Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

Ginger38

Advanced Members
 View Profile  See their activity

  • Posts

    324

  • Joined

  • Last visited

  • Days Won

    3

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Ginger38

  1. Ginger38
    Yes the journey here has been a long one. Is there any reason to continue to check blood antibody levels in the future? mine had not gotten to negative or zero yet . Thanks for all the great information! I will check out these supplements and hopefully start feeling better !!
  2. Ginger38
    Thank you! This is helpful and validating, which is nice. I am so tired of gastrointestinal issues and feeling poorly. Obviously my immune system is freaking out and seeing gluten as a foreign invader… and I feel like I’m just trying to doctor myself all the time but I did wonder if it was all indicative of pre celiac or something like that. I haven’t g...
  3. Ginger38
    Hi! Thank you, this is the most validating information I have had shared with me. I wondered if all this was indicative of pre-celiac or just celiac that hasn’t caused damage. It’s been a long road with all this and I am burnt out on dealing with it all. And I am beyond tired of gastrointestinal issues and feeling poorly. I have had major improvements on ...
  4. Ginger38
    Thank you 😊 Yes this whole process has been very frustrating! I didn’t think NCGS caused positive TTG-IGA antibodies? I thought NCGS was just a sensitivity but doesn’t cause ab autoimmune reaction which is what raises the antibody levels, correct? A formal diagnosis would have been so much easier for me as far as dealing with family and functions and fo...
  5. Ginger38
    I forgot to add that my gastro doc was 💯 sure I had celiac and finally convinced me to do the gluten challenge which was TERRIBLE… I gained like 9 pounds and was so bloated and swollen and in pain.. all because he felt I needed this diagnosis.. which in the end I didn’t get .. It’s been frustrating. And I don’t understand why my body is throwing out antibo...
  6. Ginger38
    I have positive Ttg-IGA antibodies- and I have every time they have been checked. Also the antibodies do respond positively to a gluten free diet. However my biopsy showed no damage and my doc said it all looked okay in there. How does this happen and What does this mean??
  7. Ginger38
    I had positive TTG - IGA antibodies. Is the marsh scale something that is automatically done when they do the biopsies or how does that work? And how many biopsies should the doc have done for pretty accurate results?
  8. Ginger38
    Thank you so much and thanks for all this good information! I’m glad I survived as well. It was rough! I already feel lighter or something and the bloating is so much better as well as the leg and feet swelling.
  9. Ginger38
    Thanks for the info, that helps me understand all this a little better. My GI doctor has already told me that regardless of the biopsy results he believes I have celiac and either way I have to live a dedicated gluten free life as a celiac
  10. Ginger38
    So what happens if a person doesn’t have any damage yet? The biopsy would come back negative, correct? But does that mean you don’t have celiac or it was just caught before any major damage has been done? Im A bit confused
  11. Ginger38
    I agree there is definitely something going on. I am having a terrible time with anything tomato, cucumbers, salad .. it’s like I’m not digesting my food. And it seems like my body does not like most all grains if any. I’m out of ideas on what to even eat to get to feeling better. I am so bloated right now, have to wear leggings - and I’ve also gained almost ...
  12. Ginger38
    Thank you so much!! Me as well, my family doesn’t believe me And it is so frustrating Will do! Hoping for some definitive answers! My family doesn’t believe me and I wouLd love to have definitive proof
  13. Ginger38
    Yes it was successful , have a really bad sore throat and some abdominal pain / gas but guess I’m okay. He took several biopsies of my duodenum, stomach and colon
  14. Ginger38
    Procedures are done , thank goodness
  15. Ginger38
    Yes I figured out I couldn’t have gluten years ago when I was symptomatic and tested positive, but was misinformed and told I couldn’t have celiac but to go gluten free. I was already gluten free. I was never willing to go back on gluten and make myself so sick to have the biopsy especially when the biopsy isn’t 💯. But Now I have to have a procedure anyway a...
  16. Ginger38
    Basically because he was going to do the biopsy either way , so I agreed after him bugging me lol (after all this time of refusing) (and I’m already regretting) to do the gluten challenge. But yes he’s already told me even in if the biopsy is negative I still have to live as a celiac for the rest of my life bc he’s certain I’m celiac positive regardl...
  17. Ginger38
    Yea the bloating is MISERABLE!! I have gained 7 pounds since starting the gluten challenge 😵‍💫😔 at times I look and feel extremely pregnant! I have measured myself and will sometimes deflate 2 inches overnight 🤦🏼‍♀️I hope this weight gain goes away after I get back to the gluten free lifestyle .. I can’t afford to keep this extra weight Thank you!! ...
  18. Ginger38
    I have had a lot of reflux since starting the gluten challenge. My GI gave me some meds to take to hopefully help a little while on the gluten challenge
  19. Ginger38
    Thanks for the encouragement, I am honestly ready to give up! It is majorly interfering with my ability to function and work. Feeling off balance and having this sleepiness and the shakes is the worst!! The chest pain just comes and goes , nothing too concerning, I have noticed it before with gluten exposure. I have a cardiologist as well so it’s nothing t...
  20. Ginger38
    I have about one more week to go on the gluten challenge; I’ve been noticing some odd things and am wondering if they are gluten related— chest pain, extreme sleepiness and yawning, feeling off balance and feeling like I’m walking sideways or something, tremors and feeling like my insides are shaking. Ive noticed being forgetful and struggling to find words...
  21. Ginger38
    Most of the time I do yes. Like if I toast I have eggs or if I have pasta I have meat with it. There have been times when it’s been naked carbs, like saltine crackers to calm my stomach. Other than that I do try to eat protein
  22. Ginger38
    I am on day 24 of my gluten challenge. I have been consuming the recommended daily amount of gluten. I am also a diabetic. Since starting the gluten challenge my sugars have been crazy uncontrolled and high. I take metformin and januvia for my diabetes. My doc increased my januvia to 100 mg daily bc my sugars have been so much higher. But nothing seems to...
  23. Ginger38
    My current issues are this horrible feeling of being overly stuffed all the time which is causing reflux so bad I have vomit in the back of my throat. Like when I eat it just feels like here is no where for my food to go. Im miserable and can’t get relief. Im also having issues with bathroom habits. One day I will be somewhat constipated, like I just d...
  24. Ginger38
    Thanks! The benfotiamine I have is 200 mg per soft gel?? Is there nothing much to help with the bloating?
  25. Ginger38
    Thank you!! What helps with this horribly painful bloating??? Should I do a stool softener or gentle laxative for the partial constipation issue? And how much benfotiamine??
×
×
  • Create New...