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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by grey

  1. grey
    My migraines are one of major health problems & one of the things my doctor was thinking about when she ran the batch of tests on me that caught the high ttg. I'm on daily prventatives and take triptans for the actual migraines. W/o meds, I had a migraine nearly daily, now, it varies, but I'm familiar with the 4-dayers! They are definately worse when...
  2. grey
    My "instructions" were to eat a 'heartburn diet'; I found them kind of amusing, given my other health stuff. It includes thinks like avoid fried food, chocolate, coffee, tight clothing, smoking, lose weight, & eat less. (Um... I just lost 35 lbs, isn't that part of why I'm here?) I only wish I could eat chocolate and coffee w/o a migraine! And don't...
  3. grey
    Thanks -it's good to know others have had multiple things turn up in the biopsy. I also tried searching the fora, but wasn't getting references to hernia and the esophagus. I'll back away from the general internet searching though! I think that's the right thing to do. (It's amazing. I generally feel fine, but as I'm trying to type, it's *really* hard...
  4. grey
    So, I survived the scope and biopsy (which is hurting more than expected now that I'm awake). The gastro gave me three pictures of "abnormalites" from the procedure. I've been trying to look them online, but am getting progressive more freaked out/confused. I think picture #2 is suggestive of celiac disease, from what I've read, in combo. with my symptoms...
  5. grey
    Hi Bob, Good luck tomorrow!
  6. grey
    I'm definately going gluten-free after the biopsy (it's just tomorrow). I'm nervous even though I'm sure that a serious trial is the right thing. I'm waiting on the mds for tests on the vitamin/mineral deficiencies. I know i have b12 and ferritin, but haven't been tested for a lot of the others. I tend to either vomit or have severe diarrhea w/ multimins...
  7. grey
    Hi- I was wondering if any of the Wisconsinites went to any of the support groups? And if so, how they were/what they were like? (I'm new at this). thx
  8. grey
    Thanks for the replies. I'm in a new place where I don't know anyone well, so it really helps to have found this forum. Unfortunately my doctors won't do anything until after the biopsies results, but I've been reading everything I can, doing my 'gluten farewell tour' of foods, and learning about eating shopping gluten-free locally. Given how sick I...
  9. grey
    I don't really have anyone to talk to about this whole diagnostic journey, so I hope it's ok to keep posting on it and asking questions. I keep finding myself really worried that I'm at this crossroads in my health I saw my new gastroent. on weds. He told me that Celiac was an 'allergy' and he tested for it a lot but rarely saw it. On the other...
  10. grey
    I used to get these and my neurologist called them "ocular migraines." Usually when I was really run down in grad school - 4 hours sleep, really stressed, lots of coffee, no food. He wasn't worried about them but they were scary to have. They didn't last very long usually; quick sugar fix followed by carbs would usually help but I would keep getting them...
  11. grey
    I have similar things happening too. My ferritin is 6.8 (ref range 11-306) and iron 62. My doctor said it meant that I wasn't absorbing iron as well, but I still had some in storage. I can't tolerate oral supplements at all (even gummy vitamins for kids). I have (and have had) a B12 def. for a while- dx as pernicious anemia 3 years ago. I used to get shots...
  12. grey
    Sunshinen, Did you even try the daily preventitive meds? My migraines are only partially controlled and untill after I got my positive ttg, I had no idea that celiac had migraines as a possible symptom. I'm going to the g-i specialist tomorrow for consult; I'm really nervous - I'm hoping he'll say it's definately celiac, everything's related, go buy stock...
  13. grey
    Thanks for the replies! I'm really glad to have found this forum... it's great to have a place to go! I love my primary care doctor - she's great, really listens and thinks about her patients' health. I will definately wait to go off gluten. I'm scared for the specialist tomorrow though, and worried that he won't care about my positive TTG...
  14. grey
    I was tested for Celiac 4 years ago, and was negative. At the time, I was being tested for everything imaginable to find out why I had severe fatigue, chronic pain, and some bad neurological symptoms. I've since gotten better doctors - who've diagnosed me with Pernicious Anemia, an autoimmune disorder which affects the body's ability to absorb B12 from...
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