Sinenox

In my relentless search to try to figure out my issue a few years ago, after trying a bunch of different exclusion diets in addition to gluten-free (soy, corn, dairy, nightshade vegetables, refined sugars, etc) I tried FODMAPs. It was more difficult than any of the other diets only in the sense that keeping all of the rules in your head is pretty hard. But...

I haven't posted here in years, but I thought others might have the same problem so I wanted to throw this out there. This isn't a better diagnosis by any means, but it might make sense for some with atypical experiences like mine. I have been sick since I was a teen, went from being a competitive athlete to unable to run for a few minutes without feeling...

I confirmed with a chemist at Watson Pharmaceuticals that Reclipsen is gluten-free as well. It uses corn-based starches as filler.

Hi there, Watson Pharmaceuticals, the manufacturer of Reclipsen, is hard to pin down. I had to call them a few times, but I was routed to their laboratory, where I spoke to two technicians named Brendan and Andrew. They both confirmed that there are no gluten ingredients in Reclipsen, and that the starches used are based in corn. To the OP: Reclipsen...

My partner was recently diagnosed with narcolepsy, which is currently considered an autoimmune condition as well, and many people on the Narcolepsy Network report doing better after going gluten free. I mention this because the only condition in which it is common to "hear voices", besides schizophrenia, is narcolepsy. You may want to ask your doctor about...

I can see how that would be confusing. So I was sent to Italy for my career and I was in this one area for a month. I was "forced" to eat gluten because I could not avoid it in the food I ate there. There was not gluten free food available. Even the salads I would order had cross contamination issues like crazy. Them's the facts. That part had nothing to...

My experience with this has been that no matter how it's down-played, your failure to eat exactly what everyone else is eating is the source of that attention. In a tight-knit competitive atmosphere where you don't control your own schedule, there just isn't any getting around it. That bit about being the quota-filler is interesting! I've never even considered...

I am in an environment very much like that described above and unfortunately "suck it up" doesn't tend to apply where social gatherings of this nature are concerned, at least for some of us. Going out and not eating is great - but can you do it twice a day and eat in your office without people taking exception? Many of us are too young to rent a car and often...

Thanks for all of the replies, guys. It's not an issue of making excuses or of wanting to eat gluten - I can assure you that I learned quite viscerally how bad the gluten was for me, long ago. I am eager to get back to my completely gluten-free lifestyle. I even got an ulcer over all of this stress about eating the gluten again. I desperately want to be...

We're starting a biweekly support group in New Haven. You're welcome to come though it may be too far for you to reasonably drive. Aiming for a start date in December.

I may be really sensitive but I didn't get over the continuous low-level "yuck" feeling until I gave in to replacing everything and using exclusively my own new stuff - including non-scratched and non-porous materials such as baking sheets, plates and cutlery, plastic tupperware, etc. Just my two-cents.

I've been gluten free for a few years. I was quite strict in the beginning, felt out my boundaries, realized how much I could be hurting myself and took only calculated risks. This last summer I spent a couple of months in rural Tuscany. I don't travel the way most people do - so all of that nonsense about how great Italy is for Celiacs was just that. If...

My understanding was that Rice Dream was at the lower threshold of what can be tested. If that's the case, what is to say that any of the other milks could be considered better? How can we be sure that they aren't processed with/exposed to gluten?

It really is a rollercoaster ride. It's even harder to remember that when you feel great 3 months in and then crummy 1.5 years in, yet again. It takes time. This was the very hardest part for me - accepting that yes, it really was going to take more than 2 years for me to feel truly better. It was particularly hard because there were a lot of inexplicable...

Hello. I have just moved in to New Haven to start a PhD as well. I have found the local restaurants sorely lacking, unfortunately. I would love to get together with other local celiacs (particularly other grad students) to cook and discuss. Let me know when you get into town. I would be happy to help to organize something a little more formal as well, if...