NY547

Hi Everyone. My question for you all is: have you ever had extreme fatigue and weakness at certain times of the month? My daughter has very bad abdominal pain which radiates around to her back, but she also gets so weak she can not stand up to take a shower or lift her arms. A few months ago, they saw cysts on ultrasound and her LH/FSH hormones were out...

I agree with WW340. The lipid panel doens't seem to be anything to worry about, however, when my daughter was 13 her cholesterol was also slightly elevated. (200, with ref range <200). Her new doctor wants to have the lipid panel repeated (fasting) just to see where she is now at 15 years old. It wouldn't be a bad idea to ask to have it repeated and...

In my oppinion, he is positive for celiac. Celiac can affect/attack more than just the GI tract. Just ask the people with DH! He has antibodies to Tissure transglutaminase which is a VERY SPECIFIC marker for villous atrophy caused by gluten ingestion. He may want to have the test repeated just to be sure there was no lab error since the other 2 tests...

Hi Lisa, My daughter has BC/BS and has had the blood antibody panel for celiac ordered through her primary care provider. They even checked it a second time a few months later. No problems with reimbursement. Of course there are many forms of BC/BS, so if you are not sure, call the 800 number and find out for sure which ICD codes will cover the test...

I think I would stick it out another 2 weeks until the repeat blood work and see what the vitamin levels and celiac antibody show. If your B12 is less than 400 that is low enough to cause some symptoms, and could be from malabsorption even if you are not anemic, same with the iron, TIBC test. You could still be iron deficient with a normal low/normal iron...

Jenna, you definately have celiac. I would think that your doctor would want to schedule you for an endoscopy to see the extent of the damage in your small intestines at this point, but not all feel it is necessary. (The TTG # usually reflects the amount of damage that has occured, and any positive # is indicative of damage to your villi) The H Pylori...

TIGANO, I agree with the others also, you could still have celiac with a negative Bx. You could check to see exactly how many samples were taken as the disease is very "patchy" and ask to have them checked with a special stain which checks for intraepithelial lymphocytes (IELs) Even if there is no bluntuing or villi damgae, an abundance of the lymphocytes...

I've seen a few article on DQ1 also: Try this link, if it doesn't work search for Edwin Liu, DQ1,celiac. Open Original Shared Link Here's a portion of his article: Another marker, HLA DQ1, has been identified by both Dr. Kenneth Fine and Dr. Marios Hadjivassilou as being associated with a Non-Celiac Gluten Sensitivity. While those who carry...

OK, I have to jump in here. Maybe I'm missing something... I do agree with kbtoyssni in that gluten intolerance can often become celiac down the road. And I also agree you can have all the same symptoms as a person with diagnosed celiac disease even without the villous atrophy. My concern after reading all the posts is DACAT, how do you know you do...

If damage was found in the intestines with the endoscopy then chances are, it is celiac. Crohn's usually only affects the lower portions of the GI tract from what I understand. It is not uncommon for people to have IgA deficiency with celiac. Many labs only check the TTg (tissue transglutaminase) for IgA as an initial screen. If suspicion for celiac is...

As I read your post, Lyme disease definately came to mind. With the severity and rapid progression of symptoms though, it sounds like there is definately something else going on. I am assuming they ruled out MS? There are many forms of the disease, some with very rapid onset. Research has linked MS to celiac and I have a friend whose husband was stricken...

Guten Tag! I think it is quite a coincidence that all 3 results came out 1.2 I would question the results if they were mine! Many doctors just order the Tissue transglutaminase test (TtG IgA) as a screen. It is good your doctor included the IgG as well and also the gliadin antibody. I would also ask for the total IgA (total immunoglobulin A) as well...

You're welcome! My daughter also had negative blood work and positive results with enterolab. About 4 years ago her Total IgA was just under the normal range, but not enough to be considered a true deficiency. We had it checked again and her #s are a little higher, but still on the low side of the normal range. The IgA test has differant ranges for...

Yes, IgA or total IgA is short for immunoglobulin A. It tests for your body's ability overall production of the IgA class of antibodies. If you do not produce them anyway, it definately will make the celiac tests for IgA (gliadin and tissue transglutaminase) come back negative, but you could still have celiac, If this is the case, many labs will reflect...

Your daughter's Bx was positive! Wow. I'm happy you finally have an answer. It is a difficult position to be in, you want your loved ones to be healthy but at the same time you are hoping everything comes back negative. Well at least now she knows. I remember when we had my daughter's blood work done last year. When the results came back negative...