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acod

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by acod

  1. acod
    Hi Was she free of pain when she was on her first month off of gluten? Unfortunatley, my son (who is 12) still has constant abdominal pain, albeit less than it was...and he has been gluten free for 4.5 months...so, sorry to say, it can stay around. He also struggles with limited bowel function. The Glycolax that we took for 2 weeks, only produced 2 BM...
  2. acod
    thanks for all of the suggestions. I think simplifying and reducing his diet is probably a really good way to go. He loves food, and finds the only joy in the day from food, so it is tough, but we will try. RICE GUY: If I may ask, "Do you use the magnesium for constipation or lack of "going"? I am just so interested in finding a way to help my...
  3. acod
    Hi Rice Guy, My original post got cut off, and in that, I had mentioned that we did use the magnesium Natural Calm (something I learned about from this forum). After 2 weeks on that, our son got really bad acid reflux and his GI thought that the magnesium was acting as a muscle relaxant, and had the sphincter to the esophagus, wasn't working properly. ...
  4. acod
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  5. acod
    Thanks for your reply Bunny. I forgot to mention that we did 2 weeks of probiotics early on, and he takes Fish Oil daily and has since October. But perhaps we should do them again. This is such a mystery. He can't tolerate lactose/casein yet, so we haven't done yogurt. I hope that his intestine heals in a way that allows him to have yogurt again. ...
  6. acod
    Hey there My son was diagnosed with celiac in November after an extreme stomach flu. He has been gluten free for 4 months, and continues to have symptoms, and does not really feel better on the gluten-free diet. His last blood test showed that his blood titers were down, but not normal. Upon his initial diagnosis, his intestine was completly atrophied...
  7. acod
    Hi all Thanks for all of the suggestions. our son is slowly, progressing in a positive way. We have softened his diet and we was all of the time. We are also working on healthy mind activities as way to distract him during this very difficult time. We notice that he is more mobile and happier more times in the day, but he still clutches a pillow and...
  8. acod
    Our son has been gluten/soy/dairy free since Dec. 1. Unfortunately, he is not really progressing at all. His last blood work (Feb. 26), showed that his antibody titers were coming down, but he is still extremely disfunctional. He is in severe abdominal pain and has one to two bowel movements a week. He shuffles everywhere because it hurst so much to walk...
  9. acod
    Hi All this salmon talk made me want to share a new dish I have created and seems to go over well. Macadamia/Coconut Crusted Salmon Ingredients: Macademia Nuts (1/2 cup whole) Dried Coconut Flakes Coconut Oil Salmon fillets Lemon Salt/Pepper Garlic (optional) Egg (optional) Take a handful of macadamia nuts and finely chop them Add to them...
  10. acod
    thanks folks The suggestion to research the lab is a really good one and I have been researching them whilst hoping for replies. I also like the double allergy test. Good ideas. All food seems to bother him. Or his system is just in bothered mode. Having a starting place is what we need. What is the best way to start an elimination diet? ...
  11. acod
    Hi eberbetty he was never diagnosed with gerd, nor did his endoscopy show any esophogeal ulcers. he did have ulceration down in his duodenum(SP?) i wonder if he could be developing an ulcer or gerd. he was tested for h pylori several months ago, but so much has been going on, things could have changed. thanks for the idea
  12. acod
    this mood thing really fits my son. he is so grumpy, irritable, sad, crazed, and in discomfort due to stomach pain and constipation, that he screams all the time. he acts like he is loosing his mind, and it is hard for him to communicate. However, since he has been gluten free for 3 months, we do see changes that he is slooooowly getting better. He has...
  13. acod
    hi my son has been experiencing intense burning in his throat the last two days. Could this be a sign of "glutening"? If so, has anyone experienced this and have ways to calm it down? He has never had any symptoms of upper gastric juices like this before, but he does continue to have intense intestinal pain, so perhaps he is producing more than we know...
  14. acod
    In our case, a fiber rich diet was and is really important to help with the constipation too. However, many folks equate a fiber rich diet with raw fruits and vegetables, which are hard to digest, especially with a "raw" intestine. What we had to do for our son, was really cook all the fruit and vegetables, which allowed us to still get a decent fiber content...
  15. acod
    After being gluten free for 3.5 months, our son is still so very blue and is having a hard time seeing the light at the end of the tunnel. He continues to have intense, sporadic cramping and just feels awful all day long. How many of you have had emotional problems? Did they get better as the gluten was removed and the intestine healed? We know his antibodies...
  16. acod
    Our 12 year old son was diagnosed in November 2006 with celiac disease. He had positive blood tests and 8 biopsies that showed a complete atrophied intestine. We went gluten free on December 1, but unfortunately, his main symptom, intense intestinal pain, has not changed at all since going gluten free. We have worked very hard at getting gluten out of...
  17. acod
    For my son, who is 12, it took over 12 weeks for the stools to regain "normal" color. However he still suffers from intense intestinal pain. He is also dairy free. Good luck
  18. acod
    HI Paula My son has been out of school since October 20. For months he was unable to sit up and he screamed all day long. This is really crazy. His initial symptom was severe diarrhea for 3 days which then led to constipation. Initially we thought he had a virus, and then his stomach (intestinal) ache just continued to get worse and worse. It was through...
  19. acod
    Thanks for the responses. THis is great. After reading them, I felt as if some more information may help out with questions you all might have. My son is 12. He is lactose and casien free. He was tested and is homozygotic for the DQ2 allele. From some of the research we have read, persons with this makeup often heal more slowly. We do not eat processed...
  20. acod
    Hi I am posting for my son who was diagnosed with Celiac in November, 2006. We have been gluten free for 12 weeks. We began by cleansing our kitchen of all all signs and history of gluten laden products and utensils, and embarking on a freshly made diet of organic gluten free foods. Throughout the entire process, my son continues to call out, day and...
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