before your endoscopy to ensure its accuracy.
-
Don't be discouraged that your blood test level isn't yet in the normal range after less than 2 years of a gluten-free diet, esp. if your highest numbers at time of diagnosis were well over 100. Many people (esp. older folks) take a bit longer to heal and flush the G antibodies out their systems. Just keep in mind the trend (the numbers should show consistent...
-
Confused by test results
Kate333 replied to Ned Scott's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just call the PCP back and request the detailed test results again. If that gets nowhere, follow up and schedule a gastro consult and ask the GI for an updated TTG/IgA blood test and to share the detailed results with you. If the GI won't do that, then get a home TTG/IgA test kit. They cost $100 in the US and the results are very detailed. But you MUST...