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DEE BAERTSCH

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by DEE BAERTSCH

  1. DEE BAERTSCH
    That is the beauty of this website. It was so helpful to me when I first found I was celiac. Your doctor just can’t give you all of the details; there are so many nuances and changing dynamics. It is good to know you’re not alone!?‍?‍?‍?
  2. DEE BAERTSCH
    I was diagnosed with hypoglycemia and heart palpitations and was then subsequently tested for diabetes, heart disease and insulinoma. After everything checked out good I looked at my supplements and found out that my recently acquired calcium was not gluten free (didn't have any gluten added but was not certified gluten free). 2 days after quitting the calcium...
  3. DEE BAERTSCH
    Hi again; I just realized I didn't delete the where do you live. The only reason I asked is because you were talking about going to Mayo Clinic; Rochester, MN, I assume. If you live anywhere near there, I know of a good natureopath in Billings, MT that I could refer you to. Natureopath's can be hard to find. Dee
  4. DEE BAERTSCH
    I would go to a natureopathic doctor. It sounds like your doctors don't have any ideas to help you, so I think you need new doctors. A natureopathic doctor's focus is to find out what is causing your problem, not just find something to treat the symptoms. The empathy they have to offer and the ability to listen to you to help you resolve your problems is...
  5. DEE BAERTSCH
    My eye twitches were caused by supplementing too much calcium in my diet. I have osteoporosis so had been told to supplement with calcium. However, I was getting enough calcium in my diet from food sources, so didn't need the extra. I went off the calcium for a month, reintroduced it and got the eye twitches right away. Many celiacs are Vitamin D deficent...
  6. DEE BAERTSCH
    Once I became gluten free & got up to speed on my Vitamin D my joint & muscle aches went away; it was amazing; I thought I would just have to live my life with them! I agree you need to find a Dr. who is knowledgeable about Celiac; that and keep inquiring here & on the web. There's no better advice than from people who have gone thru what you...
  7. DEE BAERTSCH
  8. DEE BAERTSCH
    Hi Tracy; I've never had the itching associated with PBC. The one thing I have learned is that vitamin deficiencies are more common than most Drs. believe. They have very little training in nutrition in medical school so don't have a background in it (plus there's no money in it) Just read an article about Vitamin D deficiencies in US News. They believe...
  9. DEE BAERTSCH
    Hi Paula; I have been gluten free for 3 years now, but in the last year have been struggling with upper right side stomach pain. I've finally found out it is from eating high oxalate foods. Since I don't eat either gluten or lactose I was eating more high oxalate foods. (Oxalate forms kidney stones; that is what causes the stomach pain.) I had been warned...
  10. DEE BAERTSCH
    Hi Tracy; Sorry it took so long to get back here; holidays! There is an organization called pbcer's.org. I noticed there is a study being done to see if Vitamin D supplementation can have an effect on PBC; at Mount Sanai Hospital. It was too far away for me to participate in. Since most celiacs are Vitamin D deficient, it will be interesting to see if...
  11. DEE BAERTSCH
  12. DEE BAERTSCH
    Before I found out I was gluten intolerant my osteoporosis worsened after 2 years of taking Actonel. Being gluten free allowed my intestines to heal & for my stomach to metabolize what I was eating. My bone & muscle aches stopped after taking a Vitamin D supplement; most celiacs are Vitamin D deficient. You have to have the hydroxy 25 vitamin D test...
  13. DEE BAERTSCH
    Before I found out I had celiac disease I had headaches every day. Now that I'm gluten free they are gone. If I do get gluttened I will get a headache; I no longer get diarrhea. Your reaction to gluten can change as you have less in your diet. The important thing is to get good at finding where the gluten is. It is very easy to inadvertently ingest gluten...
  14. DEE BAERTSCH
    Hi Tracy; I was diagnosed with Primary Billiary Cirrhosis before I found out about my Celiac Disease. I was on Urso (the only drug to treat PBC) for 4 years. The Urso kept my diarrhea in check, which was my reason for going to the gastroenterologist. My other symptoms of joint & muscle aches and worsening osteoporosis prompted my Dr. to look for other...
  15. DEE BAERTSCH
    Hi Susie; For me I believe the vitamin D deficiency was the most significant factor in my muscle & joint aches. Celiac disease causes the vitamin D deficiency, so if you continue to get gluttened, you will continue the cycle. I was amazed at how fast my body responded once I supplemented with 2000 IUD's of vitamin D (once you get your levels back to...
  16. DEE BAERTSCH
    NOW, liquid multi, available at www.nowfoods.com, is gluten, dairy, yeast, egg free. It is very hard to find a liquid multivitamin that is gluten & dairy free, but this is one. Have they checked your vitamin D levels? Most celiacs are vitamin D deficient; it was key for me to eleminate my muscle & joint aches. Good Luck! Dee
  17. DEE BAERTSCH
    Hi Susie; My muscular & joint aches were from being Vitamin D deficient which most celiacs are. I supplemented with 2000 IUD daily until I got my values up to normal. Now I do 1000 IUD a day. I have read that 40% of our population is Vitamin D deficient; many Dr's believe it is a trigger for many autoimmune disorders. The medical community is trying...
  18. DEE BAERTSCH
    Hi Carol; The allergy ellimination diet is the only way to determine food intolerances. They will not show up on an allergy test as they are not technically allergies. Allergies cause anaphylactic reactions (immediate) and intolerances cause gastrointestinal, fatigue, joint & muscle problems, malnourishment, etc. It is just easier to use the term allergies...
  19. DEE BAERTSCH
    Hi Jodi; When I first had the pain in my liver the Dr. diagnosed me with primary billiary cirrhosis and treated me with Urso which controlled my diarrhea, but after progressing to osteoporosis after 2 years of taking Actenol, they finally found Celiac. I have now returned my liver enzymes to normal after having stopped all medication and being gluten free...
  20. DEE BAERTSCH
    Hi Jaimi; I have osteoporosis from celiac. I was also vitamin D deficient, which most celiacs and people with osteoporosis are. The vitamin D deficiency was what caused my joint pain. After supplementing with vitamin D, my joint pain is now gone. My Dr. said you need to have the hydroxy 25 vitamin D test to determine if you're deficient; a simple vitamin...
  21. DEE BAERTSCH
    Apparently most people who are gluten intolerant are also lactose intolerant (my understanding is that once the villi are flattened you are not able to digest the cassein effectively). It's what made the difference for me. Also most celiac's are also vitamin d deficient which for me caused alot of muscle cramping and joint pain. Having the 25-hydroxyvitamin...
  22. DEE BAERTSCH
    I'm looking for a Doctor (anywhere) who is knowledgeable about treating osteoporosis when you have celiac. I live in North Dakota & have been to Mayo Clinic in Rochester, MN, but haven't been able to find a doctor knowledgeable about how a celiac metabolizes vitamins & minerals and how best to help your bones rebuild. I've been on Actenol for 2 years...
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