
Noel1965
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Everything posted by Noel1965
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ARCHIVED Habba Syndrome As Well As Celiac Disease?
Noel1965 posted a topic in Coping with Celiac Disease
Hi all! I have had the big D. for 4 years straight (not one day off)3-10 times daily. I was diagnosed with celiac and have been gluten free for 3 1/2 years.....and still it continues. Has anyone had the same and asked their doctor about Habba Syndrome.....? Or had their doctor think of Habba? -
I was diagnosed with celiac disease 2 years ago and have been glutenfree since then - I do not feel any better today than I did then - maybe even worse. New symptoms - For the past 2 months I have been having one eye nearly close on me - I have no control of it. It droops for just a minute or two. I do not think this is related to celiac disease - what...
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I was diagnosed with celiac disease based on a biopsy. I have seen some posts here about enterolab - and they included stats on things other than gladian(SP?). An example is casein - so enterolab can tell you whether of not you have problems with things other than the gladian? If this is the case, why wouldn't a doctor tell you to get this done when symptoms...
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ARCHIVED Celiac For Almost 2 Years - Now, New Health Problems
Noel1965 replied to elfkin's topic in Parents, Friends and Loved Ones of Celiacs
Hi Elfkin - Firstly, I am sorry to hear about your son's health concerns. It is difficult enough to go through the frustrations of our own health concerns but I know first hand that it is far more difficult when it is your child. I am unsure if I should be telling you about my son's conditions or not - I do not want to cause you undue stress. Until your... -
Thanks for all of your feedback and I knew when writing my post some people would not understand why I would do this to myself - and that is okay - I see your point. My point in intentionally having some gluten yesterday was to see if it is in fact gluten that is making me sick - as in my symptoms. I know that it destroys my intestines/villi and that is...
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Thank you all for your input.....I guess I should try an elimination diet to see if I feel better without everything but "whole foods". I just don't know if I can do it - I love food too much!!! I was diagnosed with celiac 14 months ago after blood test and colonoscopy and endoscopy. My doctors say there is something else but never make any suggestions...
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Okay - I have been glutenfree for 14 months and I have not felt any better. For some time now I have thought about eating something with gluten intentionally to see what would happen. Yesterday was the day I finally tried it. I have felt the same as always - my symptoms the same but no worse. How does this make sense? There will not be another day of...
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Thank you all for sharing your experiences. My gut tells me that it is related to eating and not smoking and it is hard when a doctor doesn't really listen. (I am going to attempt to quit smoking anyway). You have all validated my thoughts so I thank you so much......Noel
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Does anyone have their breathing change after they eat - mine gets much shallower and rapid. My doctor has told me it is because I smoke.....granted, I should quit smoking but if this is the case I have gotten very out of shape in just one year - doesn't seem right to me.
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ARCHIVED Celiac & Lymphocytic Colitis
Noel1965 replied to standyk's topic in Coping with Celiac Disease
Hi all - Is microscopic colitis genetic? I have celiac disease and yet I have not gotten any better after 1 1/2 years gluten free. The doctors keep telling me there is something more yet are doing nothing about it (I need to find a new doctor!) My son had colitis......thus my question whether or not it is genetic.....thanks -
ARCHIVED Do Anyones Symptoms Go In Cycles?
Noel1965 replied to LyndaCanada's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Lynda - I can relate Lynda.....I finally got to see my specialist again last week after being told one year ago that I had celiac disease. For an entire year I stayed gluten free and was somewhat obsessive about cross contamination. My symptoms have not improved at all. I have been very frustrated with myself wondering what I am doing wrong and what... -
ARCHIVED Does Anyone Make Gluten Free Cornflakes?
Noel1965 replied to kbabe1968's topic in Gluten-Free Recipes & Cooking Tips
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Hi Everyone! I very rarely eat out since diagnoses however on occasion I will for the social aspect. I usually have a salad with oil and vinegar. The other day I ordered my salad explaining I only wanted vegetables and some cheese (I can handle cheese). About half way through eating this I noticed that the cheese looked a little "white". A memory from...
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Thanks for the input jmengert and cassidy.....I will worry no longer!
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Thanks Cassidy - I am very careful and do all the things you recommended. I was more wondering about the air in the oven as things are being cooked .....crazy? Can the gluten transfer onto my food?
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Hi Everyone - Looking for opinions......do you think it would be safe to cook breaded chicken fingers for family on one cookie sheet and fish for me (gluten free) on another cookie sheet in the oven at the same time? I just assumed this was okay but thought I better check it out....thanks!
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I may have goofed! After reading the ingredients on Knorr tomato basil soup (powdered product - just add water) I thought it was safe. Within 10 minutes of eating it I got very sick. I will not be having it again but am wondering which ingredient I overlooked. Is there a list out there anywhere that provides all the ingredients we are to avoid? I have...
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ARCHIVED Very Shakey, Almost Low Blood Sugar Feeling...
Noel1965 replied to a topic in Coping with Celiac Disease
This happens to me too. I actually have been worried about driving as the weak, shaky feeling comes out of the blue for me and it nearly feels like I could pass out. Anyone know what can be done about this? Hope it goes away for you Deb! -
ARCHIVED Newcomer
Noel1965 replied to super-sally888's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Sally and Welcome! I am fairly new here too so don't know if I can help much but read, read and more read .....lots to be learned here. Based on your symptoms, celiac does sound like a possiblility. I know that I felt like I was a hypochondriac too until I got the diagnosis......which did help some. At least my family understands now. Hope all goes well... -
ARCHIVED So It Looks Like I Have Crohn's
Noel1965 replied to penguin's topic in Related Issues & Disorders
Penguin - I am so sorry about your diagnosis. Yes today would be a sucky day for you....but only time will tell. My brother, cousin and an aunt all have had crohn's for decades and have never had to take any meds- they are okay with diet changes, etc. Sorry to say another of my aunts has had to take many different medications for her crohn's so I understand... -
ARCHIVED Gurgling Stomach
Noel1965 replied to Kristen2Denise's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I too will have to try the cough thing but I may have to nearly choke to cover up the length of the rumbles.....they go on for ever! The comment every time is you better go eat something...LOL -
Michi8 - Thanks for confirming my thoughts on the hand washing - didn't think that stuff would do the trick!
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Would love to get some feedback on this thought : I eat popcorn etc when watching tv. My family could eat anything from chips to a sandwich while watching tv. We all use the remote to change the channels and do not wash our hands at that time. Do you think this could be a factor in cc? Ditto for the computer keyboard....I don't eat the computer but my...
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HI Everyone! Well as of this morning I have eliminated dairy - wish me luck! Changed to tea instead of coffee as coffee without creamer is blah! Happy Girl - I did get my bloodwork redone after 4-5 months of being gluten-free and the levels had barely moved. I have the requisition form to get it done again now at 9 months however I am scared to go...