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3boyzmom

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by 3boyzmom

  1. 3boyzmom
    Mike, I only just spotted your response today. I am unsure as to why there is not more mention of liver problems in association with celiac disease... but I did a google myself and came up with these links: Open Original Shared Link Open Original Shared Link This is just an antecdotal story and she mentions having elevated liver enzymes as a red...
  2. 3boyzmom
    Within each set of genes there are many subtypes. The number *0201 is the exact gene your son has. Then withthin the grouping of *02xx genes there are subtypes. Same with any of the genes, so the *0602 is the DQ1, subtype 6. The genes pan out as follows: DQB1 *0201 = DQ2, subtype 2 DQB1 *0602 = DQ1, subtype 6 (OR it can also be referred to as DQ...
  3. 3boyzmom
    We just tried Open Original Shared Link We got it at our Whole Foods store. The batter was thick and heavy and I was sceptical, but after baking it, it was great! Very tasty... I made little bundt loaves and drizzled them with a homemade lemon/sugar glaze. Yumm!
  4. 3boyzmom
    The elevated IgG indicates that his immune system has identified gliadin as an invader and boy is it fighting it! 80 is a pretty high count! He is definitely gluten intolerant and should stop eating gluten. The low IgA could mean IgA deficeincy or it just means he's not developing celiac disease right now. celiac disease is NOT the only auto immune...
  5. 3boyzmom
    More and more research is being done and we are finding out that a gluten intolerance is the basis for SEVERAL auto-immune diseases, of which celiac disease is only one. It is true that if you are gluten intolerant and continue to consume gluten you may or may not get celiac disease, but you will definitely get something. Just look in your family history...
  6. 3boyzmom
    Karen, I just said a prayer for you and your doctors. God Bless!
  7. 3boyzmom
    IS it the celiac disease that induces the liver problems or the gluten intolerance? The only reason they know about the multiple auto-immune disorders that are associated with celiac disease is because celiac disease is being studied by scientists. No one has started studying gluten intolerance in and of itself. Actually, people with elevated IgG are dismissed...
  8. 3boyzmom
    Well, what you should understand is that the elevated IgG alone means that your child is gluten intolerant and should stop eating gluten immediately. The IgA would be more specific to Celiac's disease in which the villi were damaged... children are naturally IgA deficient from birth to about 4 years old... and some people are IgA deficeint their whole...
  9. 3boyzmom
    Unfortunately, it is very true... and it means that there are A LOT of people out there with a gluten intolerance that aren't being helped. Elevated IgA is more specific to damage in the intestines... but an elevated IgG is nothing to ignore. The IgG antibodies are the one's that roam freely throughout the body and they are the one's, I believe, are causing...
  10. 3boyzmom
    Some doctors are more open minded than others... Some are very anal. Depending on your doctor you'll get a different answer. The textbook answer is no flattened villi, no Celiacs disease. Some would even report no Celiacs disease with just blunting of the villi. The criteria for diagnosing Celiacs disease will be changing in the future. I am not sure...
  11. 3boyzmom
    If you've gone gluten-free then there is nothing for a GI to do for you. They will want to test you and the tests without a gluten challenge will mean nothing. I'd stay gluten-free! If you feel better being gluten-free then by all means be gluten-free!
  12. 3boyzmom
    If you still have an elevated IgG after being gluten-free for 2 months, I'd say you have a definite gluten intolerance. If you react poorly to gluten ingestion and you feel good on a gluten-free diet, then I don't think you need to look any further. Get on a gluten-free diet and live healthily ever after!
  13. 3boyzmom
    We just had a family birthday get together today. We have 24 people when we get together... Anyways, we did a taco bar... Had the shells, meat, cheese, lettuce, tomatoes, salsa, sour cream, guacamole, spanish rice and beans. People made their own tacos and we also had salad and corn chips for those who wanted a taco salad instead... Everything...
  14. 3boyzmom

    ARCHIVED Misdiagnosis

    3boyzmom replied to Jyvett's topic in Dermatitis Herpetiformis

    Here are some articles regarding urticaria (hives) and celiac disease: Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link I have also encountered several people who have had this experiece as well... antecdotal evidence.
  15. 3boyzmom
    Rose, Do you have copies of the blood work results... the exact numbers? The doctor may say he doesn't have Celiacs disease based on negative tTg and IgA. If he had elevated IgG only, it would be considered a false positive. I would recommend you look into getting the books Open Original Shared Link and Open Original Shared Link I have found them very...
  16. 3boyzmom
    You developed antibodies to gliadin - HOW that happened, I don't know. Was it triggered by genetics? Stress? A virus? Don't know - what you do know is that your body has identified gliadin (gluten in wheat, barley, rye) as an invader and has developed anti bodies to fight it. Whether you've got flattened villi or not - the result is the same - gluten-free...
  17. 3boyzmom
    Here's an interesting article on the subject: https://www.celiac.com/st_prod.html?p_prodi...-52104495568.77 Priscilla
  18. 3boyzmom
    Just wanted to give you some encouragement. I am a mother of 4 and, I have a son who is definitely gluten intolerant, as for the other 3...??? We might have been able to diagnose our son at 15 months if I or the doctor we were seeing at the time had any clue about Celiac disease. The telltale symptoms, for my son, at that age were: loss of weight...
  19. 3boyzmom
    My son has a severe gluten intolerance that caused him to drop from the 80% in weight and height to the 15%. He eventually ended up in the hospital for 12 days from an intestinal crisis, where we stumbled across Celiac disease. All the pieces fit for him.. malabsorption, anemia, lack of growth, bloated belly, headaches, loose stool, lactose intolerance.....
  20. 3boyzmom
    DK, what a great idea! I used to work at a library and that is something I never would've thought of. On the subject of people just not getting it... the most common 'ignorant' comment I get when I say my son can't eat things w/wheat barley or rye is "Oh, well I don't like those breads either! At least he can still eat white bread!" Priscilla
  21. 3boyzmom
    Renee, HIs blood work definitely comes back positive for a gluten intolerance. His body has recognized it as an invader and is at war. Those numbers mean he has developed the anti-bodies to gliadin. This is why he is so sick... his body is trying it's best to rid itself of the gliadin. Whether or not it has reached the point of Celiac's disease...
  22. 3boyzmom
    I keep on reading posts from moms whose kids are told by GI docs that the elevated IgG means nothing and does not support a gluten free diet. GRRR!!! The problem with these narrow minded GI docs is that they refuse to accept or see that gluten intolerance is what causes Celiac's disease! If somone develops a gluten intolerance they should not be eating...
  23. 3boyzmom
    WOW! What a tough one... If I were you I'd keep her gluten free! It sounds obvious to me that she is reacting to gluten... I thought my son's behavior was all becasue of his personality and his age, and it was not. When he went gluten free it was like night and day. When he has had gluten accidents he is like Dr. Jekyl and Mr. Hyde. You need to stand...
  24. 3boyzmom
    Yes, he could be gluten intolerant even though he tests negative for Celiac's disease. Currently doctors are not testing for anything short of having damaged villi in the small intestines and having full blown Celiac's disease. If your son's tests fell short of that criteria, then you would not have been advised to try a gluten free diet. I have been finding...
  25. 3boyzmom
    Hey! I'm glad you got a list. I e-mailed them a few months agao and they gave me a 'careful' response of: due to cross-contamination...we can't give you a list... blah-blah. So, glad to see something a little more informative. Thanks for posting! Priscilla
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