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Latest Celiac Disease News & Research:
Everything posted by sallyterpsichore
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ARCHIVED Ttg Questions
sallyterpsichore posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi everyone, I was diagnosed with Celiac a little over a year and a half ago and then had a TTG of ">120" which was rather unspecific. After thinking I had cut out all gluten, my antibody count is still 40. I'm clearly being glutened somehow. I'm wondering if a 40 TTG is still high? I know "normal" is less than 19, but there doesn't seem to be any range... -
ARCHIVED Any Backpackers?
sallyterpsichore replied to sallyterpsichore's topic in Traveling with Celiac Disease
Thanks for the responses! If I do get really into the hiking, I may have to look into a dehydrator. Also, does walking 4 miles to work a day count as "hiking"? It's uphill. Both ways. Really. As for getting out to the trails, I think I will, indeed, have to rent a car. The whole car rental thing becomes a bit of an issue because I'm only 24, so it... -
ARCHIVED Eating I N Venice
sallyterpsichore replied to sheila M's topic in Traveling with Celiac Disease
Yep, I bought pieces of fruit from one of the little markets and ate hunks of cheese. Venice is very touristy and they serve food that Americans and Europeans think of as being traditionally "Italian" (pizza, pasta). In reality, Italians eat all sorts of things, many of which are gluten free, but not in Venice. -
ARCHIVED How To Be A Gracious Guest And Remain Gluten Free?
sallyterpsichore replied to hilwacat's topic in Traveling with Celiac Disease
Are you sure that they are completely unaware of the gluten-free diet? I hear from my friendly Irish bartenders that Celiac (Coeliac there) is very common and highly prevalent in Ireland. Then again, it may be a rural/urban thing; like Dubliners know about Celiac, but out in the country they have no idea of what you're talking about. I still struggle with... -
ARCHIVED Any Backpackers?
sallyterpsichore replied to sallyterpsichore's topic in Traveling with Celiac Disease
I did join a local meetup group of hikers so that I can "train" with some people who know what they're doing. I don't have a car and live in Boston, so I'm really limited as to parks and wilderness area, but there are a few. And the hiking group does quite a bit of carpooling, so that should work. I'm still interested in traveling through South America... -
ARCHIVED Bacteria Overgrowth
sallyterpsichore replied to Lizking531's topic in Related Issues & Disorders
I know this is an old post, but I was just prescribed Xifaxan by my doc and am taking loads of it (1200mg/day). I asked about probiotics to avoid any unpleasant infections after the antibiotics and he suggested I get my pharmacy to order a probiotic called "Align." I also have an affection (addiction?) to Stonyfield Farm's yogurt, so that's a nice additional... -
Hi everyone, I'm sure this has been addressed on a situation by situation basis on the forum, but I'm looking for general feedback from backpackers. I've traveled a bit in my life so far, but have never backpacked because it never seemed that "safe" when I was in my teens. I'm interested in both travel backpacking (and staying in hostels, dorms, etc...
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Since you are, presumably, sharing a kitchen, you just have to be ridiculously careful that you keep your utensils separate; that you have a separate serving of butter or peanut butter, or anything that you might spread on something and could collect crumbs from your aunt's food. Also, don't use her toaster. If she's thinks you're being paranoid, she'll probably...
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ARCHIVED Signicant Other Leaving You...
sallyterpsichore replied to polishmafia's topic in Coping with Celiac Disease
I'm wondering about this, too. If you don't mind me asking, how do you deal with intimacy if your boyfriend eats gluten? I've been trying to figure this out and have so far just been avoiding the dating scene because I'm super sensitive and don't want to carry around a little travel toothbrush and Colgate in my clutch. hahaha -
ARCHIVED Signicant Other Leaving You...
sallyterpsichore replied to polishmafia's topic in Coping with Celiac Disease
I just wanted to add a note to say that I think being at our age (I'm nearly 24) is just tricky. It seems that this is just a really selfish age. I have a lot of friends who just don't "get it" or they think it's odd at first and then just don't understand how serious it is and try to be supportive, but end up being critical. Most people I know are mostly... -
ARCHIVED Chubby In N.y.
sallyterpsichore replied to sister golden hair's topic in Related Issues & Disorders
Also, check the labels on your gluten-free foods, even though you probably already are. A lot of times it seems like foods that are made to replace gluten foods (such as breads, snack bars, cereals, cakes, pie crusts, pizza crusts, etc) are really high in calories. I'd guess they're just trying to make them taste better, of course. Maybe just eat some basic... -
ARCHIVED Sibo And Exercise Pain
sallyterpsichore replied to sallyterpsichore's topic in Related Issues & Disorders
bump. Help! This is also sometimes accompanied by really foul-smelling flatulence...sulphur like. It's not really painful, just chronic and only (usually) in the evenings. The rest of the symptoms still are a problem...as well as this new gas issue. Does anyone else have any problems with cardio exercise and strange digestive symptoms? Thanks in... -
ARCHIVED Ups And Downs. How Do I Figure It All Out?
sallyterpsichore replied to Gwen B's topic in Coping with Celiac Disease
I hope I'm not hijacking the thread, but I can't imagine living in a house with gluten food around all the time, just waiting to contaminate your food. Whenever I visit my parents, we have to keep such a close eye on where each knife has been and which container of butter I can use, etc. etc., that it's just exhausting. I'm single and living alone with... -
ARCHIVED Need Support Group In Boston
sallyterpsichore replied to jenna's topic in Introduce Yourself / Share Stuff
Darn it, I just lost my post. Anyway, I live in Brookline, work in JP, and am a member of the Healthy Villi, but also am dependent on public trans. I was thinking awhile ago about starting a dinner group with local celiacs in the area, but have since added other things to my platter and don't have enough time anymore for that, really. However, I'd be... -
ARCHIVED Gluten Free Yogurt
sallyterpsichore replied to ConnieA84's topic in Related Issues & Disorders
Stonyfield Farm is gluten-free. It's also organic and has a whole bunch of probiotic characteristics. They sell it in our normal markets, though I'm in Boston and they have a lot of organic, health-foodies here to support -
I was diagnosed about a week ago with Small Intestinal Bacterial Overgrowth and am trying to exercise and keep my energy up. I'm on two different antibiotics to kill off the bacteria. I tried doing some cardio today (only about 20 minutes) and I got a sharp pain in my lower left abdomen. Now, it could be a stitch, like I used to get in track, but it also...
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ARCHIVED Gluten Free In Prague
sallyterpsichore replied to whitney728's topic in Traveling with Celiac Disease
That should make quite a big difference. I'm sure you can find potatoes, and possibly rice. Maybe corn meal to make grits/polenta? Or drink so much Becherovka that you'll be too drunk to remember that you're hungry...or eat spoonfuls of Nutella for dinner. Enjoy your time there! -
ARCHIVED Gluten Free In Prague
sallyterpsichore replied to whitney728's topic in Traveling with Celiac Disease
One more thing (sorry!): DRINK Open Original Shared Link! (pronounced Beck-er-ov-ka) The stuff's fantastic. It's sort of like pumpkin pie in a shot glass. It's an herbal liquor that used to be used to soothe upset tummies and is now served in every bar in the country. It's also naturally gluten-free. My mom emailed them when she heard that they sold... -
ARCHIVED Gluten Free In Prague
sallyterpsichore replied to whitney728's topic in Traveling with Celiac Disease
I hate to be the bearer of bad news, but you may need to break down and eat meat. Otherwise you're not going to get any of the nutrients you need because gluten-free options are few and far between. Then again, much of the meat is breaded. You may be able to say "no flour" on a lot of it. Again, though, many places are trying to be more youth/trendy-friendly... -
ARCHIVED Gluten Free In Prague
sallyterpsichore replied to whitney728's topic in Traveling with Celiac Disease
Hi all, I was in Prague for a month in a study abroad program (summer 2005). This was before I was gluten-free, but I just wanted to add in some ideas. The food is bread-heavy as was mentioned here already. The markets have basic staples (such as cheese and Nutella ), but restaurants tend to serve heavy, gravy (flour-thickened)-laden food. There are... -
ARCHIVED Practical Backpacking Tips?
sallyterpsichore replied to ElseB's topic in Traveling with Celiac Disease
To tell you the truth, you're going to have to pack food in your backpack just in case you can't find food. I haven't traveled to Australia or New Zealand, so I can't say for those places. I have only traveled in Italy since going gluten-free and it wasn't hard to find gluten-free food to eat, but I went to sit-down restaurants and resigned to spending money... -
ARCHIVED gluten-free Items In Kalamazoo/portage, Mi
sallyterpsichore posted a topic in Gluten-Free Restaurants
Hi all, I went to college in Kalamazoo, MI, and still have loads of friends in the town, one of whom works at Water Street Coffee Joint downtown. She's mentioned a few times that they have many gluten-free items, salads, sandwiches on gluten-free bread (I think), among other things. I just thought I'd mention it. They have a couple of locations. Open Original... -
ARCHIVED Hydrogen Breath Test
sallyterpsichore replied to horsegirl's topic in Related Issues & Disorders
What ever came of this for you? I just did a forum search for this as I just took my first antibiotic today (I tested positive for SIBO yesterday). I'm on antibiotics for 10 days...is that long enough? What kinds of experiences have all of you had? Thanks in advance, Sally -
...but in case they haven't: (my title may be misleading ) I just wanted to share a tip with everyone. If you cook a big pot of brown rice and then let it cool, you can store it in little sandwich bags (for one serving) or larger freezer bags in freeze it. Then when you need some quick brown rice, just toss the bag in the microwave and turn it on for...
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ARCHIVED Bob's Red Mill Gluten Free Oats - Has Anyone Tried These Yet ?
sallyterpsichore replied to suepooh4's topic in Gluten-Free Recipes & Cooking Tips
I'm sure you've already made these at this point, but from my experience, baked goods (and most things) taste more like gluten-filled goods if the flour is a mix of many different types of flours (i.e. not all rice, not all tapioca, etc.) I've only used premixed flour combos because I only cook for one and don't want tons of different flour bags to go to...