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hillyb6

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Everything posted by hillyb6

  1. hillyb6
    honestly i would have her checked for eosinophils it can mimick celiacs and crohns and you would have a neg blood owrk and neg biopsy for both and not all gi will look for eosinophils so you would have to ask and make sure on the pathology report it says none or zeron not that just that show anything on it because alot of times they dont look that is why...
  2. hillyb6
    where did you find the rates on teh eos of high>4 my daughter was just biospy her was more than 75 just cant seem to find much about how they determine the severity of it and and allergy testing doenst alway lend results for teh eos triggers since to get a pos allergy test its a ige antibody and for some resaon alot of the triggers for eos disorders...
  3. hillyb6
    just wanted to say thanks for all the helpyou all have been we have a diagnoise for my 8yrold daughter she has eosinophilic gastroenterist its an allergic reaction of the gi tract somewhat like celiacs but to alot more foods and eviromental allergys so if some of you with out pos biopsy find out if they checked for eosinphils alot of drs dont check...
  4. hillyb6
    yah well that is basically what they fed hannah too after her surgery was nothing but gluten so wonder she had amigraine and pain but she was on soo much pain meds proably good thing i am shocked that kids that were in there with pos blood test for celiacs were being offered nothing but gluten now for my dd its unclear but last night she ate chicken...
  5. hillyb6
    hannah been on previcid 30mg since sept its clearly not helping so i guess we try soemthing else now
  6. hillyb6
    my 8yrold just had the scope done she didnt even have to wear a gown go figure she got to wear her street clothes not sure how they managed that undressed her from waist down after she was knocked out was my guess but she was fully dressed when i got back to her room so she has no idea she even had a scope up the hind in which is all as well she is veyr...
  7. hillyb6
    ok my 8yr dd had her endoscop and colonoscopy done today and they ruled out crohns but we wont have the biopsy results back for a few days to a week they did find grade 4 errosion of her esophgus and some gastrist in her stomach can that be related to celiacs? or is that seperate issues altogether another thing i am shocked about is they are...
  8. hillyb6
    ye from what i can gather they didnt do all the test i dont know why other than they dont know about the others or what i will ask the gi dr about it
  9. hillyb6
    bitter sweet cup isnt it, now you know for sure but you were sort of hoping it wasnt ?
  10. hillyb6
    yes i think that is exactly what were gonna do this week i plan to go and start replacing our glutened food wiht nonglutened foods dd has been gluten free for 3days not on purpose just been soo sick she hasnt eaten anything with gluten i cant say she feels better cause she has the flu, but she hasnt complained once that her stomach hurt i just plan on continueing...
  11. hillyb6
    hannah is iga def but i knew that she had her tonsils and adnoids removed at 23month due to iga def and chronic infections in both by her ent but is that the same iga def you mean she doesnt produce normal amounts of iga antibodies to protect her muscus membranes so she is more likely toget nasty infections my oldest son is totally iga def he produces none...
  12. hillyb6
    all i know is the igg panel and iga panel under 11 was considered normal i have nothing else for the other panel that was done and the other ones they werent done just the two panels the gliadin panel, and the endomysical panel were the only two test run and the retiuline iga thats all the ran is that not the full panel?
  13. hillyb6
    or show me so a site that explains them i asked them to tell me what test they ran and what the numbers were and if i misspelled things please excuse gliadin anti bodie panel iga 3 igg 4 endomysial antibodie screen iga neg retiuline iga less than 5 no antibobies detected
  14. hillyb6
    ok if this makes any sense she had gliadin antibodi panel igg was 4 iga 3 endomysial antibodie screen her iga was neg and retiuline iga antibobies was less than 1-5 antibodies not detected does that at all m ake any sense
  15. hillyb6
    she is 8 not young so i dont know what to think she still has her gi appointment but still very disappointed
  16. hillyb6
    i am very disappointed i ws sure they would be pos, sigh they said they were neg i was soo disappointed that i didnt even ask any thing else, i just called back to ask for the actual test ran and tehir actual numbers so i am now waiting a call back for that info so how many of your kids blood work came back normal and they were still found to be celiac
  17. hillyb6
    wee out in the blue springs area so most of those resturants i dont even know, i guess i have to find some that are more kid friendly i have 6 kids and we used to love to eat out we do have an outback near us, joes crabshack, zios, olive garden, applebee's, gold corral,carrabas, mongilan bbq i think, ihop, dennys, all the regs, tgif, then the normal fast...
  18. hillyb6
    thank you all soo much we are still waiting for her results they had to send them to virgina i am not sure why they were sent there but they expect to have resuls on monday i am disappointed to hear that the blood work is so unclear i was hoping for a cut and dry answer , she does have a gi appointment on the 31st she is currently suffering from a very...
  19. hillyb6
    they just told me they had to send her blood work from monday to virigna no one seems to have any idea why but we wotn have them back till monday or later sigh its very disappointing they said they would have them back today at the latest no one mentioned anything about having to send her test to another state much less across the country for this anyone...
  20. hillyb6
    thanks for the help i sure hope we can find some white bread that we like cause we both looooove white bread can a flare up cause low grade fevers ?
  21. hillyb6
    thanks it makes this soo hard to navigate when you cant get standard list her new ped jumped straight to celiacs before i got to that point when i was listing her problems and since her surgery she asked if celiacs ran in our family i said i dont really know crohns and lupus and my gi had ran a panel of blood and more and more and more blood i wonder if...
  22. hillyb6
    yes i have b een reading and have read that others mentioned headaches but its not listed on any sights i read with symptoms of celiacs does anyone know why not
  23. hillyb6
    I am still waiting for better results although I feel better without gluten (at least the headache is gone).
  24. hillyb6
    thank you i am soo confused i dont mean to be a pest
  25. hillyb6
    i have no idea how to make chicken salad i guess i need to bone up on some things eh can she have egg salad she does like that can she have ranch dressing she loves ranch with her carrots does anyone know if there are gluten free foods at walmart until i can get to one of the other stores we have a huge ice storm comming and i got sick kids , does anyone...
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