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cyberprof

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyberprof

  1. cyberprof
    Mommida's post brought up something else I forgot. Colitis is sometimes treated with a gluten free diet, even in people w/out celiac. So with EOE, colitis and/or celiac, your best bet is to go gluten-free and you may feel better. It does take a while to become an expert at gluten-free so don't give up if you don't see results right away.
  2. cyberprof
    It looks to me like you have celiac, Eosinophilic esophagitis and colitis. There are some diseases that cause vilious blunting, but just because your blood tests are negative does not mean that you don't have celiac. The blood test is unreliable as an exclusionary device. Someone here might be able to tell you what causes blunting besides celiac but...
  3. cyberprof
    I respect everyone who has weighed in on this thread (and sorry to the OP if we've hijacked your thread) I absolutely do cover each and every thing that I put in any microwave after being glutened 2-3 times. I'm not sure if there is science behind it but I do it religiously cause I don't want to risk getting sick even once. Some microwaves are cleaner...
  4. cyberprof
    Hi Oxy, welcome to the forum. If you've just been gluten-free for a short time, you may just need to be truly gluten-free for a bit longer, as it takes a while to get used to it and make sure that the gluten is gone. Or you may need to be stricter. But that being said, autoimmune diseases like celiac and lupus do tend to run together. We say here that...
  5. cyberprof
    Candygurl, this is a hard one. I think it
  6. cyberprof
    xjrosie, in the U.S., La Choy IS gluten-free. I personally like San-J gluten-free Tamari Sauce myself.
  7. cyberprof
    Mom-of-two, the "remarkable" damage is just "medical-speak" for something that is visible during the endoscopy. It doesn't necessarily mean that it is a huge problem but you could ask the doc for your "Marsh classification score." Celiac is classified from Marsh 1 to Marsh 4, depending on the level of damage. See wikipedia for definitions: Open Original...
  8. cyberprof
    Gina, welcome to the gluten-free forum! It's a good place for celiac info. I have noticed that my eyes are good then bad then good again. I hadn't noticed any connection to gluten though but maybe I'll start a log. I am very curious if there's a gluten/fuch's connection. My dad is the supposed link, as I think he probably has celiac or at least...
  9. cyberprof
    Chocolate Mug cakes are all the rage now. They're good for a simple treat after the kids have gone to bed. I've tweaked this recipie and it's good gluten free. Chocolate Mug Cake Ingredients: -1 T gluten-free flour plus 1 T ground almonds -1 T cocoa powder (unsweetened) -1/8 t baking soda -pinch of sea salt -1 egg white or 2 T egg substitute...
  10. cyberprof
    I don't know about you, but I would lose weight on that diet. Heck, I need to lose weight so I should follow it. The key to gaining weight is calorie-dense foods and eating mini-meals often. I would suggest some good fats and some extra protein. Good fats include olive oil, avocados, nuts like almonds, pecans and walnuts. How about: Breakfast...
  11. cyberprof
    No, I'm pretty sure Raven lives in the US.
  12. cyberprof
    I had similar biopsy results...it's Marsh 1 on the Marsh scale, with the four Marsh stages as follows: Marsh stage 0- normal mucosa Marsh stage 1: increased number of intra-epithelial lymphocytes, usually exceeding 20 per 100 enterocytes Marsh stage 2: proliferation of the crypts of Lieberkuhn Marsh stage 3: partial or complete villous atrophy Marsh...
  13. cyberprof
    Yes, our own Ravenwoodglass is one of those. It's a moot point for the OP, Lizzy, because she, her kids' dad and her kids all have at least one celiac gene, predisposing them to celiac (but not making celiac a certainty).
  14. cyberprof
    OK, as you noted, each person has two chances to have a celiac gene. This is what we know: You - DQ2/DQ8 Middle Daughter - DQ2/DQ2
  15. cyberprof
    Well, in my case I told my doctor that I thought I needed to be tested for Hashimoto's based on symptoms and she said "Don't belive everything you read on the internet. ... You just need to lose weight." And when I said that PubMed and my brother the doctor were big sources of my information, she ignored me. Some doctors don't like patients to have...
  16. cyberprof
    Tgrissom, the best way to find information that medical professionals will accept is to use PubMed or other peer-reviewed medical journals: Most doctors work on true scientific findnings and will be more or less unhappy when presented with non-tested theories. (IMHO, they are prejudiced against patients who don't rely on medical research or who say "I read...
  17. cyberprof
    Here's the link that I posted that has a lot of articles and information. Also, MM is not a death sentence as it was 10 years ago when my husband was diagnosed. Treatments are much better.
  18. cyberprof
    Yes, there is some connection. Not all celiacs get MM (multiple myeloma) and not all MM patients are celiac but there may be a link. I've posted on it a lot here...do a search for the official PubMed type articles that I researched. ****Important***** You should tell your grandmother to get tested for celiac. The most telling article was the observation...
  19. cyberprof
    I, too, was amazed to see this posted yesterday and also went to the site and re-read the FAQ. I've been taking this for a while without checking...just assumed that if regular coated ADvil was ok, then the gels would be too. I've had some possible instances of feeling unwell but had not found the culprit. NO more liqui-gels for me. Funny, though,...
  20. cyberprof
    Thanks everyone! While some parts of the gluten-free diet are confounding, overall I am very happy and I'm glad if that gives others hope for the future. My big hope is that as more people get diagnosed, the food industry (especially restaurants and caterers) develop ways to accomodate us easier.
  21. cyberprof
    An iPhone app would be good, except that you wouldn't want to let the server take the iPhone to the kitchen to show the cook. And some of use can only afford iPhones for our kids. (joke)
  22. cyberprof
    I second the use of dining cards. I got free ones from this site Open Original Shared Link (but I also donated a few bucks). I cut the cards up and put both the English side and the foreign side together and put them both in plastic (like a luggage tag). Then I keep them in my purse and give them to the server to take to the kitchen. If I get it back, I...
  23. cyberprof
    It's funny about the plantar faciitis...I had it so bad that I couldn't walk at times in the 3 years before diagnosis. Even wore a night-splint for 10 months straight. Special shoes, inserts, ice - no dice. Nothing helped. But then in all the excitement about celiac, it took me about a month to realize that I wasn't in pain anymore. It could be a coincidence...
  24. cyberprof
    THanks! The carrot cake and brownies are from the Gluten Free Goddess Cake - Open Original Shared Link Brownies - Open Original Shared Link She's updated her recipe so it's dairy-free too although the original with butter is to-die-for if you can have butter. I makethe carrot cake dairy free and use earth balance for the frosting and no-one has...
  25. cyberprof
    Happy Birthday to me! And Happy Re-Birthday to me too! Thursday is my birthday yes, Im a Groundhog. And in two weeks, it will be five years since I was diagnosed and went gluten-free. I have to say that this is one of the best things that has ever happened to me, after the birth of my kids. Since diagnosis, Ive adapted to eating gluten-free and manage...
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