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cyberprof

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyberprof

  1. cyberprof
    alevoy, my questions (like Roda) were in order to determine if you might be amoung those who are more sensitive to trace amounts. I read an article lately that those who appear to have refractory celiac (that is, continue to have high test results and flat villi) while on a gluten-free diet are instead extremely sensitive to trace amounts. The way I...
  2. cyberprof
    Hi Lindsay, did you have your vit levels tested before you go pregnant? If you didn't, they may have been low all along. If you are going to see a high-risk OB, then hold off. Otherwise I'd get a sublingual B12 tablet (gluten-free of course) and take that daily. Sub-lingual means "under the tongue" and is sometimes the only way we can take it as the damage...
  3. cyberprof
    Angelica, this is one of my favorite topics. (I teach at a university too, although part-time as I have a day job in industry.) The following freeze well: Meatloaf, chili (beef, chicken or vegetarian), stews, soups, jambalaya, chicken curry, lasagna. I have another idea for you though...slow-cooking using a crock pot. Using your crock-pot will enable...
  4. cyberprof
    Congratulations! It's so good, itsn't it? RE: your joint and nerve pain - have you tested yourself for nightshade and/or soy intolerance?
  5. cyberprof
    Alevoy, Raven asks good questions. Follow-up questions - What are you eating? Can you give us a sample day's worth of food?
  6. cyberprof
    I'm sorry you're still having problems. You don't work in a bakery/restaurant do you? You're not remodeling your house/condo? (Drywall can contain wheat.) If you've eliminated sources like vitamins, meds, family members/cross-contamination, and processed food, I'd go on a modified elimination diet. My suggestion: eat just plain rice, plain chicken...
  7. cyberprof
    Try Evo - my dogs love it and it is grain free.
  8. cyberprof
    Raven, yes -bald or not we want to see a picture of Maggie. My border collie Tag (or Taggie as she was nick-named)was my shadow. Tag followed me everywhere and lay underneath my chair all the time and slept in our room at night. When she was going to be euthanized the next day, I called her original owner to see if she wanted to say "good-bye" but left...
  9. cyberprof
    Oh, Raven. I missed this post so I'm sorry to be late. The outpouring of love on here is genuine and you do have us as your tribe as someone else said. I hope that the many good memories of Pooh will sustain you. As with all dogs, he would not have wanted you to be unhappy. Please keep him in your heart and let his love sustain you. All the best from...
  10. cyberprof
    Ravenwoodglass is exactly right and she is the right person to advise you because she's been where you are. There are others here who had "diagnoses" of bipolar, MS or ataxia who had full or partial relief - so Raven is not the only one who had good results. Hang in there. I second the sublingual B12: I find that if I skip it for a few days, I can really...
  11. cyberprof
    Catie, welcome. Not to discount the other posters, but three weeks is really early. Don't worry about other things, just keep it simple. Eat whole, natural foods (hamburger, steak, chicken, fish, fresh (cooked) veggies, rice, baked potatoes). Try not to eat replacement foods (gluten free bread, treats etc) just yet -wait until you heal. Cook veggies...
  12. cyberprof
    This is my position too. After it had been around for 3-5 years, I'd get it so I could travel more easily - especially to foreign countries (but even US travel is hard - tried eating at an airport lately???), business conferences (where it is impractical to bring my own food), maybe special events. There is so much cross-contamination risk anytime I eat...
  13. cyberprof
    Too bad about CPK. I'm glad the poster on the link (can't remember her name) took the trouble to do that. I should do the same - we all should - but am short of time now. Oh, well. No CPK for me. But should be ok for DS - who is undiagnosed and really loves being able to eat out and not be the "weird" one who can't eat pizza. He doesn't cheat to my knowledge...
  14. cyberprof
    It may just be a coincidence. However, if you're sick and everything is going right through you, you may be low on potassium and magnesium, just to name two. Taking the vitamins might have an immediate effect in that situation. I know that I feel better when I take magnesium supplements regularly, and the B vit sublingual is imperative if I want to have...
  15. cyberprof
    Don't worry. One episode like this isn't going to set back your progress, although I know it is uncomfortable. After a few days, you should be back on track. And perhaps it's useful for your family to see you going through that so that they understand better. Usually, after I've been glutened through an accident or cross-contamination, I eat bland things...
  16. cyberprof
    I don't know if I'm "more" sensitive, I just recognize it better. About three days after diagnosis, I ate some boeuf bourguignon (a la Julia Child) that I had cooked and frozen half the recipe before diagnosis: The recipe has about 4 pounds of beef and 1/4 cup of wheat flour, meaning I ate about 1/10 of the recipe, which is about a 1/4 tablespoon of wheat...
  17. cyberprof
    The notations above are not your results. That is the results "key" from the test. You should go back to your results or the lab and ask for your specific gene profile. I'm dq2.5 and I cannot tolerate Bob's Red Mill but I can eat a little from a brand called "GlutenFree Oats" (which is a poor name for a brand). By little, I mean that I can make oatmeal...
  18. cyberprof
    HaileyRay, I too have a long story. Many doctors and many years - maybe 30 maybe more of missed diagnoses. I hope you, your kids, mom and brother all get healthy soon. I was soooo happy to be diagnosed that I didn't get angry until later. Now I channel my anger into helping others - either through getting awareness up among people I meet or giving advice...
  19. cyberprof
    Good luck. It's hard, and I admire your determination for your daughter.
  20. cyberprof
    If she can't have sugar, eggs, milk, rice, gluten-free flour, soy, honey, dried fruit, then she is left with sugar-free jello and other "fake sugar" things or fresh fruit and cooked fruit w/out sugar. Dessert is either sugar+carbs+fat or milk+sugar+fat or eggs+milk+fat unfortunately. The suggestions I gave were for occasional "treats" and even though...
  21. cyberprof
    Have you looked at the gluten free goddess's blog? She has a vegan pumpkin cheesecake that is really good and a vegan sweet potato pie. Blueberry crisp perhaps? She is also experiementing with no sugar (and no fake subs) so that might work too. She has a lot of intolerances and is also good about listing substitutes. Her vegetarian/vegan sweets would be...
  22. cyberprof
    gluten-free overseas, I totally understand about the anger and the feeling betrayed by doctors and friends/family. Just think of all we could have accomplished if not sick our entire young adult lives! Funny, I was 48 when diagnosed, so that is three of us here on this one thread.
  23. cyberprof
    Slee, hang in there. It's funny about the plantar faciitis. I was "diagnosed" with it and I had it so bad that I couldn't walk at times from 2004-2007. I slept with night braces on both feet for over a year straight in 2007. It made me wear running shoes to work. I had to stop training for a marathon. After I was diagnosed it took me a few...
  24. cyberprof
    DomesticActivist, Guilt is one of those things that I wish I could get rid of, as it's unproductive but so much part of being a mom sometimes. I certainly think that you did all that was humanly (or mom-superhumanly) possible. You said that they tested for "everything" and then in the end you and your partner made a leap of faith that has proven...
  25. cyberprof
    Excellent! Amazing, isn't it?
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