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Tasha2004

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Everything posted by Tasha2004

  1. Tasha2004

    ARCHIVED Cannot Get Help

    Tasha2004 posted a topic in Doctors

    Worthless doctors. I posted this in another section. I went with my Celiac Mom (80 yrs old, Celiac for 20) to the doctor. Mom has all the complaints which go with accidentally ingesting gluten. The doctor didnt believe me that a blood test could be done to see if the diet was working or things were getting past it. She just didnt. The Gastro cannot...
  2. Tasha2004
    Andrea it's a good idea, but we dont have the money and today I had a hard time getting her to pay 75 cents for a can of green beans..............eeesh.
  3. Tasha2004
    We're really trying to think of everything. My Mom had bought a weird Chinese tea, she takes tons of vitamins and we are even questioning the contents of a microwave bag you heat up for muscle pain. We're looking hard...... Now we're having a rough time getting an appointment with the gastro.
  4. Tasha2004
    Just returned from a trip to the primary care dr. with my Mom. Mom has all the signs that gluten is creeping in somewhere after 20 years on the diet. The doctor said there is no way to test to see if this is happening, despite my having articles which said otherwise. I suggested we move Mom back to a gastro, as she had not seen one for awhile anyway. I...
  5. Tasha2004
    My 80 yr old Mom has been diagnosed about 30 years. Recently, maybe last three weeks, she has had loose stools and or diarrhea. She has an appoinment on Monday. Her primary care doctor refused to run any tests to make sure no gluten is getting through, that was when Mom asked her just to check on it (Mom had no problems at that time.) I am having Mom...
  6. Tasha2004
    Hi All: My Mom is 80, had Celiac for a long time now. I'm a little worried about her. She has had loose stools on and off for three weeks. She thought it was a tummy bug, now I dont know if it is. I suggested she get a blood test. I also know someone here had suggested getting tested to make sure no gluten is getting in from anywhere. Would that be...
  7. Tasha2004
    Trying to get my Mom over a bad cold before her 80'th birthday next week! She doesnt know what kind of cough meds she can take (she also has high blood pressure). Is there a Robitussin product she can have? She's worried about the flavorings in the product.
  8. Tasha2004
    But also take a list of other autoimmune conditions, or read up in advance. They tried to give me antidepressants and I had Thyroid disease (Graves.) You dont just need a Celiac panel, you need a whole blood workup all the way around! Look up Mary Shomon's site on Living Well with Autoimmune disease and look over some of the condtions, and then try to offer...
  9. Tasha2004
  10. Tasha2004
    I'm on this track now, except only one Gliadin test is elevated and I dont feel anything different if I eat gluten. In your case, I would just do it. If you need a firm confirmation you can go to a private lab and have the stool tests. They told me one elevated gliadin blood test indicates Celiac may develop, but not necessarily. However, if you are already...
  11. Tasha2004
    I went through this yesterday with the rheumatologist. Test results normal, therefore nothing else to do and no reason for me to come back. I say, get your test results out of them, and then tell them what you are doing and how you are feeling better. I intend to do this with this guy, if I can get some kind of different help somewhere else. There is...
  12. Tasha2004
    I had a rheumatology panel run to make sure I didnt have Lupus, etc. Been feeling stiff and sore, but with thyroid disease and a few other condtions it was just a precaution. Somewhere in there there ended up being an IgA and IgG with the same numbers I had on my Celiac blood test. In exactly the same way, the IgA was elevated and the IgG was, if anything...
  13. Tasha2004
    This sounds just like me, except for the allergy part. I wonder if you have checked into fibromyalgia or other autoimmune illnesses because they can cause the same kinds of things. Also I gather they checked your thyroid when they did your blood test? I go through the very same things, but my Celiac situation remains inconclusive for now. I do know I...
  14. Tasha2004
    See? And then when I panic, someone calls me and tells me there is a stomach virus going around town and they feel the same way I do! My problem is, I go through this every winter but I dont go through it all year long. No anemia showing up, no other problems except a host of autoimmune things. But this call from my friend indicates to me that I do have...
  15. Tasha2004
    Have not checked in here for awhile but due to another flare-up of problems I am again doing research. I have an elevated Ig A only. Everything else has been negative (including Ttg and Endomysial and IgG.) Celiac Mom, Type I diabetes, thyroid disease and newly diagnosed Hep C (how lucky I am to have all of these.) I cannot afford all of Dr. Fine's tests...
  16. Tasha2004
    My IgA keeps going up but everything else is normal. They say it is Gluten Intolerance/Latent Celiac. I have not yet gone gluten-free, but I have a feeling it's coming. Enterolab says a high IgA means Celiac.
  17. Tasha2004
    OK, then maybe the others are right and you should try Enterolab? I do hope you figure it out soon!
  18. Tasha2004
    Could it also be fibromyalgia or thyroid trouble? these things all run so much together/.
  19. Tasha2004
    Burdee: Thanks for that explantion. What I dont get, most people with celiac disease have high IgG. Many have low IgA. I have IgA only, and I have not found much literature at all to tell me what that really means. Dr. Fine said Gluten sensitivity only........
  20. Tasha2004
    I have high Gliadin IgA not IgG. I didnt want a biopsy, since I figured nothing was going to be there anyway. My Ttg was also totally negative, but that is the one test they have decided to run every few years to make sure I dont have full blown Celiac. Right now the most information I can gather is that it could be developing. Maybe someone with more...
  21. Tasha2004
    From my perspective (and I have only a postive IgA), if you have a postive Ttg then that is a pretty accurate sign of Celiac. I think the IgG and IgA are less predictive. I would say go for the diet and see how it goes!
  22. Tasha2004
    Whic tests came in positive? I know if you post them here, someone will jump in with an answer!
  23. Tasha2004
    Carol: Problem is, I dont really have any symptoms. Only the slight tummy rumblings. True enough, some people go gluten-free and just feel better but it sure requires a big commitment to go on it.
  24. Tasha2004
    He said elevated Ig A means a Sensitivity (which I understand can mean it either will develop into full blown disease, or it might not.) My doctor wants to go with a blood test every few years which is fine, but of course it wont show anything until the damage is done. It sure gets confusing. I dont have the money for the whole deal, but can afford maybe...
  25. Tasha2004
    Carol: Thanks. I have tested positive on the IgA only, nothing else. I have thyroid disease, diabetes and a Mom with Celiac. I'd like to see if there is a gluten problem starting. Dr.Fine said the elevated IgA showed sensitivity (but I know some people have low IgA so it gets confusing.) I dont really have symptoms that are severe, so I just dont know...
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