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vampella

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Latest Celiac Disease News & Research:

Everything posted by vampella

  1. vampella
    So Emmah went in for her regular height and weight this week and she's doing great. She's been gluten free for 10 months now and hasn't been sick a day since(aside from my screw ups) She's back on the growth charts, following her own curve and is between the 10th & 25th %. She's almost 4.5 now and she's 30 lbs and 38 inchs tall...yay Emmah Anyway...
  2. vampella
    www.kyledine.com and www.Lame Advertisement/kylepnut
  3. vampella
    I don't know if it is a symptom but my daughter didn't get her first tooth until she was 17 months.
  4. vampella
    my daughter was delayed in both weight and height.
  5. vampella
    I think frank is a great person. Your very lucky to have someone that is willing to do that for your family I'm totally freaking out about easter. This is my first and I'm scared. I don't know what to do, I think DH & I are going to thestore to call all the companies tonight.
  6. vampella
    What first comes to mind for me is, it's only been 5 days, give it time. Secondly, have you called and checked to make sure there is no gluten(wheat, rye, oat & barley) in anything you are giving. They don't always lable these things. this I learned about a month ago when we went to buy a chilken and rice soup and aftercalling because the lable...
  7. vampella
    I agree fully with Carla. I'm on the mixed feeling fence. I did put out money for the gene test, even though my daughters ped say's they don't know all the genes that cause celiacs and such, I did it for me but then, I still had questions. MY daughter 4 yrs doesn't have an "official" dx BUT we do KNOW 100% she has celiac disease. She was ill and hasn't...
  8. vampella
    The best thing is to call when you are at the store to buy. We use kids colgate 2 in 1 toothpaste & mouth wash bubble gum flav. , it's gluten-free. It's the only one I've asked about. we're in canada also.
  9. vampella
    Oh yes there was more.
  10. vampella
    I think what the ped meant by false negitives was that there is a chance for lab error, missing a gene.
  11. vampella
    here is what it read "Although you do not possess the main genes predisposing to celiac sprue (HLA-DQ2 or HLA-DQ8), HLA gene analysis reveals that you have two copies of a gene that predisposes to gluten sensitivity (DQ1 or DQ3 not subtype 8). Having two copies of a gluten sensitive gene, means that each of your parents, and all of your children (if you...
  12. vampella
    We just do one cake, we just had our first gluten-free birthday last month and all went well. The key for the children that aren't gluten-free is lots of icing, thats the best part anyway! I would also recommend you try one at home first, the first 2 I made were not so good, a ctually, they were just plain bad LOL. we used Celimix chocolate cake mix...
  13. vampella
    No flamming, you did what you had to do. maybe tell the mom once she calms down, if she'd like to bring her child back, she's welcome to but she has to work with you, not against you?? Sounds like you had a bad afternoon, I'm sorry!
  14. vampella
    No, they don't & thats great because not everyone has official dx's. The tests for celiac's aren't very good in children & a lot of people are diagnosed by trying the diet. No school should ask for proof IMO, I highly doubt that anyone is going to lie about their child being ill and needing and epi-pen or special diet.
  15. vampella
    I agree, I think mom is being totally rude . I also agree with her getting glutened at home. I think you should go to that meeting, I think you should take from it all you can but remember doctors don't know much about this!! They don't have to live it, they know the medical*sometimes* and that's it. MOM should have educated you yes, when I took...
  16. vampella
    I have to say this and others can flame me if they like. , you have a young child in your care that needs you to be an expert on celiac's . I kinda feel as if you are coming off a tad rude and put out by having to research this, *remembering I've had problems with my child's preschool* so if I am reading into this just ignore me. however the mother also...
  17. vampella
    So enterolabs did get the tests yesterday. yay. Does it really take the 2-3 weeks to get the results???? it's just too darn long to wait.
  18. vampella
    She also said in her letter that she was against the gluten-free diet LOL I just laughed and said good for her.
  19. vampella
    Her enterolab gene test should be arriving at the lab by 10:30 this morning. Wish us luck. Also someone wanted to know how much the shipping cost me to send it back, it's was only 33.81 for over night from Manitoba Canada to Dallas TX. We had her monthly weight and height again yesterday and she's gained another 1/2 lb. She's now 28 lbs and 37 ...
  20. vampella
    Just remember that reading lables is GREAT but you have to call thhe companies too. I found a soup that the ingreds said was gluten free but upon calling the company it was not. So just be careful. Good luck
  21. vampella
    <---------- what do you think? It's a purse. I hope it tastes as good as it looks. I just can't believe my youngest is 4 already!
  22. vampella
    I never though about horses, my uncle owns a farm and we go out all the time and feed, ride and clean stalls. gloves and mask it is I guess.
  23. vampella
    I might have to give into my husbands whining and go on a trip to the US for spring break for cereal LOL
  24. vampella
    so Emmahs tests from enterolab are in the mail. I cant wait to get them. and then the results.
  25. vampella
    That's so great, congrats.
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