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JamiD

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Everything posted by JamiD

  1. JamiD

    ARCHIVED Bloating

    JamiD replied to hafadai43's topic in Coping with Celiac Disease

    I had a hard time w/ bloating even after several months of a strict diet of meat, canned fruit, cooked veggies and olive oil. Another poster sent me info on fructose and after eliminating fruits that are high in fructose, the bloating has essentially resolved and I've been able to tolerate Snickers (gift from heaven), Sorbet (corn syrup), and small amts...
  2. JamiD

    ARCHIVED University Celiac Clinics

    JamiD replied to JamiD's topic in Doctors

    I saw Dr Gray yesterday. Because my antibodies (positve IgA and EMA, but negative transglutinamase) and biopsy (negative) were done 6 mos post gluten restriction, he wanted me to do a gluten challenge and re do the biopsy. Well, being in the middle of a divorce and going back to work, I just can't fit that in. He did order the gene tests, but said...
  3. JamiD
    By virtue of eliminating so many foods, I found myself on the Paleolithic diet for a few months. During that time I also gave up nuts and have since found that I can't eat all fruits or in excess. The only difference for me now is that I have added sugar back in to sweeten my tea or to dip a banana in brown sugar as a treat (weird, I know). It's been...
  4. JamiD
    Thanks to some information that Corrine sent me (THANK YOU, CORRINE!) about how the high fructose to glucose ratio of some fruits can be harder to digest, I eliminated apples, peaches, and pears, of which I had been eating in abundance. The gas symptoms disappeared and I have been able to tolerate lower fructose containing fruits such as berries, bananas...
  5. JamiD

    ARCHIVED University Celiac Clinics

    JamiD replied to JamiD's topic in Doctors

    My appt at Stanford is on Aug 6th. I'll post about my experience.
  6. JamiD
    Yes, I have. Have you cut out any other food groups ie dairy? Another poster provided me with these links. They have info on fructose. Open Original Shared Link Open Original Shared Link I found that eliminating apples and peaches, that I was eating a lot of, has helped a lot. I'm now sticking to berries, cantaloupe, and bananas. Still...
  7. JamiD
    What about those sweet liquors like Contreau or Triple Sec (Must haves for Margaritas!) And is high end vodka okay?
  8. JamiD
    Hey, I'm in Calif! In the foothills east of Lodi. And my parents live in Clovis which I visit every couple of months. PF Changs and Outback have worked for me. Picnicing seems to work out best though.
  9. JamiD
    I have intermittent kidney area pain. It usually starts on one side or the other and sometimes radiates in any direction. And I find the urge to stretch it as well, which doesn't help. Nor does large doses of ibuprofen. It sent me to the ER Easter weekend after not subsiding for 3 days. I thought I had a stone or an infection. The pain really wasn...
  10. JamiD
    Thanks for the responses. I'll get the book. I'm also seeing a malabsorption specialist next month, so fingers crossed, that he'll be helpful. I've been doing an elimination diet, down to beef, unprocessed pork, chicken, green veg, fruit, tea, & olive/canola oil for 2 months. I admittedly add sugar to my tea and unsweetened gluten free canned...
  11. JamiD
    I've been doing something similar to the SCD as well as elimating lectins for about 2 months and it's been helping. I eat fruit but I can tell when I've had too much. Meat and green vegetables work the best for me to avoid gassiness, but I love fruit and small amounts aren't too bad on me. Funny, I'm seeing a specialist in August as well, we should...
  12. JamiD
    OMG, YES! Exactly as you stated it. I have noticed an improvement and just checked in the mirror again to confirm! Now if we could just get rid of those undereye circles
  13. JamiD
    hhmm? No responses. Maybe I didn't word my question well? I guess I'm wondering how helpful and thorough food sensitivity testing is. I see individual enterolab results and others listed at the bottom of differents posts and I'm interested in whether that resolved the GI symptoms. I've been doing an elimination diet and food challenges, but it's...
  14. JamiD
    What has been your experience w/ eliminating foods that you tested postive for? Did eliminating all the positive foods result in your GI symptoms clearing up?
  15. JamiD
    Does anyone use this product and know it to be okay? I no longer have the boxes and my friend doesn't sell it anymore. Just trying to eliminate anything that might be glutening me.
  16. JamiD
    *reluctantly raises hand* Gawd, I'm doing it right now. I've habitually chewed/bit my inside cheeks and lips since I was a teen. I do it more when I'm not physically busy. Never been diagnosed w/ OCD and I would say that if I have it, it is mild.
  17. JamiD

    ARCHIVED Dating?

    JamiD replied to JamiD's topic in Coping with Celiac Disease

    Thanks guys I think what concerns me the most is that I don't even want to consider having a social life outside my inner circle of friends until I can predictably get through an evening w/o symptoms. A whole weekend would be even better. When I first finally figured gluten as the problem, I felt fantastic, but not so much now. Not nearly enough...
  18. JamiD
    I don't tolerate any complex carbs and even most fresh/raw fruit and vegetables seem to bother me in a gastritis sort of way. By the time I reduce the amount of raw foods and cook everything to break it down or use canned, there doesn't seem to be enough fiber for me. I think I need some type of bulk forming fiber.
  19. JamiD
    Metamucil, Fibercon, anything else?
  20. JamiD

    ARCHIVED Dating?

    JamiD posted a topic in Coping with Celiac Disease

    Is this the right forum? Okay, it's on my mind. I'm going through a permanent separation so my confidence is already shot. With the Celiac, it's a double whammy. On any given day, I can feel pretty good, but it's so unpredicatable. Like this afternoon would have been great timing, but to make plans for Sat night, no way. And speaking of night...
  21. JamiD
    NoGluGirl, wow! That is some list. Thanks for the time to type all that out. A question about Worchestershire Sauce? I thought the soy sauce was off limits? It's one of my favorite marinades and I was sad to give it up.
  22. JamiD
    I asked my GI (who has referred me on to a Celiac Specialist because he doesn't know what to do with me, but that appt is in Aug) for a trial of Rifaximin. He ordered 200mg 3 x day for 9 days. He's not familiar with it for IBS and neither was the pharmacist. For anyone who has taken this, how was it prescribed?
  23. JamiD
    I'm lectin-free right now and could use some bulking fiber. I've tried Metamucil caps (psyllium husk) but I've read somewhere (maybe on the SCD) that it should be avoided. What's recommended? Thanks.
  24. JamiD

    ARCHIVED University Celiac Clinics

    JamiD replied to JamiD's topic in Doctors

    Well, I've got an appt at Stanford in Aug. I'm discouraged by Murph's experience, but I can't afford the tests from a Naturopath right now and my insurance will cover a visit to the Stanford clinic. In the meantime, I will remain on a lectin-free diet.
  25. JamiD
    Hi Derek, I'm a newbie here, but will share my experience in hope that it gives you hope. I'm 42, mother of 3, an RN, and horses are my recreation. In the last several years, while being misdiagnosed, I felt like the biggest failure in all aspects and can totally related to the stigma of being high maintenance. I made the Celiac connection myself...
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