cdfiance

Just wondering if anyone has experienced feeling constantly extremely cold or know any possible causes of it. Alex (my fiance) has been dealing with it since she got sick but it's been more extreme lately. I read that hypothyroidism can cause coldness but I don't think that's her problem because she seems to have the opposite of many of the other symptoms.

It could just be because she's so thin but she been able to gain a bit of weight in the past few weeks and if anything the coldness has gotten worse. We keep the house nice and warm for her and she's always wearing multiple layers but often she still gets chills while I'm sweating.

Hopefully she'll have time to mention it to one of her docs at her next appointment but anyone know why this could be happening. Could it just be a normal part of recovery? Any other ideas besides warm clothes and hot baths to keep her warm?

Thanks,

Ryan

Just wanted to second that the night sweats can be caused by hypoglycemia. My fiance has type 1 diabetes and if her blood sugar gets too low during the night she has a night sweat. It is what usually wakes her up when she gets low during the night. If you were feeling shakey, nauseous, confused, generally really yucky, those are all other signs of hypoglycemia. Eating lots of candy before bed probably caused your blood sugar to sky rocket and then your body overcompensated while you were sleeping causing the hypoglycemia. That's just my guess what happened anyway. There are probably other things that could cause night sweats

Ryan

I see every problem as something that needs to be fixed, and I get very frustrated when I can't. Especially when it's hurting or affecting the people I love. Have you been having the same reactions?

Yeah, you

Thanks for the input everyone. I'm still hoping I can find gluten-free paints but if not I do agree that it is probably low risk. The latex gloves sound like a good idea to avoid getting it under her fingernails. I really don't want her to have to give up something she enjoys doing.

Hey, How's Alex doing? Is the diabetes diagnosis helping get things settled down for you two? Give Alex our best.

Actually things have been going pretty well that last week or so. We're starting to get into a good routine with the blood sugar checks and insulin injections and she's getting better all the time at recognizing early when her blood sugar is getting too low or too high. And best of all it seems like her GI tract is finally starting to calm down! She has less pain and fewer bouts of diarrhea a day. Her sleep is much more restful now that she's not up multiple times a night in the bathroom. I'm almost afraid to say it but it looks like we're finally making progress. We even went to see a movie the other day! I know it sounds like nothing but its a big deal considering the doctor's office, the drug store, and the hospital have been pretty much the only places outside our house that Alex has been in the last few months.

Thanks,

Ryan

Sorry, I should have been more specific. Alex is my fiance and she's turning 24. So it would be paints and paintbrushes and not fingerpainting or anything like that.

Sorry for not clarifying that; I can see why it looked like my post should be moved to the kids/babies section -- my bad.

Ryan

Since Alex

Ryan, has she ever tried irrigating her sinuses with salt water? Works wonders for me.

That sounds interesting. Do you just mix some salt into water or buy a prepared solution? Just snuff it out of her hand or use a syringe to shoot it up there? That would be awesome if it would wash out all the junk in her sinuses causing the pressure. Do you do it just when you're having sinus problems or all the time as a preventative measure?

Sorry for all the questions! Thanks for all your help.

Ryan

ryan, diabetics are more prone to yeast infections than alot of other people are. diflucan is what both of my girls were treated with to eliminate the yeast. it is a really good antifungal Rx.

Another great thing about diabetes Her doc gave her diflucan so hopefully that takes care of it.

Anyone know if yeast can cause sinus problems? Her sinuses have been killing her the past few days and I was wondering if there was a possible connection. Alex has been troubled on and off with sinus pain for as long as I've known her so it may just be her normal sinus problems. She's has asthma and allergies so I guess it comes with the territory. Probably just wishful thinking that the med for the thrush would help her sinuses too.

Ryan

I would swish the VSL#3 around in my mouth for a few minutes if I had oral thrush. It might help some since we know it helps the intestines.

Sounds like a good idea. Maybe once this goes away that will also help prevent it from coming back.

Also, try to restrict sugars and simple carbs to starve out the yeast. Try also eliminating yeast for a while ... even though it's a different yeast, I know I feel better avoiding it. I realize she's diabetic, but do the best you can with the sugar.

So sugar feeds the yeast? I guess that makes sense, kind of like how beer is made. She'll probably be able to avoid sugar pretty well except when her blood sugar is low. She's already staying away from anything too sugary so I guess we'll just have to take it one step further.

One time when I had to use an inhaler with steroids in it, I had to rinse my mouth after every dose, because the doctor said that it could cause thrush. It was prescribed for my bronchities at the time.

Actually, Alex uses an inhaler every day for asthma. She has since she was quite young (5 or 6) I believe. It sounds like that might be part of the problem. Too bad she couldn't stop taking it for awhile but it seems to do a pretty good job controlling her asthma.

Thanks for the info everyone,

Ryan

Alex has developed some white spots in her mouth and has a bit of a sore throat. When we looked up what it could be, it looked like it might be oral thrush. Does it have anything to do with Celiac disease? It said thrush is caused by a yeast fungus infection in the mouth. I think I also saw that it can happen when you're on antibiotics, which Alex is. Does anyone know if the probiotics she

Just wanted to say my fianc

Now that we seem to have figured out all of Alex

PS - my son made a dartboard out of corkboard, its fun distraction for any needles that hurt or if he is just having a day where he wishes he didnt have to take needles. He made a bullseye and tries to hit it with the needle when he's done. We found out its better if its on the floor and he drops it from above - needles dont make good darts for the walls!

You can also cut out pictures and try and hit the face (Yikes)

I love that idea. I think you've inspired me to make that for Alex's upcoming birthday. I think a picture of wheat on the bullseye would be fun! Some times the needles go well and some times they take a bit of anger and swearing to get through. Getting to throw the needle at something after would be very therapeutic for her I think.

Thanks again for all the great info. We have been finding her blood sugar does dip in the middle of the night and she usually wakes up with a nightsweat. We will definitely be vigilant about possible highs the next morning due to that.

Ryan

Thanks for all the info Sandy. Every time I

Thanks for the ideas everyone. Also, thanks so much Sandy for the great info from that link . The Dextrose tablets sound like a good idea. Her first low after she came home from the hospital we used sugar water and she promptly threw it up. I don

Thanks for all the kind words and information. It's been a crazy few days since Alex came home at the hospital. It's frustrating and stressful but Alex seems more herself than she has in quite awhile so we're thrilled about that. She's still very sleepy but feeling less weak and definitely less sad. We

As I posted before, my fianc

I believe acetabulaire is referring to the acetabulum, which is where the head of the femur articulates with the pelvis. I am not a native speaker of French but I believe this is what it is and it seems to fit in with the context of the article since the lumbar spine also articulates with the pelvis. I hope I got this right for you.

Ryan

My mom mentioned to me the other day that baby food might be a good thing for Alex (my fianc

Hi,

Just saw your post. First question is has Alex been keeping a log of exactly what she is eating? Are the GI symptoms exactly the same as pre-diagnosis? She may be getting gluten from a source other than meals. One common mistake is a person licking envelopes. This was mentioned during a talk last summer by one of the leading Celiac research doctors in the US. As far as a follow-up endo I would rather you checked the anti-body levels in the blood first. If they are still elevated then I would suspect she is still getting gluten from some source. The more naturally gluten free food she can eat (meats, fruits, veggies, etc), the less likely she could accidentally ingest gluten. Also soap, shampoo, touthpaste, etc. are candidates for gluten. Hope this helps.

Tom

Thanks Tom, I appreciate the response. Alex and I have learned a lot about Celiac in the last few months but we still feel like we

I last posted a couple of weeks ago about my fiance Alex, who was having a pretty rough time with pneumonia and then colitis from the antibiotics. Fortunately she's off all the antibiotics now and doing quite a bit better.

We saw Alex's GI on Friday for a scheduled follow-up and he said that it was disappointing that she wasn't much better after almost four months of gluten free. She hasn't gained much weight back and is still needing weekly IV iron and B12 shots. He said he wanted to schedule Alex for a follow up endoscopy/biopsy to assess how much her villi have healed.

Is this necessary? Can it really tell us anything that we don't already know? She's doing better but not 100% so her villi are probably partly healed. I think if Alex hadn't gotten sick with pneumonia and all the complication that came with that she would have gotten better quicker. Is four months too long to still be having GI issues? It's not like we can do anything else -- we're completely gluten free. Maybe it's optimistic thinking, but now that Alex is healthy (besides the Celiac) I really think her recovery is gong to go much faster. She has been able to eat better within the last week and seems less pale to me.

Anyway, should we be worried that the GI is "disappointed" in Alex's recovery rate? Should we just go ahead and do the biopsy? On one hand it seems pointless but we certainly don't want to be negligent about Alex's health. Thanks

Ryan

Thanks all for your words of wisdom and experience. We saw Alex

Is she casein-free as well? I know someone with casien intolerance whose main symptom was internal bleeding.

yeah, she's been casien free as well. Mainly just eating gluten-free toast, bananas, applesauce, and rice lately.

Alex has been having really bad diarrhea the past few days and now she's passing some blood. I'm assuming this is not a good sign. She for sure hasn't had any gluten so it must be from the antibiotics. I know this needs to be checked out by a doctor but she's upset and angry and exhausted and really not wanting to go to the hospital. She's sleeping right now. When she wakes up should I try to convince her to let me take her to the hospital or can this wait until Monday to see her doctor?

I'm really frightened. This can't be good. And she's just so frustrated and emotionally low right now that she doesn't doesn't want to deal with this. She's fed up with dealing! I hate to sound desperate but -- what do I do?! When is all of this going to end. I don't know how much more Alex can take.

Ryan

I would get some Preparation H cream for Alex. If it is the outside instead of her rectum, some hydrocortizone cream may do the trick. You can find it just about anywhere. Be sure to call the manufacturers to see if they are gluten free.

Ah, good idea. I don't know why I didn't think of that myself. I guess this stuff isn't exactly common knowledge to most 24 year old guys. Hopefully it helps and allows Alex to sleep all day (besides frequent trips to the bathroom )

She's very sad and angry at the world right now (which is VERY un-Alex-like) and being kept up most of the night in pain was NOT good. And a bunch of her friends flew to Vegas for the weekend which makes being stuck at home sick and uncomfortable all that harder to take. We know she's eventually going to be healthy again but it's just a little hard to see that right now.

Well I'm off to the drug store,

Ryan