
Tasha2004
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Everything posted by Tasha2004
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ARCHIVED Got Careless - Paying The Price
Tasha2004 replied to kitgordon's topic in Coping with Celiac Disease
What kind of probiotics do you all take? -
ARCHIVED Got Careless - Paying The Price
Tasha2004 replied to kitgordon's topic in Coping with Celiac Disease
Thanks all. I'm pretty sure she just had vit. d levels checked out. She's been diagnosed over 20 years btw. I am getting her one of those lights this year for the holidays or her bday. She will be 86 in two weeks. -
ARCHIVED Got Careless - Paying The Price
Tasha2004 replied to kitgordon's topic in Coping with Celiac Disease
We're a week out though. Last Sunday night is when she ate most of the meal, but she reminded me she took some home and ate it last Monday. Is there anything she can do now to remedy things or just has to ride it out? And she is on a tiny dose of meds for depression, which she keeps telling the doctor she doesnt need (but she does). Things get confusing... -
ARCHIVED Got Careless - Paying The Price
Tasha2004 replied to kitgordon's topic in Coping with Celiac Disease
Can you all tell me what you do in the event you consume gluten? My elderly Mom apparently encountered some tainted food last week when we went out to dinner. I was skeptical of the restaurant and the wait staff was pretty ignorant. I suspect they put her chicken on bread and yanked the bread, or cooked alongside something with flour. So now Mom is not... -
ARCHIVED Mom Thinks She Ate Something Bad
Tasha2004 replied to Tasha2004's topic in Coping with Celiac Disease
Thanks for the replies. I think she is doing better. She's been Celiac for many many years, and this hasnt happened very often. We just didnt read carefully on the label. The nuts were not on the fruit, but she did almost eat one. -
My 84 yr old Mom accidentally ate a walnut from the McDonalds fruit salad. She actually may not have even eaten the supposedly coated walnut, but spit it out (she's not sure). That was last Wednesday and she is still complaining of problems today. Mom tends to do things like take too many supplements, which also affect her tummy, and it's kind of hard...
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We'll see if the doctor will order it. Two years ago, the same doctor told me that a diagnosed Celiac never needed to be checked again. But, one of the Celiac authors said otherwise.
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Every single blood test in the panel for someone diagnosed over 20 years?????????? Just want to make sure nothing is slipping by......
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Need an answer on this pretty quick. Mom has a doctor's appointment tomorrow. I wrote about her in another post. She's 83, and having a few tummy woes and edema. Can anyone let me know if they still have testing done for the possibility of gluten slipping by in the diet even years from diagnosis? If so, what test (Gliadin IgA, ttg, IgG?). Thanks for...
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ARCHIVED Suggestions For Elderly Mom
Tasha2004 replied to Tasha2004's topic in Coping with Celiac Disease
The Edema is in both legs and both knees. Do we have any documentation anywhere that says this is a possible Celiac related problem? Magnesium levels have recently been checked and things are fine. -
ARCHIVED Suggestions For Elderly Mom
Tasha2004 replied to Tasha2004's topic in Coping with Celiac Disease
Well, her description of how she says she feels, is the same as in the past when she did accidentally ingest some gluten. And she isnt opposed to having it checked. Her meds consist only of 2 blood pressure meds, that's it plus the antidepressant. She did have to go into the hospital last time this happened, and we determined she had been buying lots of... -
ARCHIVED Suggestions For Elderly Mom
Tasha2004 replied to Tasha2004's topic in Coping with Celiac Disease
I kinda sorta dont think so. Because as I said, last time she had the same complaint, they gave her every single test in the book including MRI's, CT Scans, Abdominal dopplar, Ultrasounds and blood screening for cancer. Once she was on anti-dpressants, all her tummy woes and other fears went away. She developed symptoms after a cancer doctor visited her... -
Haven't checked in since the last time this happened, but here goes. My Mom is 83. She has had Celiac for over 20 years. She does really well keeping gluten free, but, now and then I think maybe she slips up a bit (with things like vitamin supplements, and restaurants she isnt sure about). Two years ago she went through some depression, which led to her...
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ARCHIVED Help For Hospitalized Celiac--urgently Needed
Tasha2004 replied to Tasha2004's topic in Coping with Celiac Disease
Well, even though she mAy be out tomorrow, Mom isnt doing well. She had tummy trouble for about two months and lost weight. Now they say she was taking too many supplements and gave herself pancreatitis. They feel that will go away and we threw away the pills. But she is mentally a bit off because she is afraid of food, loses weight, has trouble finding... -
ARCHIVED Help For Hospitalized Celiac--urgently Needed
Tasha2004 replied to Tasha2004's topic in Coping with Celiac Disease
I was just called to a meeting with the doctor and several administrators plus the lady who called about the nursing home. Clearly they were trying to cover tracks up. What they said was it is protoco to assess someone in my Mom's condition and determine if they need skilled nursing when they are released from the facility. However, I had to sit there... -
ARCHIVED Help For Hospitalized Celiac--urgently Needed
Tasha2004 replied to Tasha2004's topic in Coping with Celiac Disease
You oughta hear what happened yesterday to her. They called me, and discussed with her that she needed to go out of the hosptial to a nursing home for awhile. That was totally inaccurate, as they actually told the wrong family. We were all upsetover that, and then this happens with the food. Sheesh. -
ARCHIVED Help For Hospitalized Celiac--urgently Needed
Tasha2004 replied to Tasha2004's topic in Coping with Celiac Disease
That's the problem. The dietician in the hospital has been met with on several occasions. Still no luck. -
ARCHIVED Help For Hospitalized Celiac--urgently Needed
Tasha2004 posted a topic in Coping with Celiac Disease
All: My 81 yr old Mom is in the hospital with pancreatitis and other issues. She really has lost weight and they want her to eat a lot of food. Problem is, they keep sending up food with breading and wheat etc. She cant eat most of what they send up to her room, and is ending up without food. What can we do? -
Been to the gastro. with my Mom again today. Mom has lost quite a bit of weight, but every test has been just fine as far as blood work, biopsy, colonoscopy etc. She has had them all. We need to get Mom to eating five meals a day. She is currently having issues with fats, and roughage and not eating hardly anything because she is fearful. She does...
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ARCHIVED Refractory Sprue
Tasha2004 replied to Tasha2004's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Karen: I dont know, they did the endoscopy the same day as the colonoscopy so....... But to tell you the truth, she tells them she had diarrhea and she tells me loose stools, but then she threw in so many unrelated conditions that we figured depression (ie back pain, leg sore, etc etc) -
ARCHIVED Refractory Sprue
Tasha2004 replied to Tasha2004's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I think she was tested for those. We just got off the phone with the Gastro's assistant. It is looking like depression is causing her tummy problems. They felt it was highly possible and it seems like all her symptoms really match up. But yes she is a senior and they do pass over these people quite often. This time, I think we are on to something. We... -
ARCHIVED Refractory Sprue
Tasha2004 replied to Tasha2004's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
She had every abdominal test and blood test known to man, I think! CT scan, Abdominal dopplar, Endoscopy, Colonoscopy, blood tests, biopsy, etc etc. They didnt miss a trick! -
ARCHIVED Refractory Sprue
Tasha2004 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My Mom is still having problems with loss of weight, and she says loose stools. She has been gluten-free over 20 years, and is 81. Recently she had evey test in the world, and is just fine, but did trace a problem to a BP med which was giving her tummy trouble. Now she still insists she doesnt feel well. We are seeing the gastro one more time, but this... -
ARCHIVED Celiac Mom Just Not Feeling Well
Tasha2004 replied to Tasha2004's topic in Coping with Celiac Disease
Update: I've managed to get my Mom to start looking over her foods and supplements. First of all, she noted wheat possibly in Salada Green Tea in the form of malto-dextrin? Second, she is questioning some things in her other supplements and vitamins. She is questioning Citrical right now--but I dont necessarily see anything in there. Her B vitamin... -
ARCHIVED Celiac Mom Just Not Feeling Well
Tasha2004 replied to Tasha2004's topic in Coping with Celiac Disease
Would you also think there is a need to take or look into taking digestive enzymes? This is all really tricky. Mom is usually really really on top of things and very active, but has lost weight since the bad BP med and is tired a lot. It's so hard to tell what is a mental thing (aging, lonliness etc) and what might be real. I managed to get her a phone...